We aied to examine the psychometric properties of several wellbeing scales among Latinos in the US, most of which have never been validated in a US-Latino population. We leveraged secondary baseline data from a one-arm mHealth trial on dementia caregiver support. We included 100 responses for caregiver-focused scales and 88 responses for care recipient-focused scales. Scales included the Neuropsychiatric Inventory Questionnaire Severity and Distress scales, Six-item Zarit Burden Inventory, Ten-item Center for Epidemiologic Studies Depression Scale, 15-item Geriatric Depression Scale, Quality of Life in Alzheimer’s Disease, and Single-item Satisfaction With Life Scale. We calculated concurrent validity using Pearson and Spearman correlations and expected correlations amongst all variables in line with the Stress Process Framework. We calculated internal consistency reliability using Cronbach’s alpha. All concurrent validity correlations followed the expected directionality, with 19/21 inter-scale correlations in the total sample reaching statistical significance (p < .05), and 17/21 reaching at least a low correlation (.3). Cronbach’s alpha ranged from .832 to .879 in all scales in the total sample. The English and Spanish caregiver-administered scales tested in this manuscript have good psychometric properties among Latinos. These are now appropriately available for use among US Latinos in research and clinical contexts.
AcevedoA.KruegerK. R.NavarroE.OrtizF.ManlyJ. J.Padilla-VélezM. M.WeintraubS.LópezO. L.MungasD. (2009). The Spanish translation and adaptation of the uniform data set of the National Institute on Aging Alzheimer’s Disease Centers. Alzheimer Disease and Associated Disorders, 23(2), 102.
2.
Administration on Aging, Administration for Community Living, & US Department of Health & Human Services. (2016). A profile of older Americans: 2016.
3.
AndresenE. M.MalmgrenJ. A.CarterW. B.PatrickD. L. (1994). Screening for depression in well older adults: Evaluation of a short form of the CES-D. American Journal of Preventive Medicine, 10, 77–84.
BakerR. S.BazarganM.CalderónJ. L.HaysR. D. (2006). Psychometric performance of the National Eye Institute visual function questionnaire in Latinos and non-Latinos. Ophthalmology, 113(8), 1363–1371.e1362.
6.
BoeyK. W. (1999). Cross-validation of a short form of the CES-D in Chinese elderly. International Journal of Geriatric Psychiatry, 14(8), 608–617.
7.
BonettD. G. (2002). Sample size requirements for testing and estimating coefficient alpha. Journal of Educational and Behavioral Statistics, 27(4), 335–340.
8.
BrownT. A. (2006). Confirmatory factor analysis for applied research. Guilford Press.
9.
BuitrónJ. M. R.TéstorC. P.GuijarroR. M.GarcíaC. N. (2018). Consideraciones acerca de la interpretación de la escala de Zarit en cuidadores de pacientes con esquizofrenia. Atencion Primaria, 50(7), 443.
10.
CabassaL. J. (2003). Integrating cross-cultural psychiatry into the study of mental health disparities. American Journal of Public Health, 93(7), 1034.
11.
CamozzatoA. L.GodinhoC.KochhannR.MassochiniG.ChavesM. L. (2015). Validity of the Brazilian version of the Neuropsychiatric Inventory Questionnaire (NPI-Q). Arquivos de neuro-psiquiatria, 73, 41–45.
12.
Centers for Disease Control and Prevention. (2010). Behavioral risk factor surveillance system. https://www.cdc.gov/BRFSS/
13.
ChenC.ThunellJ.ZissimopoulosJ. (2020). Changes in physical and mental health of Black, Hispanic, and White caregivers and non-caregivers associated with onset of spousal dementia. Alzheimer’s & Dementia: Translational Research & Clinical Interventions, 6(1), Article e12082.
14.
ChengS. T.ChanA. C. (2005). The center for epidemiologic studies depression scale in older Chinese: Thresholds for long and short forms. International Journal of Geriatric Psychiatry: A Journal of the Psychiatry of Late Life and Allied Sciences, 20(5), 465–470.
15.
CheungF.LucasR. E. (2014). Assessing the validity of single-item life satisfaction measures: Results from three large samples. Quality of Life Research, 23, 2809–2818.
16.
CuijpersP. (2005). Depressive disorders in caregivers of dementia patients: A systematic review. Aging & Mental Health, 9(4), 325–330.
17.
CzajaS. J.LoewensteinD.SchulzR.NairS. N.PerdomoD. (2013). A videophone psychosocial intervention for dementia caregivers. The American Journal of Geriatric Psychiatry, 21(11), 1071–1081.
18.
FaisonW. E.SchultzS. K.AerssensJ.AlvidrezJ.AnandR.FarrerL. A.JarvikL.ManlyJ.McRaeT.MurphyG. M. (2007). Potential ethnic modifiers in the assessment and treatment of Alzheimer’s disease: Challenges for the future. International Psychogeriatrics, 19(3), 539–558. https://doi.org/10.1017/S104161020700511X
19.
