Caregiving and Dementia: Predicting Negative and Positive Outcomes for Caregivers

Abstract

A sample of 118 caregivers, maintaining relatives with dementia at home, were interviewed and completed questionnaires at initial and follow-up assessment six months later. All dependents received a cognitive assessment. The results of LISREL analysis of the data supported a model of caregiving in which negative outcomes of burden and impaired health reduced positive outcomes of enjoyment of aspects of caregiving. Caregivers with larger social support networks were more satisfied with their support, reducing feelings of impaired health, although as caregiving became more difficult, satisfaction with support decreased. The retrospective perception of the premorbid relationship as more difficult lead to the appraisal of the patient's symptoms as presently being more extensive and increased burden. Women caregivers repotted both greater feelings of burden and more aspects of caregiving as enjoyable.