Although the medical record is the centerpiece of modern medical care, its usefulness is diminished by the reluctance of people to disclose important health information, such as a higher risk for Alzheimer’s disease, to their doctors. Steps should be taken now to ensure that the medical record, the repository of one’s health information, can continue to serve the needs of the medical community and of patients.
ZallenDT (2018) “Well, good luck with that”: Reactions to learning of increased genetic risk for Alzheimer disease. Genet Med20, 1462–1467.
2.
LargentEA, StitesSD, HarkinsK, KarlawishJ (2021) “That would be dreadful”: The ethical, legal, and social challenges of sharing your Alzheimer’s disease biomarker and genetic testing results with others. J Law Biosci8, 1–31.
3.
KevlesD (1985) Knopf. In the Name of Eugenics: Genetics and the Uses of Human Heredity–New York.
LewinT (2001) Commission sues railroad to end genetic testing in work injury cases. NYTimes, Feb 10, Section A, 10.
6.
ZickCD, MathewsCJ, RobertsJS, Cook-DeeganR, PokorskiRJ, GreenRC (2005) Genetic testing for Alzheimer’s disease and its impact on insurance purchasing behavior. Health Affairs24, 483–490.
