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First published 2025

Creation and Evaluation of a Research Participant Portal for the University of Chicago Monogenic Diabetes Registry

Michael E. McCullough, Lisa R. Letourneau-Freiberg, Seong G. Choi [...]

Journal of Diabetes Science and Technology

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Research article

First published 2017-2-3

Attitudes toward Potential Participant Registries

Joshua D. Grill, Andrew Holbrook, Aimee Pierce [...]

Journal of Alzheimer’s Disease

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Research article

First published 2016

Participants at the Leiden Site of the REGISTRY Study: A Demographic Approach

Verena Baake, Ellen P. Hart, Reineke Bos [...]

Journal of Huntington's Disease

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Research article

First published 2007-06

Recruitment of Women Research Participants: The Women's Health Registry at the University of Michigan

Juliet L. Rogers, Timothy R.B. Johnson, Morton B. Brown [...]

Journal of Women's Health

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Research article

First published 2020-11

“If it helps someone,then I want to do it”: Perspectives of persons living with dementia on research registry participation

Jeanie YY Lee, Rachel E Crooks, Tram Pham [...]

Dementia

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Research article

First published 2018-5-8

Constructing a Local Potential Participant Registry to Improve Alzheimer’s Disease Clinical Research Recruitment

Joshua D. Grill, Dan Hoang, Daniel L. Gillen [...]

Journal of Alzheimer’s Disease

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Research article

First published 2012-4

A model for the design and implementation of a participant recruitment registry for clinical studies of older adults

N Maritza Dowling, Nevin Olson, Thomas Mish [...]

Clinical Trials

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Research article

First published 2011-2-14

Clinical Research Participation among Aging Adults Enrolled in an Alzheimer's Disease Center Research Registry

Angela L. Jefferson, Susan Lambe, Christine Chaisson [...]

Journal of Alzheimer’s Disease

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Research article

First published 2022-08-16

An Elicitation Study to Understand Black,Hispanic,and Male Older Adults’ Willingness to Participate in Alzheimer’s Disease-Focused Research Registries

Amy Bleakley, Erin K. Maloney, Kristin Harkins [...]

Journal of Alzheimer’s Disease

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Research article

First published 2018-6

A contemporary profile of primary progressive multiple sclerosis participants from the NARCOMS Registry

Amber Salter, Nina P Thomas, Tuula Tyry [...]

Multiple Sclerosis Journal

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