FinkelS.CzajaS. J.MartinovichZ.HarrisC.PezzutoD.SchulzR. (2007). E-care: A telecommunications technology intervention for family caregivers of dementia patients. The American Journal of Geriatric Psychiatry, 15(5), 443–448.
FountoulakisK. N.TsolakiM.IacovidesA.YesavageJ.O’HaraR.KazisA.IerodiakonouC. (1999). The validation of the short form of the Geriatric Depression Scale (GDS) in Greece. Aging Clinical and Experimental Research, 11, 367–372.
22.
Gallagher-ThompsonD.SolanoN.CoonD.AreanP. (2003). Recruitment and retention of Latino dementia family caregivers in intervention research: Issues to face, lessons to learn. The Gerontologist, 43(1), 45–51. https://doi.org/10.1093/geront/43.1.45
23.
Gallagher-ThompsonD.TzuangM.HintonL.AlvarezP.RengifoJ.ValverdeI.ChenN.EmraniT.ThompsonL. W. (2015). Effectiveness of a fotonovela for reducing depression and stress in Latino dementia family caregivers. Alzheimer Disease and Associated Disorders, 29(2), 146.
24.
GeorgeD.MalleryP. (2019). IBM SPSS statistics 26 step by step: A simple guide and reference. Routledge.
25.
GonzálezP.NuñezA.MerzE.BrintzC.WeitzmanO.NavasE. L.CamachoA.BuelnaC.PenedoF. J.Wassertheil-SmollerS. (2017). Measurement properties of the Center for Epidemiologic Studies Depression Scale (CES-D 10): Findings from HCHS/SOL. Psychological Assessment, 29(4), 372.
26.
HambletonR. K. (2001). The next generation of the ITC test translation and adaptation guidelines. European Journal of Psychological Assessment, 17(3), 164.
27.
HigginsonI. J.GaoW.JacksonD.MurrayJ.HardingR. (2010). Short-form Zarit Caregiver Burden Interviews were valid in advanced conditions. Journal of Clinical Epidemiology, 63(5), 535–542.
28.
HilgemanM. M.DurkinD. W.SunF.DeCosterJ.AllenR. S.Gallagher-ThompsonD.BurgioL. D. (2009). Testing a theoretical model of the stress process in Alzheimer’s caregivers with race as a moderator. The Gerontologist, 49(2), 248–261.
29.
HintonL.TranD.PeakK.MeyerO. L.QuiñonesA. R. (2024). Mapping racial and ethnic healthcare disparities for persons living with dementia: A scoping review. Alzheimer’s & Dementia, 20(4), 3000–3020.
30.
HudomietP.HurdM. D.RohwedderS. (2022). Trends in inequalities in the prevalence of dementia in the United States. Proceedings of the National Academy of Sciences of the United States of America, 119(46), Article e2212205119.
31.
HurdM. D.MartorellP.DelavandeA.MullenK. J.LangaK. M. (2013). Monetary costs of dementia in the United States. New England Journal of Medicine, 368(14), 1326–1334.
32.
IBM Corp. (2023). Released 2023. IBM SPSS Statistics for Windows, Version 29.0.
33.
KauferD. I.CummingsJ. L.KetchelP.SmithV.MacMillanA.ShelleyT.LopezO. L.DeKoskyS. T. (2000). Validation of the NPI-Q, a brief clinical form of the Neuropsychiatric Inventory. The Journal of Neuropsychiatry and Clinical Neurosciences, 12(2), 233–239.
34.
KršíkováT.ZeleníkováR. (2018). Association between burden and depression in caregivers of dementia patients. Central European Journal of Nursing and Midwifery, 9(3), 866.
35.
LinP. J.EmersonJ.FaulJ. D.CohenJ. T.NeumannP. J.FillitH. M.DalyA. T.MargaretosN.FreundK. M. (2020). Racial and ethnic differences in knowledge about one’s dementia status. Journal of the American Geriatrics Society, 68(8), 1763–1770. https://doi.org/10.1111/jgs.16442
36.
LogsdonR. G.GibbonsL. E.McCurryS. M.TeriL. (2002). Assessing quality of life in older adults with cognitive impairment. Psychosomatic Medicine, 64(3), 510–519.
37.
MachinD.CampbellM. J.TanS. B.TanS. H. (2011). Sample size tables for clinical studies. John Wiley & Sons.
38.
MarinG.GambaR. J.MarinB. V. (1992). Extreme response style and acquiescence among Hispanics: The role of acculturation and education. Journal of Cross-Cultural Psychology, 23(4), 498–509.
39.
