This study was conducted in an Iranian context to explore the co-occupations of mothers of children with cerebral palsy as experienced by them.
Method
This qualitative study was conducted using content analysis methodology. Sixteen mothers of children with cerebral palsy participated in the study. Data was collected via in-depth, semi-structured interviews. Constant comparative analysis was deployed for data analysis.
Results
The results were classified into nine sub-categories and four main categories that were identified as (1) coping with self-care problems, (2) effort to gain treatment follow-up, (3) coping challenges of educational care, and (4) limited parental personal leisure time.
Conclusion
Understanding the challenges of caring for a child with cerebral palsy and the experiences of mothers when engaging in co-occupations with their child, provides a broader perspective of the potential impact on participation and engagement of mothers. However, more research is required to understand the various factors influencing participation and co-occupations and interaction effects between these factors.
AlaeeNMohammadi-ShahboulaghiFKhankehH (2013) Voiceless shout: Parents' experience of caring for child with cerebral palsy (in Persian). Hayat, Journal of School of Nursing and Midwifery19(2): 51–66. .
2.
American Occupational Therapy Association (2008) Occupational therapy practice framework: Domain and process (second edition). American Journal of Occupational Therapy62: 625–683.
3.
ArnerMEliassonACNicklassonS (2008) Hand function in cerebral palsy. Report of 367 children in a population-based longitudinal health care program. The Journal of Hand Surgery33(8): 1337–1347.
4.
BartlettDJChiarelloLAMcCoySW (2010) The move and play study: An example of comprehensive rehabilitation outcomes research. Physical Therapy90(11): 1660–1672.
5.
BrehautJCKohenDRainaP (2004) The health of primary carers of children with cerebral palsy: How does it compare with that of other Canadian caregivers?Pediatrics. 114(2):e182–91.
6.
CansCDe-la-CruzJMermetMA (2008) Epidemiology of cerebral palsy. Paediatrics and Child Health18(9): 393–398.
7.
Case-SmithJ (2005) Occupational Therapy for Children, Philadelphia, PA: Mosby/Elsevier.
8.
ChiarelloLAPalisanoRJMaggsJM (2010) Family priorities for activity and participation of children and youth with cerebral palsy. Physical Therapy90(9): 1254–1264.
9.
ChiovittiRFPiranN (2003) Rigor and grounded theory research. Journal of Advanced Nursing44(4): 427–435.
10.
ColeMBTufanoR (2008) Applied Theories in Occupational Therapy: A Practical Approach, Thorofare, NJ: SLACK Incorporated.
11.
DalvandH (2013) A critique of handling training (care of children with cerebral palsy): Letter to editor (in Persian). Journal of Research in Rehabilitation Sciences8(6): 1–3.
12.
DalvandHRassafianiMHosseiniSA (2013) Handling in the children with cerebral palsy: A review of ideas and practice (in Persian). Journal of Rehabilitation13(5): 8–16.
13.
FreebornDKnaflK (2013) Growing up with cerebral palsy: Perceptions of the influence of family. Child: Care, Health and Development40(5): 671–679.
14.
GraneheimUHLundmanB (2004) Qualitative content analysis in nursing research: Concepts, procedures and measures to achieve trustworthiness. Nurse Education Today24(2): 105–112.
15.
HinojosaJAndersonJ (1991) Mothers' perceptions of home treatment programs for their preschool children with cerebral palsy. American Journal of Occupational Therapy45(3): 273–279.
16.
JaliliNGodarziMRassafianiM (2013) The influenced factors on quality of life of mothers of children with severe cerebral palsy: A survey study (in Persian). Modern Rehabilitation7(3): 40–47.
17.
JoghataeiMMohammadKRahgozarM (2002) Prevalence of some paralysis and limb amputation disabilities in Iran national epidemiological survey (in Persian). Journal of Rehabilitation3(8–9): 7–16.
18.
JohariSRassafianiMFatorechiS (2013) Reviewing the determinant factors of parental satisfaction in occupational therapy home programs (in Persian). Middel Eastern Journal of Disability Studies3(1): 52–61.
19.
JohnsonA (2002) Prevalence and characteristics of children with cerebral palsy in Europe. Developmental Medicine & Child Neurology44(9): 633–640.
20.
KakajoibariAPyramidATHassanzadehS (2008) The realities and perspectives of special education: A comparative study of several developed countries (in Persian). Research on Exceptional Children8(3): 324–341.
21.
KielhofnerG (2009) Conceptual Foundations of Occupational Therapy Practice, 4th editionPhiladelphia, PA: F.A. Davis Co.
22.
LawMDarrahJPollockN (1998) Family-centered functional therapy for children with cerebral palsy: An emerging practice model. Physical & Occupational Therapy in Pediatrics18(1): 83–102.
23.
LawMRosenbaumPKingG (2003) Family-centered service sheets. In: CanChild Centre for Childhood Disability Research (ed.) 18 Educational Materials Designed for Parents, Service Providers, and Organizations, Hamilton, ON: McMaster University.
