Sage Journals: Discover world-class research

Free access

Research article

First published

The National Spina Bifida Patient Registry: Past,present,and future

Judy Thibadeau

Journal of Pediatric Rehabilitation Medicine

Open access

Discussion

First published 2026-1

Congenital upper limb difference patient registries: characteristics,comparisons and recommendations

David McCombe, Lindley Wall, Charles Goldfarb [...]

Journal of Hand Surgery (European Volume)

Free access

Meeting report

First published 2011-5

Data Standards in Diabetes Patient Registries

Rachel L. Richesson

Journal of Diabetes Science and Technology

Retricted access

Other

First published 2009-3

Clinical Trial Registries: A Survey of Patient Advocate Group Perceptions

Jacqueline Sayers

Therapeutic Innovation & Regulatory Science

Retricted access

Research article

First published 2008-4

Multicenter Registry of Balloon Catheter Sinusotomy Outcomes for 1,036 Patients

Howard L. Levine, Anthony P. Sertich, Douglas R. Hoisington [...]

Annals of Otology,Rhinology & Laryngology

Retricted access

Research article

First published 2025-4

The FORWARD Psoriasis Registry: Patient-Reported Outcomes in a Novel Psoriasis Registry and Comparison of Traditional,Dermatologist-Led Enrollment With Web-Based Patient Enrollment

William B. Song, Kaleb Michaud, Sarah L. Lonowski [...]

Journal of Psoriasis and Psoriatic Arthritis®

Open access

Research article

First published 2025-10

Ethical considerations for conducting research with transgender and gender-diverse patient registries: Balancing our need for evidence with patient vulnerability

Laura Stamm, Brooke A. Levandowski, Ahona Shirin [...]

Journal of Public Health Research

Retricted access

Research article

First published 2020-2

Positive predictive value of acute and chronic pancreatitis diagnoses in the Danish National Patient Registry: A validation study

Jakob Kirkegård, Marie R. Mortensen, Ida R. Johannsen [...]

Scandinavian Journal of Public Health

Open access

Research article

First published 2026

The PBC Ireland patient registry: study protocol for a national platform on primary biliary cholangitis

Gerry Nesbitt, Alexandra Curley

Therapeutic Advances in Rare Disease

Open access

Research article

First published 2025-1

Evaluation of patient-perceived fatigue in multiple sclerosis utilizing the Finnish MS registry

Päivi Hämäläinen, Matias Viitala, Merja Soilu-Hänninen [...]

Multiple Sclerosis Journal – Experimental,Translational and Clinical

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