MartinezI. L.Acosta GonzalezE. (2022). Care v. caring: Obligation, duty, and love among Latino Alzheimer’s family caregivers. Journal of Applied Gerontology, 41(7), 1744–1751. https://doi.org/10.1177/07334648221084998
MoinesterM.GottfriedR. (2014). Sample size estimation for correlations with pre-specified confidence interval. The Quantitative Methods for Psychology, 10(2), 124–130.
42.
MukakaM. M. (2012). Statistics corner: A guide to appropriate use of correlation coefficient in medical research. Malawi Medical Journal, 24(3), 69–71.
43.
MutranE. J.ReedP. S.SudhaS. (2001). Social support: Clarifying the construct with applications for minority populations. Journal of Mental Health and Aging, 7(1), 67–78.
44.
PearlinL. I.MullanJ. T.SempleS. J.SkaffM. M. (1990). Caregiving and the stress process: An overview of concepts and their measures. The Gerontologist, 30(5), 583–594.
45.
PeralesJ.CoscoT. D.StephanB. C.HaroJ. M.BrayneC. (2013). Health-related quality-of-life instruments for Alzheimer’s disease and mixed dementia [Research Support, Non-U S Gov’t Review]. International Psychogeriatrics, 25(5), 691–706.
46.
Perales-PuchaltJ.Acosta-RullanM.Ramirez-MantillaM.Espinoza-KissellP.VidoniE.NiedensM.EllerbeckE. F.HintonL.LoeraL.RamirezS.LaraE.WattsA.WilliamsK.ResendezJ.BurnsJ. (2021). Development of CuidaTEXT: A text message intervention to support Latino dementia family caregivers. medRxiv, 2021.2012.2006.21267369. https://doi.org/10.1101/2021.12.06.21267369
47.
Perales-PuchaltJ.Ramírez-MantillaM.Fracachán-CabreraM.VidoniE. D.EllerbeckE. F.RamírezA. S.WattsA.WilliamsK.BurnsJ. (2024). A text message intervention to support latino dementia family caregivers (CuidaTEXT): Feasibility study. Clinical Gerontologist, 47(1), 50–65 . https://doi.org/10.1080/07317115.2022.2137449
48.
PrinceM.FerriC. P.AcostaD.AlbaneseE.ArizagaR.DeweyM.GavrilovaS. I.GuerraM.HuangY.JacobK. (2007). The protocols for the 10/66 dementia research group population-based research programme. BMC Public Health, 7(1), 165.
49.
RadloffL. S. (1977). The CES-D scale: A self-report depression scale for research in the general population. Applied Psychological Measurement, 1(3), 385–401.
50.
RamírezM.FordM. E.StewartA. L.TeresiJ. A. (2005). Measurement issues in health disparities research. Health Services Research, 40(5p2), 1640–1657.
51.
Rosas-CarrascoÓ.Torres-ArreolaL.Guerra-SillaM.Torres-CastroS.Gutiérrez-RobledoL. M. (2010). Validación de la escala Quality of Life in Alzheimer’s Disease (QOL-AD) en pacientes mexicanos con demencia tipo Alzheimer, vascular y mixta. Revista de Neurologia, 51(2), 72–80.
52.
SallimA. B.SayampanathanA. A.CuttilanA.HoR. C.-M. (2015). Prevalence of mental health disorders among caregivers of patients with Alzheimer disease. Journal of the American Medical Directors Association, 16(12), 1034–1041.
53.
ScharlachA. E.GiuntaN.ChowJ. C.-C.LehningA. (2008). Racial and ethnic variations in caregiver service use. Journal of Aging and Health, 20(3), 326–346. https://doi.org/10.1177/0898264308315426
54.
ShawA. R.Perales-PuchaltJ.JohnsonE.Espinoza-KissellP.Acosta-RullanM.FrederickS.LewisA.ChangH.MahnkenJ.VidoniE. D. (2022). Representation of racial and ethnic minority populations in dementia prevention trials: A systematic review. The Journal of Prevention of Alzheimer’s Disease, 9(1), 113–118.
55.
SheikhJ.YesavageJ.BrinkT. (1986). Recent evidence and development of a shorter version. In BrinkT. L. (Ed.), Clinical gerontology: A guide to assessment and intervention (pp. 165–173). The Haworth Press.
56.
US Census Bureau. (2023). 2019: ACD 1-year estimates subject tables: Language spoken at home.
YesavageJ. A.BrinkT. L.RoseT. L.LumO.HuangV.AdeyM.LeirerV. O. (1982). Development and validation of a geriatric depression screening scale: A preliminary report. Journal of Psychiatric Research, 17(1), 37–49.
61.
YuJ.YapP.LiewT. M. (2019). The optimal short version of the Zarit Burden Interview for dementia caregivers: Diagnostic utility and externally validated cutoffs. Aging & Mental Health, 23(6), 706–710.
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