This research aims to build a substantive theory about the dynamics of family harmony in families with children with ASD. Data were collected through in-depth interviews with 23 participants (9 families) and analysed using the constant comparison method. The results showed that the dynamics of family harmony went through five phases: crisis, ambivalence, evaluation, adaptation, and harmony. Factors that support harmony include the condition of the child with ASD, the effectiveness of therapy, social support, flexible personality, adaptability, and confidence in parenting a child with ASD. The study also found a change in meaning in several aspects compared to the strong family theory, such as commitment, social support, acceptance of the child’s condition, spirituality, communication patterns, role-sharing and cooperation, and emotional closeness. Theoretically, this study updates and complements the theory of family harmony.
AdiW. M.LestariM. D. (2019). Gambaran komitmen dalam pernikahan pasangan remaja yang mengalami KTD (pp. 35–45). Jurnal Psikologi Udayana.
2.
AdrianaD. (2014). Tumbuh kembang dan terapi pada anak. Salemba Medika.
3.
AkamatsuT. J.StephensM. A. P.StevanE.CrowtherJ. H. (2005). Family health psychology. Hemisphere Publishing Corporation.
4.
American Psychiatric Association. (2013). Diagnostic and statistical manual of mental disorders. Arlington.
5.
AndersonA.SabatelliR. M. (2011). Family interaction. Allyn & Bacon.
6.
AndianiA.FauziahN. (2016). Hubungan antara adversity intelligence dengan keterbukaan diri pada ibu yang memiliki anak autisme di kota Surakarta. Jurnal Empati, 5(4), 615–622. https://doi.org/10.14710/empati.2016.15407
7.
BakerE.JesteS. S. (2015). Diagnosis and management of autism spectrum disorder in the era of genomics: Rare disorders can pave the way for targeted treatments. Pediatric Clinics of North America, 62(3), 607–618. https://doi.org/10.1016/j.pcl.2015.03.003
8.
ChanK. K. S.LamC. B.LawN. C. W.CheungR. Y. M. (2018). From child autistic symptoms to parental affective symptoms: A family process model. Research in Developmental Disabilities, 75, 22–31. https://doi.org/10.1016/j.ridd.2018.02.005
9.
ChanC. S.ViswanathK.AuD. W.MaC. M. S.LamW. W. T.FieldingR.LamT. H., et al. (2011). Hong Kong Chinese community leaders’ perspectives on family health, happiness and harmony: a qualitative study. Health Education Research, 26(4), 664–674. https://doi.org/10.1093/her/cyr026
10.
ChuangY. C. (2005). Effects of interaction pattern on family harmony and well-being: Test of interpersonal theory, relational-models theory, and Confucian ethics. Asian Journal of Social Psychology, 8(3), 272–291. https://doi.org/10.1111/j.1467-839x.2005.00174.x
11.
ClotteyE. N.ScottA. J.AlfonsoM. L. (2015). Grandparent care among rural African Americans ina community in the south American: Challenges to health and wellbeing. The International Electronic Journal of Rural and Remote Health Research, Education Practice and Policy, 15(3313), 1–11.
12.
CohenB. S.BoltonP. (1993). Autism: The facts. Oxford University Press.
13.
ColemanP. K.KarrakerK. H. (2000). Parenting self-efficacy among mothers of school-age children: Conceptualization, measurement, and correlates. Family Relations, 49(2), 13–24. https://doi.org/10.1111/j.1741-3729.2000.000ss13.x
14.
ColemanP. K.KarrakerK. H. (2003). Maternal self-efficacy beliefs, competence in parenting and toddlers behaviour and developmental status. Infant Mental Health Journal, 24(2), 126–148. https://doi.org/10.1002/imhj.10048
15.
CreswellJ. W. (2006). Qualitative inquiry and research design: Choosing among five approaches. Sage Publications.
16.
DefrainJ.Stinnett. (2003). Family strength in. In PonzettiJ. J. (Ed.), International encyclopedia of marriage and family. The Gale Group Inc.
17.
DehghaniF. (2018). Type D personality and life satisfaction: The mediating role of social support. Personality and Individual Differences, 134, 75–80. https://doi.org/10.1016/j.paid.2018.06.005
18.
Emzir. (2010). Metodologi penelitian pendidikan:kuantitatif dan kualitatif. Rajawali Pers.
