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Open access

Research article

First published 2025-11

Bias in HD-ISS staging introduced by the FreeSurfer cross-sectional stream: Insights from the Huntington's Disease Young Adult Study (HD-YAS)

Harry Knights, Annabelle Coleman, Mena Farag [...]

Journal of Huntington's Disease

Retricted access

Research article

First published 2023

Applying the Huntington’s Disease Integrated Staging System (HD-ISS) to Observational Studies

Jeffrey D. Long, Emily C. Gantman, James A. Mills [...]

Journal of Huntington's Disease

Retricted access

Research article

First published 2017

Assessing Decline: Visualising Progression in Huntington’s Disease using a Clinical Dashboard with Enroll-HD Data

Thomas Walker, Boyd Ghosh, Christopher Kipps

Journal of Huntington's Disease

Free access

Research article

First published 2024

Freesurfer Software Update Significantly Impacts Striatal Volumes in the Huntington’s Disease Young Adult Study and Will Influence HD-ISS Staging

Harry Knights, Annabelle Coleman, Nicola Z. Hobbs [...]

Journal of Huntington's Disease

Open access

Research article

First published 2012-2

The Patient Education Program for Huntington's Disease (PEP-HD)

Laura E.I. A'Campo, Noëlle G.A. Spliethoff-Kamminga, Raymund A.C. Roos

Journal of Huntington's Disease

Open access

Research article

First published 2022

Disease Burden of Huntington’s Disease (HD) on People Living with HD and Care Partners in Canada

Eileen Shaw, Michelle Mayer, Paul Ekwaru [...]

Journal of Huntington's Disease

Retricted access

Research article

First published 2023-07

Factors Associated With the Place of Death in Huntington Disease: Analysis of Enroll-HD

Leonard L. Sokol, Martha Nance, Benzi M. Kluger [...]

Journal of Palliative Medicine

Retricted access

Research article

First published

Functional Brain Correlates of Neuropsychiatric Symptoms in Presymptomatic Huntington’s Disease: The IMAGE-HD Study

Govinda R. Poudel, Shannon Driscoll, Juan F. Domínguez D [...]

Journal of Huntington's Disease

Retricted access

Research article

First published 2013-02

Perception,Experience,and Response to Genetic Discrimination in Huntington's Disease: The Australian Results of the International RESPOND-HD Study

Anita M.Y. Goh, Edmond Chiu, Olga Yastrubetskaya [...]

Genetic Testing and Molecular Biomarkers

Retricted access

Research article

First published 2017

Reliability and Validity of the HD-PRO-Triad TM,a Health-Related Quality of Life Measure Designed to Assess the Symptom Triad of Huntington’s Disease

Nicholas R. Boileau, Julie C. Stout, Janes S. Paulsen [...]

Journal of Huntington's Disease

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