An Evaluation of Dementia Dialogues ® : A Program for Informal and Formal Caregivers in North and South Carolina

Abstract

In 2019, the University of South Carolina’s Office for the Study of Aging (OSA) remodeled the curriculum for the nationally registered Dementia Dialogues^® program that delivers high-quality education to formal and informal caregivers of persons who exhibit signs and symptoms of Alzheimer’s disease and related dementias (ADRD). This study evaluated new knowledge acquired and program satisfaction by North and South Carolina program participants (N = 235) after completing updated modules. Pre/post module survey data were analyzed using means and percentiles, McNemar’s test, and paired t tests. Results demonstrated significant positive increases in caregiver knowledge attainment, with differences in overall knowledge change in specific modules among caregivers and noncaregivers (p < .0001–<.05). Dementia Dialogues^® may serve as a useful tool in providing important information that increases caregiver knowledge of persons living with ADRD. Further research is recommended to examine how knowledge improvement translates into caregiving practices.

Keywords

Alzheimer’s disease dementia caregiver training health promotion

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References

Alzheimer’s Association. (2020a). Curriculum Review and essentiALZ. https://www.alz.org/professionals/professional-providers/dementia-care-training-certification

Alzheimer’s Association. (2020b). 2020 Alzheimer’s disease facts and figures. https://alz.org/alzheimers-dementia/facts-figures

Annear

M. J.

Toye

C. M.

Eccleston

C. E.

McInerney

F. J.

Elliott

K. E. J.

Tranter

B. K.

. . . Robinson

A. L.

(2015). Dementia knowledge assessment scale: Development and preliminary psychometric properties. Journal of the American Geriatrics Society, 63(11), 2375–2381.

Annear

M. J.

Toye

C. M.

Elliott

K. J.

McInerney

Eccleston

Robinson

(2017). Dementia knowledge assessment scale (DKAS): Confirmatory factor analysis and comparative subscale scores among an international cohort. BMC Geriatrics, 17(1), Article 168. https://doi.org/10.1186/s12877-017-0552-y

Biello

Tomolo

Abraham

Escoffery

Lang

Sawyer

Thompson

(2019). A qualitative evaluation of caregiver support services offered at the Atlanta veterans affairs health care system. Preventing Chronic Disease, 16. https://doi.org/10.5888/pcd16.180156

Carpenter

B. D.

Balsis

Otilingam

P. G.

Hanson

P. K.

Gatz

(2009). The Alzheimer’s Disease Knowledge Scale: Development and psychometric properties. The Gerontologist, 49(2), 236–247. https://doi.org/10/1093.geront/gnp023

Cloyes

K. G.

Carpenter

J. G.

Berry

P. H.

Reblin

Clayton

Ellington

(2014). A True Human Interaction”: Comparison of family caregiver and hospice nurse perspectives on needs of family hospice caregivers. Journal of Hospice & Palliative Nursing, 16(5), 282–290. https://doi.org/10.1097/NJH.0000000000000066

Dieckmann

Zarit

S. H.

Zarit

J. M.

Gatz

(1988). The Alzheimer’s disease knowledge test. The Gerontologist, 28(3), 402–407. https://doi.org/10.1093/geront/28.3.402

Fauth

E. B.

Jackson

M. A.

Walberg

D. K.

Lee

N. E.

Easom

L. R.

Alston

Ramos

Felten

LaRue

Mittelman

(2019). External validity of the New York University caregiver intervention: Key caregiver outcomes across multiple demonstration projects. Journal of Applied Gerontology, 38(9), 1253–1281. https://doi.org/10.1177/0733464817714564

10.

Gaugler

J. E.

Hobday

J. V.

Robbins

J. C.

Barclay

M. P.

(2016). Direct care worker training to respond to the behavior of individuals with dementia. Gerontology and Geriatric Medicine, 2. https://doi.org/10.1177/2333721415626888

11.

Given

Sherwood

P. R.

Given

C. W.

(2008). What knowledge and skills do caregivers need? American Journal of Nursing, 108(Suppl.), 28–34. https://doi.org/10.1097/01.naj.0000336408.52872.d2

12.

Guest

M. A.

Miller

M. C.

Smith

M. P.

Hyleman

(2018). Office for the Study of Aging at the University of South Carolina: Promoting healthy aging through program development, evaluation, education/training, and research for South Carolina’s older adults. Journal of Applied Gerontology, 37(3), 332–348. https://doi.org/10.1177/0733464816643878

13.

International Council of Certified Dementia Practitioners. (2020). Certified Dementia Practitioner^® Certification. https://www.nccdp.org/cdp.htm

14.

Jensen

Agbata

I. N.

Canavan

McCarthy

(2014). Effectiveness of educational interventions for informal caregivers of individuals with dementia residing in the community: Systematic review and meta-analysis of randomised controlled trials. International Journal of Geriatric Psychiatry, 30(2), 130–143. https://doi.org/10.1002/gps.4208

15.

Kovaleva

Blevins

Griffiths

P. C.

Hepburn

(2019). An online program for caregivers of persons living with dementia: Lessons learned. Journal of Applied Gerontology, 38(2), 159–182. https://doi.org/10.1177/0733464817705958

16.

