PURPOSE: To explore parent experiences with participation in
splinting programs for their child with a congenital limb anomaly in the
child's first year of life. While parent participation is recognized as
integral to successful outcomes of splinting programs for these children,
little is known about factors influencing their participation.
METHODS: Through purposive sampling, 10 families recruited from
outpatient clinics at a pediatric tertiary care facility participated in
semi-structured interviews in this qualitative study utilizing interpretive
description methodology. Constant comparative and concurrent data collection
and analysis were employed.
RESULTS: Themes identified: (1) An experience of adjustment; (2)
The value of timely and comprehensive information; (3) Appreciation of
support networks; and (4) Characteristics unique to splinting programs.
Practical suggestions for program enhancements are outlined.
CONCLUSIONS: Addressing parents' information, support, and individual
needs are keys to promoting active parent participation in their child's
splinting program, contributing to positive outcomes for their child.
