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Retricted access

Research article

First published 2022-06

Hypermobile Ehlers-Danlos Syndrome: Caregiver–Child Concordance Across Challenges,Readiness to Change,and Coping

Keely H. Bieniak, Marissa L. Koven, Helen Bedree [...]

Clinical Practice in Pediatric Psychology

Open access

Editorial

First published 2025

A Caregiver's Perspective: Identifying “Zebras”—Listening to Patients is a Clinical Necessity

Gil Bashe

Journal of Patient Experience

Retricted access

Research article

First published 2020-9

Symptom complaints and impact on functioning in youth with hypermobile Ehlers–Danlos syndrome

Susan T Tran, Anjana Jagpal, Marissa L Koven [...]

Journal of Child Health Care

Open access

Research article

First published 2025

The Complexities of Navigating the Healthcare System as an Autistic Individual with Ehlers-Danlos Syndrome: A Patient Perspective

Sarah Clark

Journal of Patient Experience

Retricted access

Research article

First published 2024-9

The role of functional disability and social support in psychological outcomes for individuals with pediatric hypermobile ehlers–danlos syndrome

Keely H Bieniak, Brad T Tinkle, Susan T Tran

Journal of Child Health Care

Retricted access

Research article

First published 2025

Comparative assessment of left common iliac vein compression in patients with hypermobile Ehlers-Danlos syndrome,hypermobility spectrum disorder and healthy controls – A retrospective single-centre study

Samuel B. Ogunlade, Dillon Brown, Todd Rozen [...]

Phlebology: The Journal of Venous Disease

Open access

Case report

First published 2024

Dextrose Prolotherapy for the Treatment of Chronic Shoulder Pain in Patients With Joint Hypermobility: A Case Series

Nathan Michalak, Dylan Banks, Luke Kane [...]

Clinical Medicine Insights: Arthritis and Musculoskeletal Disorders

Open access

Research article

First published 2026

The role of perceived social support for outcomes for the long-term health condition hypermobile Ehlers-Danlos syndrome

Kimberley C. Schenke, Joanna Foster, Danielle Stephens-Lewis

Journal of Health Psychology

Retricted access

Research article

First published 2023-6

Gluten-free diet in postural orthostatic tachycardia syndrome (POTS)

Kate Zha, Jill Brook, Abigail McLaughlin [...]

Chronic Illness

Open access

Research article

First published 2022-4

Health-Related Quality of Life and Psychological Distress in Patients With Hypermobility Type Ehlers-Danlos Syndrome

Tage Orenius, Hannu Kautiainen, Marja Louhi [...]

Sage Open

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