The purpose of the present study was to identify informational needs of parents with children hospitalized with gastroenteritis or RSV infection in an isolation unit, and compare it with received information. A consecutive sample of parents of children discharged from the paediatric unit, answered a questionnaire one week after discharge. Answers were structured in 4 categories of parental information needs: general, medical, partnership and discharge information. The parents needed and were given a lot of general and medical information, but there were some shortcomings. The parents were not given adequate information about their partnership with the nurses or about the hospital discharge. On nearly half of the information items there was no significant correlation between information needed and information received. The present study contributes to the understanding of informational needs of parents whose children have been hospitalized in an isolation unit. The findings can be used to build information systems to support parents, nurses and physicians and to provide individualized information.
SchafferPVaughnGKennerCDonohueFLongoA. Revision of a parent satisfaction survey based on the parent perspective. J Pediatr Nurs2000 Dec;15(6): 373–7.
2.
Kristensson-HallstromI. Strategies for feeling secure influence parents' participation in care. J Clin Nurs1999 Sep;8(5): 586–92.
3.
MelnykBM. Parental coping with childhood hospitalization: A theoretical framework to guide research and clinical interventions. Matern Child Nurs J1995 Oct;23(4): 123–31.
4.
PricePJ. Parents' perceptions of the meaning of quality nursing care. ANS Adv Nurs Sci1993 Sep;16(1): 33–41.
5.
Rietvan't ABergMHiddemaFSolK. Meeting patients' needs with patient information systems: Potential benefits of qualitative research methods. Int J Med Inf2001 Nov;64(1): 1–14.
6.
FarrellMFFrostC. The most important needs of parents of critically ill children: Parents' perceptions. Intensive Crit Care Nurs1992 Sep;8(3): 130–9.
7.
BakkenS. Barn pa sykehus: Foreldrenes opplevelser og reaksjoner: En studie om hvordan det oppleves a vaere foreldre til et alvorlig sykt barn inn lagt pa sykehus (Hospitalized children: Parents' experiences and reactions: A study of how it is experienced to be a parent of a serious ill hospitalized child). Oslo.: Universitetet i Oslo.; 1996.
8.
BragadottirH. A descriptive study of the extent to which self-perceived needs of parents are met in paediatric units in Iceland. Scand J Caring Sci1999; 13(3): 201–7.
9.
KannehA. The need to communicate. Nurs Stand1990 Oct 24;5(5): 19–21.
10.
RuzickiDA. Realistically meeting the educational needs of hospitalized acute and short-stay patients. Nurs Clin North Am1989 Sep;24(3): 629–37.
11.
CampbellT. Feelings of oncology patients about being nursed in protective isolation as a consequence of cancer chemotherapy treatment. J Adv Nurs1999 Aug;30(2): 439–47.
12.
BeetonS. A role for parents with hospitalised children. Nurs Times1991 Oct 23;87(43): 56–7.
13.
DavisJE. Children in accident and emergency: Parental perceptions of the quality of care. Part I. Accid Emerg Nurs1995 Jan;3(1): 14–8.
14.
Smittevernhandbok for kommunehelsetjenesten2002–2003 (Handbook for protection of infections). Oslo: Folkehelsa; 2001.
15.
EspelandK. «Foreldreopplevelser nar barnet er innlagt pa barneavdelingen»(Parental experiences when a child is hospitalized in the pediatric unit). Oslo: Universitetet i Oslo; 1997.
16.
KristjansdottirG. A study of the needs of parents of hospitalized 2-to 6-year-old children. Issues Compr Pediatr Nurs1991 Jan;14(1): 49–64.
17.
FagermoenMS. Pasientinformasjon — et viktig omrade for utviklingsarbeid og forskning. Norsk tidsskrift for sykepleieforskning (Patient information — an important area of developmental work and research)2002; (4, nr 2): 106–18.
18.
DeccacheAAujoulatI. A European perspective: Common developments, differences and challenges in patient education. Patient Educ Couns2001 Jul;44(1): 7–14.
19.
LeventhalHJohnsonJ. Laboratory and field experimentation: Development of a theory of self-regulation. In: WoolridgePSchmittMSkipperJJLeonardR, editors. Behavioral science and nursing theory. St.Louis: Mosby; 1983. p. 189–262.