24.
LawMTeplickyRKingS (2005) Family-centered service: moving ideas into practice. Child: Care, Health & Development31(6): 633–642.
25.
McCannDBullRWinzenbergT (2012) The daily patterns of time use for parents of children with complex needs: A systematic review. Journal of Child Health Care16(1): 26–52.
26.
MillerF (2004) Cerebral Palsy, 1st ed. New York: Springer.
27.
MohamadianFSourtijiHHosseiniSMS (2012) A new approach in rehabilitation of children with cerebral palsy (in Persian). Research in Rehabilitation Sciences7(5): 758–765.
28.
NeuendorfKA (2002) The Content Analysis Guidebook, Thousand Oaks, CA: SAGE.
29.
NobakhtZRassafianiMRezasoltaniP (2013) Influence of child's disability on encountering environmental barriers to participation of children with cerebral palsy (in Persian). Research in Rehabilitation Sciences9(2): 286–294.
30.
NovakICusickALanninN (2009) Occupational therapy home programs for cerebral palsy: Double-blind, randomized, controlled trial. Pediatrics124(4): e606–e614.
31.
OlsenJA (2004) Mothering co-occupations in caring for infants and young children. In: EsdaileSAOlsonJA (eds) Mothering Occupations, Philadelphia, PA: F.A. Davis Co.
32.
OstensjoSOienIFallangB (2008) Goal-oriented rehabilitation of preschoolers with cerebral palsy: A multi-case study of combined use of the Canadian Occupational Performance Measure (COPM) and the Goal Attainment Scaling (GAS). Developmental Neurorehabilitation11(4): 252–259.
33.
PedrettiLW (2006) Occupational Therapy Practice Skills for Physical Dysfunction, Philadelphia, PA: Mosby/Elsevier.
34.
PickensNDBarnekowKP (2009) Co-occupation: Extending the dialogue. Journal of Occupational Science16(3): 151–156.
35.
PierceD (2003) Occupation by Design: Building Therapeutic Power, Philadelphia: PA: F.A. Davis Co.
36.
PierceD (2009) Co-occupation: The challenges of defining concepts original to occupational science. Journal of Occupational Science16(3): 203–207.
37.
PolitDFBeckCT (2008) Nursing Research: Generating and Assessing Evidence for Nursing Practice, Philadelphia, PA: Lippincott Williams & Wilkins.
38.
RainaPO'DonnellMRosenbaumP (2005) The health and well-being of caregivers of children with cerebral palsy. Pediatrics115(6): e626–e636.
39.
RassafianiMKahjooghMAHosseiniA (2012) Time use in mothers of children with cerebral palsy: A comparison study. Hong Kong Journal of Occupational Therapy22(2): 70–74.
40.
Razavi AfzalZRassafianiMSarfarazZ (2013) A survey on caregivers' knowledge about special caring for 1-to-5 year-old children with cerebral palsy and their compliance with these practices (in Persian). Research in Rehabilitation Sciences9(4): 1–11.
41.
ReddihoughDSCollinsKJ (2003) The epidemiology and causes of cerebral palsy. The Australian Journal of Physiotherapy49(1): 7–12.
42.
Righetti-VeltemaMConne-PerreardEBousquetA (2002) Postpartum depression and mother–infant relationship at 3 months old. Journal of Affective Disorders70: 291–306.
43.
RodgerSZivianiJ (2006) Occupational Therapy with Children: Understanding Children's Occupations and Enabling Participation, Victoria, Australia: Blackwell Publishing Ltd.
44.
SawyerMBittmanMLa GrecaAM (2011) Time demands of caring for children with cerebral palsy: What are the implications for maternal mental health?Developmental Medicine & Child Neurology53(4): 338–343.
45.
Sayf NaraghiMFarighiS (2013) The analysis of interaction among parents, teachers, regular students and slow learners and its correlation with the academic drop of slow learners in regular schools (in Persian). Exceptional Education5(118): 14–23.
46.
SmitsDWVerschurenOKetelaarM (2010) Introducing the concept of learning styles to rehabilitation. Journal of Rehabilitation Medicine42(7): 697–699.
47.
Statistical Center of Iran (2011) Selected findings of the 2011 Population and housing census. Available at: http://www.amar.org.ir/Default.aspx?tabid=1739; Internet; accessed 8 July 2011.
48.
World Health Organization (2001) International Classification of Functioning, Disability and Health (ICF). Available at: www.who.int/icidh/index.html (accessed 13 February 2014).
49.
Yeargin-AllsoppMVan BraunKDoernbergN (2008) Prevalence of cerebral palsy in 8-year-old children in three areas of the United States in 2002: A multisite collaboration. Pediatrics121(3): 547–554.
50.
ZemkeRClarkF (1996) Occupational Science: An Evolving Discipline, Philadelphia, PA: F.A. Davis Co.
