This article examines how group and online support for bereaved parents has evolved over the past 35 years. From little to no support at all, support for grieving parents has evolved from face-to-face peer support groups and one-on-one telephone support, into online support, specialized groups for pregnancy and parenting after a loss, and, finally, into groups that provide care for those making decisions when the baby is not expected to survive. This article also explores current research into the history and effectiveness of both face-to-face and online support groups. Caregivers will gain information to help them in their work with bereaved families.
AgostiniF.MontiF.De PascalisL.PaterliniM.La SalaB. G. & BlicksteinI. (2011). Psychosocial support for infertile couples during assisted reproductive technology treatment. Fertility and Sterility, 95, 707–710.
2.
AhoA. L.TarkkaM.-T.Astedt-KurkiP.SorvariL. & KaunonenM. (2011). Evaluating a bereavement follow-up intervention for grieving fathers and their experiences of support after the death of a child—A pilot study. Death Studies, 35(10), 879–904.
3.
AnderssonG. (2009). Using the Internet to provide cognitive behaviour therapy. Behavioral Research Therapy, 47, 175–180.
4.
AnderssonG. & CuijpersP. (2009). Internet-based and other computerized psychological treatments for adult depression: A meta-analysis. Cognitive Behavioral Therapy, 38, 196–205.
5.
BennettS. M.LitzB. T.Lee SarnoffB. & MaguenS. (2005). The scope and impact of perinatal loss: Current status and future directions. Professional Psychology: Research & Practice, 36(2), 180–187.
6.
BowmanT. (2007). Thankfulness for grief and grieving: Exploring paradoxes. Illness, Crisis & Loss, 15, 285–296.
7.
BreenL. & O'ConnorM. (2011). Family and social networks after bereavement: Experiences of support, change and isolation. Journal of Family Therapy, 33, 98–120.
8.
BurlingameG.FuhrimanA. & JohnsonJ. (2004). Current status and future directions of group therapy research. In DeLucia-WaackJ.GerrityeD.KalodnerC. & RivaM. (Eds.), Handbook of group counseling and psychotherapy (pp. 651–660). Thousand Oaks, CA: Sage Publications Ltd.
9.
CacciatoreJ. (2007). Effects of support groups on post-traumatic stress responses in women experiencing stillbirth. Omega: Journal of Death and Dying, 55, 71–90.
10.
CacciatoreJ. & RaffoZ. (2011). An exploration of lesbian maternal bereavement. Social Work, 56, 169–177.
11.
CacciatoreJ.SchneblyS. & FrøenJ. F. (2008). The effects of social support on maternal anxiety and depression after stillbirth. Health and Social Care in the Community, 117, 167–176.
12.
CalhounB. C. & HoeldtkeN. J. (2002). The perinatal hospice: Ploughing the field of natal sorrow. Frontiers in Fetal Health: A Global Perspective, 1(2), 16–33.
13.
CarlsonR.Weber-DeningmannK. & LammertC. (2010). Sharing and caring: Establishing and maintaining an effective share program. St. Louis, MO: National Share Office.
14.
CollierR. (2011). Providing hospice in the womb. Canadian Medical Association Journal, 183, 267–268.
15.
CoreyM.CoreyG. & CoreyC. (2010). Groups: Process and practice(8th ed.). Belmont, CA: Brooks/Cole.
16.
Côté-ArsenaultD. & Denney-KoelschE. (2011). “My baby is a person”: Parents' experiences with life-threatening prenatal diagnosis. Journal of Palliative Medicine, 13(12), 1–7.
17.
Côté-ArsenaultD. & DonatoK. (2010). Emotional cushioning in pregnancy after perinatal loss. Journal of Reproductive and Infant Psychology, 29, 81–92.
18.
Côté-ArsenaultD. & FreijeM. (2004). Support groups helping women through pregnancies after loss. Western Journal of Nursing Research, 26, 650–670.
19.
D'AlmeidaM. D.HumeR. F.LathropA.NjokuA. & CalhounB. C. (2006). Perinatal hospice: Family-centered care of the fetus with a lethal condition. Journal of American Physicians and Surgeons, 11, 52–55.
20.
DiMarcoM. A.MenkeE. M. & McNamaraT. (2001). Evaluating a support group for perinatal loss. American Journal of Maternal Child Nursing, 26, 135–140.
21.
GellerP. A.PsarosC. & KernsD. (2006). Web-based resources for health care providers and women following pregnancy loss. Journal of Obstetric, Gynecologic, & Neonatal Nursing, 35, 523–532.
22.
GilatI. & GolanS. (2009). Suicide prevention by online support groups: An action theory-based model of emotional first aid. Archives of Suicide Research, 13, 52–63.
23.
GoldK.BoggsM.MugishaE. & PalladinoC. L. (2011). Internet message boards for pregnancy loss: Who's on-line and why?Women's Health Issues, 22, e67–e72.
24.
GoldK. J.SenA. & HaywardR. A. (2010). Marriage and cohabitation outcomes after pregnancy loss. Pediatrics, 125, 1202–1207.
