This study of the experiences of seventy-six Black and eighty-six Hispanic caregivers of Alzheimer's relatives sought to determine the factors characterizing the caregiving process and its outcomes, particularly personal and role strain, in each group. The findings reveal that Hispanics are more vulnerable to each type of strain and this may be partially attributed to their caring for more impaired relatives, their younger ages, and comparative lack of expressive supportive relationships. The mediating role played by culture and informal supports in the caregiving process is highlighted by the results as well as the need for the development of sensitive and appropriate interventions and supports.
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References
1.
ChenowethB. and SpencerB., The Experience of Family Caretakers, The Gerontologist, 26:3, pp. 267–272, 1986.
2.
GeorgeL. K. and GwytherL. P., Caregiver Well-Being: A Multi-Dimensional Examination of Family Caregivers of Demented Adults, The Gerontologist, 26:3, pp. 253–259, 1986.
3.
BirkelR. C. and JonesC. J., A Comparison of the Caregiving Networks of Dependent Elderly Who are Lucid and Those Who are Demented, The Gerontologist, 29:1, pp. 113–120, 1989.
4.
U.S. Congress Office of Technology Assessment, Confused Minds, Burdened Families: Finding Help for People with Alzheimer's and Other Dementias, OTA-BA-403, U.S. Government Printing Office, Washington, 1990.
5.
MutranE., Intergenerational Family Support among Blacks and Whites: Response to Culture or Socioeconomic Differences, Journal of Gerontology, 40:3, pp. 382–389, 1985.
6.
GeorgeL. K., Social Participation in Later Life, in The Black American Elderly, JacksonJ. (ed.), Springer, New York, pp. 238–258, 1988.
7.
GibsonR. C. and JacksonJ. C., The Health, Physical Functioning, and Informal Supports of the Black Elderly, Millbank Memorial Fund Quarterly, 65(Supplement 2), pp. 421–454, 1987.
8.
TaylorR. J., Aging and Supportive Relationships among Black Americans, in The Black American Elderly, JacksonJ. (ed.), Springer, New York, pp. 259–281, 1988.
9.
JohnsonC. L. and BarerB. M., Families and Networks among Older Inner-City Blacks, The Gerontologist, 30:6, pp. 726–733, 1990.
10.
CoxC. and MonkA., Black and Hispanic Caregivers of Dementia Victims: Their Needs and Implications for Services, in Ethnic Elderly and Long Term Care, BaressiC. and StullD. (eds.), Springer, New York, pp. 57–68, 1993.
11.
CoxC., Service Needs and Interests: A Comparison of African American and White Caregivers Seeking Alzheimer's Assistance, American Journal of Alzheimer's Care and Related Disorders Research, 8:3, pp. 33–40, 1993.
12.
SotomayorM. and ApplewhiteS., The Hispanic Elderly and the Extended Multigenerational Family, in The Hispanic Elderly in Transition, ApplewhiteS. (ed.), Greenwood, Westport, pp. 121–134, 1988.
13.
CoxC. and GelfandD. E., Familial Assistance, Exchange, and Satisfaction among Hispanic, Portuguese, and Vietnamese Elderly, Journal of Cross-Cultural Gerontology, 2:3, pp. 241–255, 1987.
14.
Cruz-LopezM. and PearsonR. E., The Support Needs of Puerto Rican Elderly, The Gerontologist, 22:5, pp. 254–259, 1985.
15.
CubillosH. and PrietoM., The Hispanic Elderly: A Demographic Profile, National Council of La Raza, Washington, 1987.
16.
CoxC. and MonkA., Hispanic Culture and Family Care of Alzheimer's Patients, Health and Social Work, 18:2, pp. 92–103, 1993.
17.
PearlinL. I.MullanJ. T.SempleS. J., and SkaffM. M., Caregiving and the Stress Process: An Overview of Concepts and Their Measures, The Gerontologist30:5, pp. 583–594, 1990.
18.
SkaffM. M. and PearlinL. I., Caregiving: Role Engulfment and the Loss of Self, The Gerontologist, 32:6, pp. 656–664, 1992.
19.
StollerE. P. and PugliesiK. L., Other Roles of Caregivers: Competing Responsibilities or Supportive Sources, Journal of Gerontology, 54:6, pp. S231–S238, 1989.
20.
PruchnoR. A. and ReschN. L., Aberrant Behaviors and Alzheimer's Disease: Mental Health Effects of Spouse Caregivers, Journal of Gerontology, 44:5, pp. S177–S182, 1989.
21.
RankinE. D.HuntM. W., and KeeoverR. F., Clinical Assessment of Family Caregivers in Dementia, The Gerontologist, 32:6, pp. 813–821, 1992.
22.
ZaritS. and ZaritJ., The Memory and Behavior Problem Checklist-1987R and the Burden Interview, Technical Report, University of Pennsylvania, University Park, 1987.
23.
ZaritS.OrrN., and ZaritJ., The Hidden Victims of Alzheimer's Disease: Families Under Stress, New York University Press, New York, 1985.
24.
WhitlachC. J.ZaritS. H., and von EyeA., Efficacy of Interventions with Caregivers: A Reanalysis, The Gerontologist, 31:1, pp. 9–14, 1991.
25.
The Commonwealth Fund Commission on Elderly People Living Alone, Poverty and Poor Health among Elderly Hispanic Americans, The Commonwealth Fund Commission, Baltimore, 1989.
26.
ZaritS. H.ToddP. A., and ZaritJ. M., Subjective Burden of Husbands and Wives as Caregivers: A Longitudinal Study, The Gerontologist, 26:3, pp. 260–266, 1986.
27.
MoryczR. K.MalloyJ.BozichM., and MartzP., Racial Differences in Family Burden: Clinical Implications for Social Work, Journal of Gerontological Social Work, 10:1/2, pp. 133–152, 1987.
28.
BastidaE., Issues of Conceptual Discourse in Ethnic Research and Practice, in Ethnic Dimensions of Aging, GelfandD. and BarresiC. (eds.), Springer, New York, pp. 51–63, 1987.
29.
ChattersL. M. and TaylorR. J., Life Problems and Coping Strategies of Older Black Adults, Social Work, 34:4, pp. 313–319, 1989.
