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Retricted access

Research article

First published 2013-7

A Comparative Analysis of the Governance and Use of Residual Dried Blood Spots from State Newborn Screening Programs and Neonatal Biobanks

Elicia D. Preslan, Debra J. H. Mathews

Journal of Empirical Research on Human Research Ethics

Retricted access

Research article

First published 2013-11

Governing International Biobank Collaboration: A Case Study of China Kadoorie Biobank

Haidan Chen

Science,Technology and Society

Open access

Research article

First published 2021-12

Governance of Access in Biobanking: The Case of Telethon Network of Genetic Biobanks

Sofia Iacomussi, Lorena Casareto, Manuela Locatelli [...]

Biopreservation and Biobanking

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Research article

First published 2024-10

Public Perspectives on Consent for and Governance of Biobanking in Japan

Masanori Oikawa, Yoshiyuki Takimoto

Journal of Empirical Research on Human Research Ethics

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Review article

First published 2021-02

Transparency About Governance Contributes to Biobanks' Trustworthiness: Call for Action

Felix Gille, Renata Axler, Alessandro Blasimme

Biopreservation and Biobanking

Retricted access

Research article

First published 2016-06

Access Governance for Biobanks: The Case of the BioSHaRE-EU Cohorts

Jane Kaye, Linda Briceño Moraia, Colin Mitchell [...]

Biopreservation and Biobanking

Free access

Meeting report

First published 2007-9

Governing Human Genetic Databases,Biobanks and Research Tissue Banks

Susan M.C. Gibbons

Research Ethics

Retricted access

Research article

First published 2025-08

Data Governance and Distribution of Biobank: A Case from a Chinese Cancer Hospital

Jingjing Shi, Yan Guo, Na He [...]

Biopreservation and Biobanking

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Review article

First published 2021-10

A Review of Regulatory Frameworks Governing Biobanking in the Low and Middle Income Member Countries of BCNet

Pierre Vodosin, Ann Katheryn Jorgensen, Maimuna Mendy [...]

Biopreservation and Biobanking

Open access

Research article

First published 2024-12

Asserting the public interest in health data: On the ethics of data governance for biobanks and insurers

Kathryne Metcalf, Jathan Sadowski

Big Data & Society

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