19.
FauziahN. (2020). The concept of family’s harmony in multiple cultural settings, what about the family harmony with autism children in Indonesia? A literature study. The Family Journal: Counseling and Therapy for Couples and Families (ed 1-6), 28(4): Article 106648072090402.
20.
FauziahN.HendrianiW.SuminarD. R.NurdibyanandaruD.HartiniN. (2021). Increasing, stable, or decreasing? The dynamics of family harmony involving children with autism spectrum disorder: A qualitative research. The Family Journal: Counseling and Therapy for Couples and Families (ed 1-6).
21.
FennelP. (2003). Managing chronic illness: Using four phase treatment approach. Wiley.
22.
FiskeA. P. (1992). The four elementary forms of socieity: Framework for a unified theory of social relations. Psychological Review, 99(4), 689–723. https://doi.org/10.1037/0033-295x.99.4.689
23.
FlippinM. (2024). Communication breakdowns and repairs of children with autism spectrum disorder with fathers and mothers. International Journal of Disability, Development and Education, 71(4), 518–534. https://doi.org/10.1080/1034912x.2022.2146069
24.
FryeL. (2015). Fathers' experience with autism spectrum disorder:nursing implications. Journal of Pediatric Health Care: Official Publication of National Association of Pediatric Nurse Associates & Practitioners, 30(5), 453–463. https://doi.org/10.1016/j.pedhc.2015.10.012
25.
GrayD. E. (2006). Coping over time: The parents of children with autism. Journal of intellectual disability research: Journal of Intellectual Disability Research, 50(12), 970–976. https://doi.org/10.1111/j.1365-2788.2006.00933.x
26.
GreenV. A. (2007). Parental experience with treatments for autism. Journal of Developmental and Physical Disabilities, 19(2), 91–101. https://doi.org/10.1007/s10882-007-9035-y
27.
HaaseJ. E.BrittT.CowardD. D.LeidyN. K.PennP. E. (1992). Simultaneous concept analysis of spiritual perspective, hope, acceptance and self-transcendence. Image-the journal of nursing scholarship, 24(2), 141–147. https://doi.org/10.1111/j.1547-5069.1992.tb00239.x
28.
HadisA. (2006). Psikologi dalam pendidikan. CV Alfabeta.
29.
HapsariR. D.PutriA. M.FitrianiD. (2019). Hubungan antara dukungan sosial dengan tingkat stres orang tua dengan anak penderita autisme. PSYCHE: Jurnal Psikologi, 1(2), 74–84. https://doi.org/10.36269/psyche.v1i2.101
30.
HardiN. F.SariF. P. (2019). Parenting stress pada ibu yang memiliki anak autis. HISBAH: Jurnal Bimbingan Konseling dan Dakwah Islam, 16(1), 21–36.
HartleyS. L.BarkerE. T.SeltzerM. M.FloydF.GreenbergJ.OrsmondG.BoltD. (2010). The relative risk and timing of divorce in families of children with an autism spectrum disorder. Journal of Family Psychology: JFP: journal of the Division of Family Psychology of the American Psychological Association (Division 43), 24(4), 449–457. https://doi.org/10.1037/a0019847
33.
HastingsR. (2016). Do children with intellectual and developmental disabilities have a negative impact on other family members? The case for rejecting a negative narrative. International review of research in developmental disabilities, 50, 165–194. https://doi.org/10.1016/bs.irrdd.2016.05.002
34.
HastingsR. P.TauntH. M. (2002). Positive perceptions in families of children with developmental disabilities. American journal of mental retardation: American Journal of Mental Retardation, 107(2), 116–127. https://doi.org/10.1352/0895-8017(2002)107<0116:PPIFOC>2.0.CO;2
35.
HendrianiW. (2013). Proses resiliensi individu terhadap perubahan kondisi fisik menjadi penyandang disabilitas (grounded theory pada penyandang tuna daksa). Disertasi. Universitas Airlangga.
36.
HerawatiN.SetyaningsihHerlambangS. M. (2014). Peran dukungan keluarga dan keharmonisan perkawinan orangtua dalam pendidikan spiritual anak.
37.
