Research addressing the delivery of early intervention programmes offers guidelines that, when followed, presumably maximize the programmes’ intended benefits. In this study, the authors used a quasi-mixed, monostrand method to investigate how families of children with disabilities in south-east Turkey perceived the service delivery they were receiving. Organizing their perceptions under a framework related to the Turkish-law-mandated guidelines, the authors found that the provision of services in the region varied greatly from one professional team task to the next. Implications for the improvement of service delivery are discussed.
Apuzzo, M.L. and C. Yoshinaga-ltano ( 1995) ‘Early Identification of Infants with Significant Hearing Loss and the Minnesota Child Development Inventory’, Semin Hear16: 124-37.
2.
Arehart K.H., C. Yoshinaga-ltano, V. Thomson, S.A. Gabbard and A.S. Brown ( 1998) ‘State of the States: The Status of Universal Newborn Screening, Assessment, and Intervention Systems in 16 States’, American Journal of Audiology7: 101-14.
3.
Atkinson, M., A. Wilkin, A. Stott, P. Doherty and K. Kinder ( 2002) Multi-agency Working: A Detailed Study. Slough, UK: National Foundation for Educational Research .
4.
Badr, L.K., M. Garg and M. Kamath ( 2006) ‘Intervention for Infants with Brain Injury: Results of a Randomized Controlled Study’, Infant Behavior and Development29: 80-90.
5.
Bailey, D.B. and P.M. Blasco ( 1990) ‘Parents’ Perspectives on a Written Survey of Family Needs’, Journal of Early Intervention14: 196-203.
6.
Bailey, D.B., K. Hebbeler, A. Scarborough, D. Spiker and S. Mallik ( 2004) ‘First Experiences with Early Intervention: A National Perspective’, Pediatrics113: 887-96.
7.
Başbakanlık Özürlüler İdaresi (2002) O.Z.I. Ozurlulerle Ilgili Mevzuat. [Public Act on Individuals with Disabilities]. Ankara: Basbakanlik Ozurluler Idaresi Baskanligi.
8.
Başbakanlık Özürlüler İdaresi (2005) II. Ozurluler Surası: Yerel Yonetimler ve Ozurluler. [II. Council of Individuals with Disabilities: Local Governments and Disability]. Ankara: Basbakanlik Ozurluler Idaresi Baskanligi.
9.
Bernard, H.R. ( 1994) Research Methods in Anthropology: Qualitative and Quantitative Qpproaches, 2nd edn. Thousand Oaks, CA: SAGE.
10.
Bess, F.H., J. Dodd-Murphy and R.A. Parker ( 1998) ‘Children with Minimal Sensorineural Hearing Loss: Prevalence, Educational Performance, and Functional Status’, Ear and Hearing19: 339-54.
11.
Bricker, D. ( 2001) ‘The Natural Environment: A Useful Construct?’ , Infants & Young Children13(4): 21-31.
12.
Bryson, S.E. and I.M. Smith ( 1998) ‘Epidemiology of Autism: Prevalence, Associated Characteristics, and Implications for Research and Service Delivery’ , Mental Retardation and Developmental Disabilities4: 97-103.
13.
Calderon, R., J. Bargones and S. Sidman ( 1998) ‘Characteristics of Hearing Families and their Young Deaf and Hard of Hearing Children: Early Intervention Follow-up’, American Annals of the Deaf143: 347-62.
14.
Chang, C.L. ( 2007) ‘A Study of Applying Data Mining to Early Intervention for Developmentally-delayed Children’, Expert Systems with Applications33(2): 407-12.
15.
Dale, N. ( 1996) Working with Families of Children with Special Needs. London: Routledge.
16.
Disability Discrimination Act (DDA) (1995) Disability Discrimination Act 1995 (c. 50). Retrieved 16 October 2008 from http://www.opsi.gov.uk/acts/acts1995/ukpga_19950050_en_1
17.
Dunst, C.J. and M.B. Bruder ( 2006) ‘Early Intervention Service Coordination Models and Service Coordinator Practices’, Journal of Early Intervention28(3): 155-65.
18.
Dunst, C., C. Trivette and A. Deal ( 1988) Enabling and Empowering Families: Principles and Guidelines for Practice. Cambridge, MA: Brookline .
19.
Dymond, S.K., C.L. Gilson and S.P. Myran ( 2007) ‘Services for Children with Autism Spectrum Disorders: What Needs to Change?’, Journal of Disability Policy Studies18(3): 133-47.
20.
Eickmann, S.H., A.C.V. Lima, M.Q. Guerra, M.C. Lima, P.I.C. Lira, S.R.A. Huttly and A. Ashworth ( 2003) ‘Improved Cognitive and Motor Development in a Community-based Intervention of Psychosocial Stimulation in Northeast Brazil’, Developmental Medicine and Child Neurology45: 536-41.
21.
Gabbard S.A., J.L. Northern and C. Yoshinaga-Itano ( 1999) ‘Hearing Screening in Newborns Under 24 Hours of Age’, Semin Hear20: 291-305.
22.
Hanson, M.J. and E.W. Lynch ( 1995) Early Intervention: Implementing Child and Family Services for Infants and Toddlers Who Are at Risk or Disabled. Austin, TX: Pro-Ed.
23.
Hinojosa, J., G. Bedell, E.S. Buchholz, J. Charles, I.S. Shigaki and S.M. Bicchieri ( 2001) ‘Team Colloboration: A Case Study of an Early Intervention Team’, Qualitative Health Research11: 206-20.
