We have made landmark strides over the past fifteen years in the medical management of infants and young children with spina bifida. Educational mainstreaming is national policy, and barrier-free physical environments are increasingly more common. Now we must direct our attention to the broader health and social needs of youth with spina bifida and their families, particularly in the areas of professional support and sexual and vocational counseling.
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References
1.
Hayden P., Davenort S., Campbell M.Adolescents with myelodysplasia: impact of physical disability on emotional maturation. Pediatrics1979;64:53-9.
2.
Hayes A., Tring F.Obesity: another hazard for spina bifida children. Br J Soc Med1973;27:192-6.
3.
Evans E., Tew B.The energy expenditure of spina bifida children during walking and wheelchair ambulation. Z Kinderchir1981;34:425-7.
4.
Shurtteff D., Sousa J.Adolescent with myelodysplasia: development achievement, sex and deterioration . In: McLaurin R.Myelomeningocele . Chicago: Grune and Stratton, 1977.
5.
Castree B., Walker J.The young adult with spina bifida. Br Med J1981;283:1040-2.
6.
Dorner S.Problems of teenagers. Physiotherapy1977;63:190-2.
7.
McAndres I.Adolescents and young people with spina bifida. Dev Med Child Neurol1979;21:619-29.
8.
Friedman R.Modeling behavior of nondisabled and disabled adolescents based upon preference for a similarity to nondisabled and disabled models. [Dissertation]. Hempstead, NY: Hofstra University, 1974. Quoted in Strax.12
9.
Sousa J., et al. Assessing the development of daily living skills in patients with spina bifida. Dev Med Child Neurol1976 ;18[Suppl. 37]:134-42.
10.
Dorner S.Sexual interest and activity in adolescents with spina bifida. J Child Psychol Psychiatry1977;18:229-37.
11.
Minns R., et al. Spina bifida and cerebral palsy. Z Kinderchir1981;34:370-8.
12.
Strax T.Adolescence—a period of stress, the search for an identity. Birth Defects1976;12:63-70.
13.
Resnick M.Cerebral palsy and adolescence. In: Blum R , ed. Chronic illness in adolescence. New York: Grune & Stratton, 1983 (in press).
14.
O'Moore M.The social and emotional adjustment and educational attainments of children with physical handicaps. Reported in Carr, et al.15
15.
Carr J., et al. Educational attainments of spina bifida children attending ordinary or special schools. Z Kinderchir1981;34:364-70.
16.
Kozol J.Death at an early age: the destruction of the hearts and minds of Negro children in the Boston Public Schools. Boston: Houghton & Mifflin, 1967.
17.
Kanthor H., et al. Areas of responsibility in the health care of multiply handicapped children. Pediatrics1974;54:779-85.
18.
Comarr A., Vique M.Sexual counseling among male and female patients with spinal cord and/or cauda equina injury. Am j Phys Med1982;57:107-22; 57:215-27.
19.
Sears J.Du Pont survey of handicapped employees. Wilmington, DE : du Pont, 1958.
20.
Guide for employers in hiring the physically handicapped. New York: National Association for Manufacturing, 1955.
