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Research article

First published 2015-4

The Development of a Preference-Setting Model for the Return of Individual Genomic Research Results

Phoebe L. Bacon, Erin D. Harris, Sonja I. Ziniel [...]

Journal of Empirical Research on Human Research Ethics

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Research article

First published 2015-10

Participant Satisfaction With a Preference-Setting Tool for the Return of Individual Research Results in Pediatric Genomic Research

Ingrid A. Holm, Brittany R. Iles, Sonja I. Ziniel [...]

Journal of Empirical Research on Human Research Ethics

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Research article

First published 2018-10

Adolescent and Parental Attitudes About Return of Genomic Research Results: Focus Group Findings Regarding Decisional Preferences

Michelle L. McGowan, Cynthia A. Prows, Melissa DeJonckheere [...]

Journal of Empirical Research on Human Research Ethics

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Research article

First published 2010-12

Researcher Practices on Returning Genetic Research Results

Christopher Heaney, Genevieve Tindall, Joe Lucas [...]

Genetic Testing and Molecular Biomarkers

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Research article

First published 2017-03

“Still Rather Hazy at Present”: Citizens' and Physicians' Views on Returning Results from Biobank Research Using Broad Consent

Gaia Barazzetti, Samuele Cavalli, Lazare Benaroyo [...]

Genetic Testing and Molecular Biomarkers

Open access

Research article

First published 2024-1

Opinions and attitudes of research ethics committees in Arab countries in the Middle East and North African region toward ethical issues involving biobank research

Zeinab Mohammed, Fatma Abdelgawad, Mamoun Ahram [...]

Research Ethics

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Brief report

First published 2009-06

Biobank Recruitment: Motivations for Nonparticipation

Katrina A.B. Goddard, K. Sabina Smith, Chuhe Chen [...]

Biopreservation and Biobanking

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Research article

First published 2017-06

Stakeholder Perspectives on Public Health Genomics Applications for Sickle Cell Disease: A Methodology for a Human Heredity and Health in Africa (H3Africa) Qualitative Research Study

Marsha J. Treadwell, Julie Makani, Kwaku Ohene-Frempong [...]

OMICS: A Journal of Integrative Biology

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Review article

First published 2017-04

Ethical Legal and Social Issues of Biobanking: Past,Present,and Future

Marianna J. Bledsoe

Biopreservation and Biobanking

Open access

Research article

First published 2021

FarGen – participants in the genetic research infrastructure of the Faroe Islands

Katrin D. Apol, Leivur N. Lydersen, Ólavur Mortensen [...]

Scandinavian Journal of Public Health

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