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Retricted access

Research article

First published 2020-10

A Scenario-Based Methodology for Analyzing the Ethical,Legal,and Social Issues in Genomic Data Sharing

Rebekah McWhirter, Lisa Eckstein, Don Chalmers [...]

Journal of Empirical Research on Human Research Ethics

Retricted access

Research article

First published 2013-10

Participants' Recall and Understanding of Genomic Research and Large-Scale Data Sharing

Jill Oliver Robinson, Melody J. Slashinski, Tao Wang [...]

Journal of Empirical Research on Human Research Ethics

Retricted access

Research article

First published 2021-2

Researcher Knowledge,Attitudes,and Communication Practices for Genomic Data Sharing

Heather P. Nick, Kelsey Kehoe, Amanda Gammon [...]

Journal of Empirical Research on Human Research Ethics

Open access

Research article

First published 2024-7

Australian Attitudes Towards Waivers of Consent Within the Context of Genomic Data Sharing

Lyndsay Newett, Rebekah McWhirter, Lisa Eckstein [...]

Journal of Empirical Research on Human Research Ethics

Open access

Research article

First published 2026-4

“It just feels morally not right to Sell the data”: Ethical and social perspectives on human genomic data sharing in Uganda—A phenomenological qualitative study

Deborah Ekusai-Sebatta, David Kyaddondo, David Kaawa-Mafigiri [...]

Research Ethics

Retricted access

Review article

First published 2017-10

Oversight of Genomic Data Sharing: What Roles for Ethics and Data Access Committees?

Mahsa Shabani, Edward S. Dove, Madeleine Murtagh [...]

Biopreservation and Biobanking

Open access

Research article

First published 2020-10

A deliberative study of public attitudes towards sharing genomic data within NHS genomic medicine services in England

Lamiece Hassan, Ann Dalton, Carrie Hammond [...]

Public Understanding of Science

Open access

Research article

First published 2023-1

Exploring the challenges of and solutions to sharing personal genomic data for use in healthcare

Lasse Parvinen, Ari Alamäki, Heli Hallikainen [...]

Health Informatics Journal

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Research article

First published 2016-06

An International Framework for Data Sharing: Moving Forward with the Global Alliance for Genomics and Health

Vasiliki Rahimzadeh, Stephanie O.M. Dyke, Bartha M. Knoppers

Biopreservation and Biobanking

Open access

Research article

First published 2022

Is blockchain the breakthrough we are looking for to facilitate genomic data sharing? The European Union perspective

Fidelia Cascini, Flavia Beccia, Francesco A Causio [...]

DIGITAL HEALTH

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