HidayahR.YusufA.FitryasariR. (2017). Studi Fenemonolegi: Strategi Koping Orang Tua Dalam Merawat Anak Autism Spectrum Disorder (Asd). Jurnal Keperawatan, 8(2), 165–176. https://doi.org/10.22219/jk.v8i220Juli.4332
38.
HoogsteenL.WoodgateR. L. (2013). Centering autism within the family: A qualitative approach to autism and the family. Journal of Pediatric Nursing, 28(2), 135–140. https://doi.org/10.1016/j.pedn.2012.06.002
39.
JohnsonM. T.WilliamsonR. L.CaseyL. B.StocktonM.ElswickS. (2020). Sibling relationship when one sibling has asd: A preliminary investigation to inform the field and strengthen the bond. Children and Youth Services Review, 116, 1–5. https://doi.org/10.1016/j.childyouth.2020.105190
40.
KalaloR. T.YuniarS.AriyantoF. C. (2021). Effect of parental skills-based psychoeducation intervention on parental stress index and severity of children with autism spectrum disorders: A pilot study. Annals of Medicine and Surgery, 70, 102873. https://doi.org/10.1016/j.amsu.2021.102873
41.
KausarS.JevneR. F.SobseyD. (2003). Hope in families of children with developmental disabilities. Journal on Developmental Disabilities, 10(1), 35–46.
42.
KavikondalaS.StewartS. M.NiM. Y.ChanB. H. ,LeeP. H.LiK. K.McDowellI.JohnstonJ. M.ChanS. S.LamT. H.LamW. W.FieldingR.LeungG. M. (2016). Structure and validity of family harmony scale: An instrument for measuring harmony. Psychological Assessment, 28(3), 307–318. https://doi.org/10.1037/pas0000131
43.
KimD. H.ImY. J. (2015). The influence of family management style on psychosocial problems of childhood cancer survivors in Korea. European Journal of Oncology Nursing: The Official Journal of European Oncology Nursing Society, 19(2), 107–112. https://doi.org/10.1016/j.ejon.2014.10.010
44.
KingL. A.HicksJ. A.KrullJ. L.Del GaisoA. K. (2006). Positive affect and the experience of meaning in life. Journal of Personality and Social Psychology, 90(1), 179–196. https://doi.org/10.1037/0022-3514.90.1.179
45.
Kustini. (2011). Keluarga harmoni dalam persektif berbagai komunitas agama. Kementerian Agama Republik.
46.
KwokS. Y. C. L.LevedaC.DanielF. K. W. (2015). Family emotional support, positive psychological capital and job satisfaction among Chinese white-collar workers. Journal of Happiness Studies, 16(3), 561–582. https://doi.org/10.1007/s10902-014-9522-7
47.
LamW. W. T.FieldingR.McDowellI.JohnstonJ.ChanS.LeungG. M.LamT. H. (2012). Perspectives on family health, happiness and harmony (3H) among Hong Kong Chinese people: A qualitative study. Health Education Research, 27(5), 767–779. https://doi.org/10.1093/her/cys087
48.
LatifahZ. (2019). Hubungan komitmen perkawinan dengan keharmonisan keluarga pada pasangan calon tki di kabupaten cilacap. Skripsi.
49.
LiuW. Y. (2019). The relationship between parental stress and family life quality in autistic children: The mediating role of parental efficacy and social support. East China Normal University. Master Dissertation.
50.
LopezK.ReedJ.MaganaS. (2019). Associations among family burden, optimism, services received and unmet need within families of children with ASD. Children and Youth Services Review, 98, 105–112. https://doi.org/10.1016/j.childyouth.2018.12.027
MillsJ. (2001). Being bilingual: Perspectives of third generation Asian children on language, culture and identity. International Journal of Bilingual Education and Bilingualism, 4(6), 383–402. https://doi.org/10.1080/13670050108667739
53.
MoosR. J.MoosB. S. (1981). Family environment scale : Paolo Alto. CA: Consulting psychologists. Press.
OekermanR. (2001). Children with special needs: Helping parents through the grief.Texas Child Care, 25(1), 10–13. https://eric.ed.gov/?id=EJ635679.
57.
PostonD. J.TurnbullA. P. (2004). Role of spirituality and religion in family quality of life for families of children with disabilities. Education and Training in Developmental Disabilities, 39(2), 95–108.
58.
