Prenatal diagnosis of Down's Syndrome: Experiences of women who decided to continue with the pregnancy

Abstract

Objective. To gain insight into the motives and experiences of women who had decided to continue with the pregnancy after Down's Syndrome had been diagnosed in the foetus.

Design. In depth interviews with ten women who had made this choice.

Results. The result of the diagnostic procedure put those concerned in the position of having to make a difficult decision. Some women were rather unexpectedly confronted with an increased risk as the result of maternal serum screening or nuchal translucency and they hoped that the amniocentesis could reduce their uncertainty. After the definite test result the women had to make the choice between having to bring up a child with intellectual limitations or allowing the termination of an already well advanced pregnancy. For our respondents, the latter proved to be unacceptable. Initially, little understanding was shown for the parents' decision by some social and medical workers; however, after this initial reaction, sufficient help and support were usually given. The respondents received a lot of support from members of the family, friends and acquaintances, but there were also negative and disapproving reactions. Almost no‐one regretted the examination.

Conclusion. The technological possibilities for determining individual risks during pregnancy are increasing rapidly. It is important that pregnant women have all the necessary information about the diagnostic procedures which will enable them to make the right decision.