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Retricted access

Research article

First published 2019

Assessing Patient Participation Burden Based on Protocol Design Characteristics

Kenneth Getz, Venkat Sethuraman, Jessica Rine [...]

Therapeutic Innovation & Regulatory Science

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Research article

First published 2005-12

Family Burden and Relatives' Participation in Psychiatric Care: Are the Patient's Diagnosis and the Relation to the Patient of Importance?

Margareta Östman, Tuula Wallsten, Lars Kjellin

International Journal of Social Psychiatry

Open access

Research article

First published 2024-03-05

Facioscapulohumeral Muscular Dystrophy European Patient Survey: Assessing Patient Reported Disease Burden and Preferences in Clinical Trial Participation

Megan M. McNiff, Sheila Hawkins, Bine Haase [...]

Journal of Neuromuscular Diseases

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Research article

First published 2000-09

Family Burden,Participation in Care and Mental Health - an 11-Year Comparison of the Situation of Relatives To Compulsorily and Voluntarily Admitted Patients

Margareta Ostman, Lars Hansson, Kristina Andersson

International Journal of Social Psychiatry

Open access

Research article

First published 2021

Burden of cancer trial participation: A qualitative sub-study of the INTERIM feasibility RCT

Chidiebere Nwolise, Pippa Corrie, Ray Fitzpatrick [...]

Chronic Illness

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Research article

First published 2013-4

Patient perspectives on participation in the ENABLE II randomized controlled trial of a concurrent oncology palliative care intervention: Benefits and burdens

Cristine Maloney, Kathleen Doyle Lyons, Zhongze Li [...]

Palliative Medicine

Open access

Research article

First published 2024

Individuals and Families Affected by RYR1-Related Diseases: The Patient/Caregiver Perspective

Sanne A.J.H. van de Camp, Lizan Stinissen, Andrew Huseth [...]

Journal of Neuromuscular Diseases

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Research article

First published 2022-7

Does Caregiver Participation in Advance Care Planning Using a Decision Support Tool Together With Patients Reduce Caregiver Strain,Burden and Anxiety Over Time? A Post-Hoc Analysis of a Randomized Controlled Trial

Bronson R. Kunzler, Andrew J. Foy, Benjamin H. Levi [...]

American Journal of Hospice and Palliative Medicine®

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Research article

First published 2023-2

Caregiver Perspectives on the Benefits,Burdens,and Moral Distress of Participation in Cancer Clinical Trials

Cynthia P. Paidipati, Anessa M. Foxwell, Kim Mooney-Doyle [...]

Journal of Family Nursing

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Research article

First published 2003-06

Burden of care in amyotrophic lateral sclerosis

Martin J Hecht, Elmar Graesel, Sebastian Tigges [...]

Palliative Medicine

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