Abstract
There has long been a recognized need to provide the public in general, and specifically patients and physicians, with quality information about clinical trials—what diseases are being investigated, with what products, in what countries, and so on—and also to ensure that trial results are made publicly available.
In 2005 Roche launched its own clinical trial protocol registry and results database designed to ensure transparency within its clinical trial activities and the disclosure of results. In early 2007 the company conducted a survey of patient advocate groups to ask for feedback on the Roche site and other nonbranded sites (eg, CenterWatch, IFPMA portal).
The results indicate that the Roche site was well received, providing easy-to-use, transparent, and nonpromotional material. The patient groups also made recommendations for how to improve the content and services offered on the site and also on how to raise awareness among patients and patient groups about the availability of this information.
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