Breastfeeding is possible with children who have phenylketonuria. Based on the decisions made by the breastfeeding mother and the infant's physician, there are multiple methods of management which can be utilized to provide breast milk for the infant with PKU. This article describes some of the methods that have been used to manage the treatment of phenylketonuria when a mother chooses to breastfeed.
1. Wappner RS, Brandt IK. Inborn errors of metabolism In: Oski FA, DeAngelis CD, Feigin RD, McMillan JA, Warshaw JB, eds. Principles and Practice of Pediatrics. Philadelphia, PA: Lippincott, 1994:85-86.
2.
2. Medical Research Council Working Party on Phenylketonuria. Recommendations on the dietary management of phenylketonuria. Arch Dis Child1993; 68:426-427.
3.
3. Waisbren SE, Brown MJ, deSonneville LMJ, Levy HL. Review of neuropsychological functioning in treated phenylketonuria: An information processing approach. Acta Paediatr1994(Suppl); 407:98-103.
4.
4. Stemerdink BA, van der Meere JJ, van der Molan MW, Kalverboer AF, Hendridx MM, Huisman J, van der Schot LW, Slijper FM, Spronsen FJ, Verkerk PH. Information processing in patients with early and continuously-treated phenylketonuria. Eur J Pediatr1995; 154:739-746.
5.
5. Position of the American Dietetic Association: Promotion of breastfeeding. JADA1986; 11:1580-1586.
6.
6. McCabe E, Leonard CO, Medici FN, Seashore MR, Weiss L.Issues in Newborn Screening. Pediatrics1992; 89:345-349.
7.
7. Pascoe JM, French J.The development of positive feelings in primiparous mothers toward their normal newborns: A descriptive study. Am J Dis Child1988; 142:382-382.
8.
8. Yannicelli S, Ernest A, Heifert M, McCabe E.Guide to Breastfeeding the Infant with PKU, 2nd ed.Department of Health and Human Services Publication, No. HRS-M-CH88-12, October 1988.
9.
9. Greve LC, Wheeler MD, Green-Burgeson DK, Zorn EM. Breastfeeding in the management of the newborn with phenylketonuria: A practical approach to dietary therapy. JADA1994; 94:305-309.
10.
10. Sinai LN, Kim SC, Casey RC, Pinto-Martin JA. Phenylketonuria screening: Effect of early newborn discharge. Pediatrics1995; 96:605-608.
11.
11. Berry HK. Letter to the editor. Pediatrics1982; 70:505-506.
12.
12. Doherty LB, Rohr FJ, Levy HL. Detection of phenylketonuria in the very early newborn blood specimen. Pediatrics1991; 87:240-244.
13.
13. Acosta PB, Yannicelli S.Nutrition Support Protocols. Columbus, OH: Ross Laboratories, 1993:16-16.
14.
14. National Survey of Treatment Programs for PKU and Selected Other Inherited Metabolic Diseases. U.S. Department of Health and Human Services, Public Health Service, Health Resources and Services Administration, Bureau of Maternal and Child Health and Resources Development, DHHS Publication No. HRS-M-CH-89-5.
15.
15. Pennington JAT. Bowes and Church's Food Values of Portions Commonly Used, 16th ed.Philadelphia, PA: Lippincott, 1994:174-176.