25.
GordonL.ThorntonA.LewisS.WakeS. & SahharM. (2007). An evaluation of a shared experience group for women and their support persons following prenatal diagnosis and termination for a fetal abnormality. Prenatal Diagnosis, 27, 835–839.
26.
GudmundsdottirM. & ChesaC. (2006). Building a new world: Habits and practices of healing following the death of a child. Journal of Family Nursing, 12(2), 143–164.
27.
HarrisA. (2004). Supportive counseling before and after elective pregnancy termination. Journal of Midwifery & Women's Health, 49(2), 105–112.
28.
HessR.WeinlandJ. & BeebeK. (2010). “I am not alone.” A survey of women with peripartum cardiomyopathy and their participation in an online support group. CIN: Computers, Informatics, Nursing, 28, 215–221.
29.
HuttiM. (2004). Social and professional support needs of families after perinatal loss. Journal of Obstetric, Gynecologic, & Neonatal Nursing, 34, 630–638.
30.
KangS. (2007). Disembodiment in online social interaction: Impact of online chat on social support and psychosocial well-being. Cyberpsychology & Behavior, 10, 475–477.
31.
KavanaughK. & HershbergerP. (2005). Perinatal loss in low-income African American parents. Journal of Obstetric, Gynecologic, & Neonatal Nursing, 34, 595–605.
32.
KeeseeN. J.CurrierJ. M. & NeimeyerR. A. (2008). Predictors of grief following the death of one's child: The contribution of finding meaning. Journal of Clinical Psychology, 64, 1145–1163.
33.
KerstingA.DorschM.KreulichC.ReutermannM.OhrmannP.BaezE. (2005). Trauma and grief 2–7 years after termination of a pregnancy because of fetal anomalies—A pilot study. Journal of Psychosomatic Obstetrics and Gynecology, 26, 9–14.
34.
KerstingA.KrokerK.SchlichtS.BaustK. & WagnerB. (2011). Efficacy of cognitive behavioral internet-based therapy in parents after the loss of a child during pregnancy: Pilot data from a randomized controlled trial. Archives of Women's Mental Health, 14, 465–477.
35.
KuebelbeckA. & DavisD. (2011). A gift of time: Continuing your pregnancy when your baby's life is expected to be brief. Baltimore, MD: Johns Hopkins University Press.
36.
LambJ. M.Sr. (1991). Starting your own SHARE group(5th ed.). St. Charles, MO: SHARE Pregnancy and Infant Loss Support, Inc.
37.
LambJ. M.Sr. (1992). Parent's needs and rights when a baby dies. Health Progress, 73, 52–57.
LewinE. (1993). Lesbian mothers: Accounts of gender in American culture. Ithaca, NY: Cornell University Press.
40.
LimboR. & KoblerK. (2010). The tie that binds: Relationship in perinatal bereavement. Maternal Child Nursing, 35, 316–321.
41.
LimboR. & WheelerS. (1989/2010). Parent support group guide for perinatal loss (2nd ed.). La Crosse, WI: Gundersen Lutheran Medical Foundation, Inc.
42.
LittleC. (2010). One consequence of infertility treatment: Multi-fetal pregnancy. Maternal Child Nursing, 35, 150–155.
43.
LittmanL.ZarcadoolasC. & JacobsA. (2009). Introducing abortion patients to a culture of support: A pilot study. Archives of Women's Mental Health, 12, 419–431.
44.
LukeB.BrownM.GraingerD.SternJ.KleinN. & CedarsM. (2009). The effect of early fetal losses on twin assisted-conception pregnancy outcomes. Fertility and Sterility, 91, 2586–2592.
45.
MacDormanM. F.MunsonM. L. & KirmeyerS. (2007). Fetal and perinatal mortality, United States, 2004. National Vital Statistics Reports, 56(3). Hyattsville, MD: Center for Health Statistics.
46.
MalikS. H. & CoulsonN. S. (2008). Computer-mediated infertility support groups: An exploratory study of online experiences. Patient Education and Counseling, 73, 105–113.
47.
MarazzoJ. M. & StineK. (2004). Reproductive health history of lesbians: Implications for care. American Journal of Obstetrics and Gynecology, 190, 1298–1304.
48.
MartinJ. A.HamiltonB. E.SuttonP. D.VentureS. J.MenackerF.KirmeyerS. (2009). Births: Final data for 2006. National Vital Statistics Reports, 57(7). Hyattsville, MD: Center for Health Statistics.
MurphyS. A. & JohnsonL. C. (2003). Finding meaning is a child's violent death: A five-year prospective analysis of parents' personal narratives and empirical data. Death Studies, 27, 381–404.
54.
NeimeyerR. (2006). Re-storying loss: Fostering growth in the posttraumatic narrative. In CalhounL.G. & TedeschiR.G. (Eds.), Handbook of posttraumatic growth: Research and practice (pp. 68–80). Mahwah, NJ: Lawrence Erlbaum.