Lorig

Ritter

P. L.

Laurent

D. D.

Yank

(2019). Building better caregivers: A pragmatic 12-month trial of a community-based workshop for caregivers of cognitively impaired adults. Journal of Applied Gerontology, 38(9), 1228–1252. https://doi.org/10.1177/0733464817741682

17.

Northouse

Williams

A.-l.

Given

McCorkle

(2012). Psychosocial care for family caregivers of patients with cancer. Journal of Clinical Oncology, 30(11), 1227–1234. https://doi.org/10.1200/jco.2011.39.5798

18.

Off

C. A.

Griffin

J. R.

Murray

K. W.

Milman

(2019). Interprofessional caregiver education, training, and wellness in the context of a cohort model for aphasia rehabilitation. Topics in Language Disorders Journal, 39(1), 5–28. https://doi.org/10.1097/TLD.0000000000000171

19.

Pailler

M. E.

Johnson

T. M.

Zevon

M. A.

Kuszczak

Griffiths

Thompson

Wang

E. S.

Wetzler

M. W.

(2015). Acceptability, feasibility, and efficacy of a supportive group intervention for caregivers of newly diagnosed leukemia patients. Journal of Psychosocial Oncology, 3(2), 163–177.

20.

Piggott

C. A.

Zimmerman

Reed

Sloane

P. D.

(2017). Development and testing of a measure of caregiver confidence in medical sign/symptom management. American Journal of Alzheimer’s Disease and Other Dementias, 32(7), 373–381. https://doi.org/10.1177/1533317517711247

21.

Pleasant

M. L.

Molinari

Hobday

J. V.

Fazio

Cullen

Hyer

(2016). An evaluation of the CARES^® Dementia Basics Program among caregivers. International Psychogeriatrics, 29(1), 45–56. https://doi.org/10.1017/s1041610216001526

22.

Reinhard

S. C.

Feinberg

L. F.

Houser

Choula

Evans

(2019, November 14). Valuing the invaluable 2019 update: Charting a path forward. AARP Public Policy Institute, 1–32. https://doi.org/10.26419/ppi.00082.001

23.

Resciniti

N. V.

Tang

Tabassum

Pearson

J. L.

Spencer

S. M.

Lohman

M. C.

Friedman

D. B.

(2020). Knowledge evaluation instruments for dementia caregiver education programs: A scoping review. Geriatrics & Gerontology International, 20(5), 397–413. https://doi.org/10.1111/ggi.13901

24.

Schulz

Beach

S. R.

Friedman

E. M.

Martsolf

G. R.

Rodakowski

Jamesill

A. E.

(2018). Changing structures and processes to support family caregivers of seriously Ill patients. Journal of Palliative Medicine, 20(Suppl. 2), 36–42. https://doi.org/10.1089/jpm.2017.0437

25.

Schulz

Burgio

Burns

Eisdorfer

Gallagher-Thompson

Gitlin

L. N.

Mahoney

D. F.

(2003). Resources for Enhancing Alzheimer’s Caregiver Health (REACH): Overview, site-specific outcomes, and future directions. The Gerontologist, 43(4), 514–520.

26.

Sherman

C. W.

Steiner

S. C.

(2018). Implementing sustainable evidence-based interventions in the community: A fidelity-focused training framework for the savvy caregiver program. Journal of Applied Gerontology, 37(12), 1450–1471. https://doi.org/10.1177/0733464816684623

27.

Sörensen

Pinquart

Duberstein

(2002). How effective are interventions with caregivers? An updated meta-analysis. The Gerontologist, 42(3), 356–372. https://doi.org/10.1093/geront/42.3.356

28.

Stajduhar

K. I.

Funk

Outcalt

(2013). Family caregiver learning—How family caregivers learn to provide care at the end of life: A qualitative secondary analysis of four datasets. Palliative Medicine, 27(7), 657–664. https://doi.org/10.1177/0269216313487765

29.

Thomas

Dalton

Harden

Eastwood

Parker

(2017). Updated meta-review of evidence on support for carers. Health Services and Delivery Research, 5(12), 1–132. https://doi.org/10.3310/hsdr05120

30.

Tomar

Jha

Gale

Huzzey

(2019). Benefits of attending a ‘Dementia First Aid’course for family caregivers of people with early dementia: Findings of a pilot evaluation. British Journal of Medical Practitioners, 12(1), a008.

31.

Toseland

Smith

McClive-Reed

(2011). Evaluating the effectiveness of caregiving education and support programs. In Toseland

R. W.

Haigler

D. H.

Monahan

D. J.

(Eds.), Education, training and support programs for caregivers: Research, practice, and policy (pp. 125–147). Springer Science & Business Media. https://doi.org/10.1007/978-1-4419-8031-1_9

32.

Toye

Lester

Popescu

McInerney

Andrews

Robinson

A. L.

(2013). Dementia Knowledge Assessment Tool Version Two: Development of a tool to inform preparation for care planning and delivery in families and care staff. Dementia, 13(2), 248–256. https://doi.org/10.1177/1471301212471960

33.

U.S. Census. (2018). Population quick facts. https://www.census.gov/quickfacts/fact/table/US#

34.

Zebrak

K. A.

Campione

J. R.

(2020). The Effect of National Family Caregiver Support Program Services on Caregiver Burden. Journal of Applied Gerontology. Advance online publication. https://doi.org/10.1177/0733464819901094