PottasS. (2009). An exploratory study of family harmony in family businesses. Mini-dissertation. Business administration. The North-West University, Potchesfstroom Campus.
59.
PradanaA. P.KustantiE. R. (2017). Hubungan antara dukungan sosial suami dengan psychological well-being pada ibu yang memiliki anak autisme. Jurnal EMPATI, 6(2), 83–90. https://doi.org/10.14710/empati.2017.19734
RachmayantiS.ZulkaidaA. (2007). Penerimaan diri orangtua terhadap anak autisme dan peranannya dalam terapi autisme. Jurnal Psikologi, 1(1), 7–17.
62.
RameletA.FonjallazB.RioL.ZoniL.BallabeniP.RapinJ.GueniatC.HoferM. (2017). Impact of a nurse led telephone intervention on satisfaction and health outcomes of children with inflammatory rheumatic diseases and their families: a crossover randomized clinical trial. BMC Pediatri, 17(1), 168–178. https://doi.org/10.1186/s12887-017-0926-5
63.
SagitaR. F.SuryawanA.AnisW. (2021). Karakteristik penerimaan orang tua dalam menghadapi diagnosis autisme anak. Indonesian Midwifery and Health Sciences Journal, 5(2), 186–197. https://doi.org/10.20473/imhsj.v5i2.2021.186-197
64.
SaldanaJ. (2009). The coding manual for qualitative researchers. Sage Publictions.
65.
SansomL. (2010). Confident parenting-A book proposal. University of Pennsylvania.
66.
SchlebuschL.SamuelsA. E.DadaS. (2016). South African families raising children with autism spectrum disorders: relationship between family routines, cognitive appraisal and family quality of life. Journal of Intellectual Disability Research, 60, 412–423. https://doi.org/10.1111/jir.12292
67.
SchneidersA. A. (1964). Personal adjusment and mental health. Holt, Rineharr and Winston.
ShiversC. M. (2019). Self-reported guilt among adult siblings of people with intellectual and developmental disabilities. American Journal on Intellectual and Developmental Disabilities, 124(5), 470–477. https://doi.org/10.1352/1944-7558-124.5.470
70.
SmortiM.TschiesnerR.FarnetiA. (2012). Grandparents-grand relationship relationship. Procedia - Social and Behavioral Sciences, 46, 895–898. https://doi.org/10.1016/j.sbspro.2012.05.219
71.
SommerD.Pramling SamuelssonI.HundeideK. (2013). Early childhood care and education: A child perspective paradigm. European Early Childhood Education Research Journal, 21(4), 459–475. https://doi.org/10.1080/1350293x.2013.845436
72.
StoltzP. (2000). Adversity quotient turning obstacles into opportunities mengubah hambatan menjadi peluang. Grasindo.
73.
StraussA.CorbinJ. (1998). Basics of qualitative research: Techniques and procedures for developing grounded theory (2nd ed.). Sage.
74.
SuheriT. (2008). Peran keluarga dan lingkungan dalam memberdayakan anak berkebutuhan khusus. Makalah.
75.
SuryabrataS. (2008) Psikologi pendidikan (5th ed., Vol 16). Raja Grafindo Persada.
76.
TaylorJ. L.HodappR. M.BurkeM. M.Waitz-KudlaS. N.RabideauC. (2017). Training parents of youth with autism spectrum disorder to advocate for adult disability services: Results from a pilot randomized controlled trial. Journal of Autism and Developmental Disorders, 47(3), 846–857. https://doi.org/10.1007/s10803-016-2994-z
77.
YaniI. (2018). Harmonisasi keluarga pasangan suami istri yang tidak memiliki keturunan di desa Bangun Jaya Kecamatan Tambusai utara Kabupaten Rokan Hulu. Jom Fisip, 1(5), 1–14.
78.
YuwenW.LewisF. M.WalkerA. J.WardT. M. (2017). Struggling in the dark to help my child: Parents’ experience in caring for a young child with juvenile idiopathic arthritis. Journal of Pediatric Nursing, 37, e23–e29. https://doi.org/10.1016/j.pedn.2017.07.007
79.
ZembatR.YıldızD. (2010). A comparison of acceptance and hopelessness levels of disabled preschool children's mothers. Procedia-Social and Behavioral Sciences, 2(2), 1457–1461.