20.
KaiJ. Parents' difficulties and information needs in coping with acute illness in preschool children: A qualitative study. BMJ1996 Oct 19;313(7063): 987–90.
21.
ConwayCCulbertEGaleSCouldenMTullochJ. Parents' expectations of the nurse-role negotiation. Nurs Prax N Z1996 Nov;11(3): 32–7.
22.
KawikL. Nurses' and parents' perceptions of participation and partnership in caring for a hospitalized child. Br J Nurs1996 Apr 11;5(7): 430–7.
23.
KeatingeDGilmoreV. Shared care: A partnership between parents and nurses. Aust J Adv Nurs1996 Sep;14(1): 28–36.
24.
MyklebustS. Foreldredeltagelse i neonatalavdelingen: Hvordan samarbeider sykepleiere og foreldre i noeonatalavdelingen? (Parental participation in the neonatal unit: How are nurses and parents cooperating in the neonatal unit?) Oslo: Universitetet i Oslo; 1996.
25.
CoyneIT. Partnership in care: Parents' views of participation in their hospitalized child's care. J Clin Nurs1995 Mar;4(2): 71–9.
26.
MelnykBM. Coping with unplanned childhood hospitalization: Effects of informational interventions on mothers and children. Nurs Res1994 Jan;43(1): 50–5.
27.
AmmentorpJMainzJSabroeS. Parents' priorities and satisfaction with acute pediatric care.[see comment]. Archives of Pediatrics & Adolescent Medicine159(2): 127–31, 2005 Feb.
28.
SnowdonAWKaneDJ. Parental needs following the discharge of a hospitalized child. Pediatr Nurs1995 Sep;21(5): 425–8.
29.
MilesMSCarlsonJBrunssenS. The nurse parent support tool. J Pediatr Nurs1999 Feb;14(1): 44–50.
30.
NeillSJ. Parent participation. 1: Literature review and methodology. Br J Nurs1996 Jan 12;5(1): 34–40.
31.
NeillSJ. Parent participation. 2: Findings and their implications for practice. Br J Nurs1996 Jan 25;5(2): 110–7.
32.
SmithLDaughtreyH. Weaving the seamless web of care: An analysis of parents' perceptions of their needs following discharge of their child from hospital. J Adv Nurs2000 Apr;31(4): 812–20.
33.
LovgrenGSandmanPOEngstromBNorbergAErikssonS. The view of caring among patients and personnel. Scand J Caring Sci1998; 12(1): 33–41.
34.
LannersRMombaertsD. Technology. Evaluation of parents' satisfaction with early intervention services within and among European countries: Construction and application of a new parent satisfaction scale. Infants & Young Children12(3): 61–70, 2000 Jan 2000 Jan;(3): 61–70.
35.
MelnykBMAlpert-GillisLJ. Coping with marital separation: Smoothing the transition for parents and children. J Pediatr Health Care1997 Jul;11(4): 165–74.
36.
HallstromIElanderG. A comparison of patient needs as ranked by patients and nurses. Scand J Caring Sci2001; 15(3): 228–34.
37.
ChalmersKILukerKALeinsterSJEllisIBoothK. Information and support needs of women with primary relatives with breast cancer: Development of the Information and Support Needs Questionnaire. J Adv Nurs2001 Aug;35(4): 497–507.
38.
Norge.Helsepersonelloven og pasientrettighetsloven med nye forskrifter: Lov om helsepersonell m.v., vedtatt 2. juli 1999 nr 64: Lov om pasientrettigheter, vedtatt 2. juli 1999 nr 63. (The law of medical personnel and patients' rights with new regulations)Oslo: MEDLEX norsk helseinformasjon; 2002.
39.
Kristensson-HallstromIElanderGMalmforsG. Increased parental participation in a paediatric surgical day-care unit. J Clin Nurs1997 Jul;6(4): 297–302.
40.
OlssonA. [Physician is chief of nursing education]. Vardfacket1998 Jan 12;22(1): 30.
41.
WorthATierneyAJWatsonNT. Discharged from hospital: Should more responsibility for meeting patients' and carers' information needs now be shouldered in the community?Health Soc Care-Community2000 Nov;8(6): 398–405.