24.
International Disability Rights Monitor, Compendium France ( 2008) International Disability Rights Monitor (IDRM) Publications, Compendium: France. Retrieved 3 November 2008, from http://www.ideanet.org/content.cfm?id=5B5D75&searchIT=1
25.
International Disability Rights Monitor, Compendium Netherlands (2008) International Disability Rights Monitor (IDRM) Publications, Compendium: Netherlands. Retrieved 3 November 2008, from http://www.ideanet.org/content.cfm?id=5B5E75&searchIT=1
26.
Jacobson J. and C. Jacobson ( 2004) ‘Evaluation of Hearing Loss in Infants and Young Children’, Pediatrics Annual 2004 33: 811-21.
27.
Jones, L., K. Atkin and W.I.U. Ahmad ( 2005) ‘Supporting Asian Deaf Young People and their Families: The Role of Professionals and Services’, Disability & Society16(1): 51-70.
28.
Kohler, F.W. ( 1999) ‘Examining the Services Received by Young Children with Autism and their Families: A Survey of Parent Responses’, Focus on Autism and Other Developmental Disabilities14: 150-8.
29.
McWilliam, R.A., L. Tocci and G.L. Harbin ( 1998) ‘Family Centered Services: Service Providers’ Discourse and Behavior’, Topics in Early Childhood Education18(4): 206-21.
30.
Mahoney, G., P. O’Sullivan and J. Dennebaum ( 1990) ‘A National Study of Mothers’ Perceptions of Family-focused Early Intervention’, Journal of Early Intervention14(2): 133-46.
31.
Miles, M.B. and A.M. Huberman ( 1994) Qualitative Data Analysis, 2nd edn. Thousand Oaks, CA: SAGE Publications.
32.
Milstein, B. and K. MacQueen ( 1994) ‘AnSWR on the Horizon’, Practicing Anthropology16(3): 34-5.
33.
Moeller, M.P. ( 2007) ‘Current State of Knowledge: Psychosocial Development in Children with Hearing Impairment’, Ear and Hearing28(6): 729-39.
34.
Ozturk-Ertem, I. ( 2005) ‘Ilk uc Yasta Gelisimsel Sorunlari Olan Cocuklar: Uc Sorun ve uc Cozum’ [Children with Developmental Delays: Three Problems, Three Solutions]. Ozel Egitim Dergisi6(2): 13-25.
35.
Ramey, C.T. and S.L. Ramey ( 1998) ‘Early Intervention and Early Experience’ , American Psychologist53(2): 109-20.
36.
Ramey, S.L. and C.T. Ramey ( 1992) ‘Early Educational Intervention with Disadvantaged Children -To What Effect?’, Applied and Preventive Psychology1: 131-40.
37.
Rosenbaum, P., S. King, M. Law, G. King and J. Evans ( 1998) ‘Family-centred Service: A Conceptual Framework and Research Review’, Physical and Occupational Therapy in Pediatrics18: 1-20.
38.
Roush, J. and R.A. McWilliam ( 1994) ‘Family-centered Early Intervention. Historical, Philosophical and Legislative Issues’, in J. Roush and N.D. Matkin (eds) Infants and Toddlers with Hearing Loss: Family Centered Assessment and Intervention , pp. 3-21. Baltimore, MD: York Press.
39.
Sazak-Pinar, E. ( 2006) ‘Dunyada ve Turkiye’de Erken Cocukluk Ozel Egitiminin Gelisimi ve Erken Cocukluk Ozel Egitim Uygulamalari’ [Development and Implementation of Early Childhood Special Education Across the World and Turkey], Ankara University Faculty of Educational Sciences Journal of Special Education7(2): 71-83.
40.
Scarborough, A.A., D. Spiker, S. Mallik, K. Hebbeler, D. Bailey and R.J. Simeonsson ( 2004) ‘A National Look at Children and Families Entering Early Intervention’, Exceptional Children70(47): 469-83.
41.
Sipal, R.F. and P. Bayhan ( 2010) ‘Service Delivery for Children Who Are Deaf: Thoughts of Families in Turkey’, Journal of Disability Policy Studies21(2): 81-9.
42.
Sloper, P. ( 2004) ‘Facilitators and Barriers for Co-ordinated Multi-agency Services’, Child: Care, Health and Development30: 571-80.
43.
Spittle, A.J., J. Orton, L.W. Doyle and R. Boyd ( 2007) ‘Early Developmental Intervention Programs Post Hospital Discharge to Prevent Motor and Cognitive Impairments in Preterm Infants’ , Cochrane Database of Systematic Reviews, Issue 2. Art. No.: CD005495.
44.
Taylor, S.J. and R. Bogdan ( 1998) Introduction to Qualitative Research Methods, 3rd edn. New York: John Wiley.
45.
Teddlie, C. and A. Tashakkori ( 2009) Foundations of Mixed Methods Research: Integrating Quantitative and Qualitative Approaches in the Social and Behavioral Sciences. Thousand Oaks, CA: SAGE.
46.
Westling, D.L. ( 1997) ‘What Parents of Young Children with Mental Disabilities Want: The Views of One Community’, Focus on Autism and Other Developmental Disabilities12(2): 67-78.
47.
Zihinsel Engelliler Federasyonu (2007) ‘Zihinsel Engelliler Federasyonu Yonetmeligi’ [Turkish Federation for the Mentally Retarded Foundation Principles]. Retrieved 24 February 2010 from http://www.zed.org.tr/index.php?p=engelli-ve-sorunlari
