PURPOSE: This study aimed to translate and cross-culturally adapt
the Pediatric Outcome Data Collecting Instrument (PODCI) into the Dutch
language and evaluate its measurement properties among children (age 3-10)
with Neonatal Brachial Plexus Palsy (NBPP).
METHODS: The PODCI was translated and adapted according to
international guidelines and administered to 10 children with NBPP before
and after surgery and thereafter twice again. Subsequently, the
Mallet-score, Assisting Hand Assessment and active Range of Motion (aROM)
were recorded. Cronbach's-α and correlations between the PODCI and
other outcome measures were determined, as well as Intraclass Correlation
Coefficients (ICC). In addition, effect sizes (ES), Standard Response Means
(SRM) and change scores with the 95% Confidence Interval (95% CI) were
calculated.
RESULTS: The final Dutch PODCI `Upper Extremity and Physical
Function' subscale and total score `Global Functioning' showed good internal
consistency (Cronbach's-α 0.695/0.781) and reliability (ICC
0.97/0.80) and were significantly associated with aROM and the Mallet-score.
After surgery a significant change of the total score (ES 0.57, SRM 1.23,
change 4.22 points, 95% CI 1.04-7.4) was seen.
CONCLUSION: The final Dutch PODCI had good measurement properties
and appears useful in evaluating quality of life and functioning in children
with NBPP.