55.
NeimeyerR. (2011). Reconstructing meaning in bereavement. Rivista di Psichiatria, 46(5), 1–5.
56.
NeimeyerR. & CurrierJ. (2009). Grief therapy: Evidence of efficacy and emerging directions. Current Directions in Psychological Science, 18, 352–356.
57.
NeimeyerR. & StewartA. (1996). Trauma, healing, and the narrative emplotment of loss. Families in Society, 77, 360–375.
58.
NikcevicA. V.KuczmierczykA. R. & NicolaidesK. H. (2007). The influence of medical and psychological interventions on women's distress after miscarriage. Journal of Psychosomatic Research, 63, 283–290.
59.
O'LearyJ. (2009). Never a simple journey: Pregnancy following perinatal loss. Bereavement Care, 28(2), 12–17.
60.
O'LearyJ. & ThorwickC. (2006a). When pregnancy follows a loss: Preparing for the birth of your new baby. Minneapolis, MN: O'Leary. Retrieved from www.aplacetoremember.org.
61.
O'LearyJ. & ThorwickC. (2006b). Fathering perspective during pregnancy post perinatal loss. Journal of Obstetric, Gynecologic, & Neonatal Nursing, 35, 78–86.
62.
O'LearyJ. & ThrowickC. (2011). The baby leads the way: Supporting the emotional needs of families' pregnant following perinatal loss. Minneapolis, MN: O'Leary. Retrieved from www.aplacetoremember.org.
63.
O'LearyJ. & WarlandJ. (2011). Intentional parenting of children born after a perinatal loss. Journal of Loss and Trauma, 17, 137–157.
64.
PectorE. A. & HsuingR. C. (2011). Clinical work with support groups: Practical aspects. In KrausR.StrickerG. & SpeyerC. (Eds.), A handbook for mental health professionals (pp. 204–224). London: Elsevier.
65.
PectorE. A. & Smith-LevitinM. (2005). Bereavement: Grief and psychological issues in multiple birth loss. In BlicksteinI. & KeithL. (Eds.), Multiple pregnancy: Epidemiology, gestation, and perinatal outcome (pp. 862–873). United Kingdom: Taylor & Francis.
66.
RandoT. A. (1993). Treatment of complicated mourning. Champaign, IL: Research Press.
67.
Reilly-SmorawskiB.ArmstrongA. V. & CatlinE. A. (2002). Bereavement support for couples following death of a baby: Program development and 14-year exit analysis. Death Studies, 26, 21–37.
68.
RichD. (2000). The impact of postpregnancy loss services on grief outcome: Integrating research and practice in the design of perinatal bereavement programs. Illness, Crisis & Loss, 8, 244–264.
69.
RooseR. & BlanfordC. (2011). Perinatal grief and support spans the generations: Parents' and grandparents' evaluations of an intergenerational perinatal bereavement program. Journal of Perinatal and Neonatal Nursing, 25, 77–85.
UmphreyL. R. & CacciatoreJ. (2011). Coping with the ultimate deprivation: Narrative themes in a parental bereavement support group. Omega: Journal of Death and Dying, 63, 141–160.
72.
VanP. & MeleisA. I. (2002). Coping with grief after involuntary pregnancy loss: Perspectives of African American women. Journal of Obstetric, Gynecologic, & Neonatal Nursing, 32, 28–39.
73.
van der HouwenK.StroebeM.SchutH.StroebeW. & van den BoutJ. (2010). Online mutual support in bereavement: An empirical examination. Computers in Human Behavior, 26, 1519–1525.
74.
WarlandJ.O'LearyJ. & McCutcheonH. (2011). Born after infant loss: The experiences of subsequent children. Midwifery, 27, 628–633.
WeatherstonD.WeigandR. & WeigandB. (2010). Reflective supervision: Supporting reflection as a cornerstone for competency. Zero to Three, 31, 22–29.
77.
Wegner-HayM. (1998). Embracing Laura: The grief and healing following the death of an infant twin. Omaha, NE: Centering Corporation.
78.
Wen-YingS. C.HuntY. M. K.BeckjordE. B.MosereR. P. & HesseB. W. (2009). Social media use in the United States: Implications for health communication. Journal of Medical Research, 11(4), e48.
79.
WilkeJ. & LimboR. (2011). Benefits of bereavement follow-up calls. Children's Project on Palliative/Hospice Services (ChiPPS) Newsletter, 23, 36–41.
80.
WilkeJ. & LimboR. (Eds.). (2012). Bereavement training in perinatal death(8th ed.). La Crosse, WI: Gundersen Lutheran Medical Foundation, Inc.
81.
WolfeltA. (2004). The understanding your grief support group guide: Starting and leading a bereavement support group. Fort Collins, CO: Companion Press.
82.
WorthN. (1997). Becoming a father to a stillborn child. Clinical Nursing Research, 6, 71–89.
83.
YalomI. D. & MolynL. (2005). The theory and practice of group psychotherapy. New York: Basic Books.
