Families Coping with Childhood Neurological Disability

Abstract

This article describes the assessment and intervention issues relevant to families of children with neurological disability. An adaptation of Bishop’s model of family assessment is used as a basis for evaluating families in crisis. Family burdens and problems, family functioning, and family resources and support are discussed in regard to the characteristics of the child and the family, and the quality of the treatment community and community support. Crucial and difficult issues often confronted by the family therapist in working with these families are highlighted. The authors stress the role of the therapist as one that goes beyond traditional therapeutic boundaries. The clinician helps the family to understand the impact of the disability on all aspects of family functioning and provides support through networking and advocacy. Therapy is viewed as a means of empowerment rather than as a form of uncovering pathology.