This brief review considers the psychiatric aspect of a child's dying from terminal illness. Much of the literature is largely theoretical, illustrated by case histories and clinical observations. Only recently has research been published based on empirical analyses of grief reactions in the child. There is no corresponding empirical research on the grief reactions of parents and siblings, or of the medical staff that cares for the terminally ill child. A review in this area points out the need for more integration of theoretical, clinical, and empirical work, including all aspects of a dying child's environment.
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References
1.
FreudS., The Interpretation of Dreams, StracheyJ., (ed. and trans.), McMillan, New York, 1965.
2.
NagyM., The Child's Theories Concerning Death, J. Genet. Psychol., 73, pp. 3–27, 1948.
3.
NattersonJ. M. and KnudsonA. J., Observations Concerning the Fear of Death in Fatally Ill Children and their Mothers, Psychosom. Med., 22, pp. 456–465, 1960.
4.
AnthonyJ., The Discovery of Death in Childhood and After, Basic Books, New York, 1971.
5.
VoreD. A., A Child's View of Death, Editorial, South Med., 67, pp. 383–385, 1974.
6.
MorrisseyJ. R., Death Anxiety in Children With Fatal Illness, Amer. J. Psychother., 18, pp. 606–615, 1964.
7.
SchowalterJ. E., The Child's Reaction to His Own Terminal Illness, Loss and Grief: Psychological Management in Medical Practice, SchoenbergB.CarrA. C.PeretzD. and KutscherA. H., (eds.), Columbia University Press, New York, 1970.
8.
EassonW. M., The Dying Child: The Management of a Child or Adolescent Who is Dying, C. C. Thomas, Springfield, Illinois, 1970.
9.
AdlerC. S., The Meaning of Death to Children, Arizona Med., 26, pp. 266–276, 1969.
10.
PiagetJ., The Child's Conception of the World, Littlefield, Adams and Company, Totowa, New Jersey, 1952.
11.
ArthurB. and KermM. L., Bereavement in Childhood, J. Child Psychol. and Psychiat., 5, pp. 37–49, 1964.
12.
AlexanderJ. E. and AdelensteinA. M., Affective Responses to the Concept of Death in a Population of Children and Early Adolescents, J. Genet. Psychol., 93, pp. 167–177, 1958.
13.
MaurerA., Adolescent Attitudes Toward Death, J. Genet. Psychol., 105, pp. 75–90, 1964.
14.
EassonW. M., Care of the Young Patient Who is Dying, J. A. M. A., 205, pp. 203–207, 1968.
15.
MooreD. C.HoltonC. P. and MartenG. W., Psychologic Problems in the Management of Adolescents with Malignancy, Clin. Ped., 8, pp. 464–473, 1969.
16.
Bluebond-LangnerM., I Know, Do You? A Study of Awareness, Communication and Coping in Terminally Ill Children, Anticipatory Grief, SchoenbergB.CarrA. C.KutscherA. W.PeretzS. and GoldbergI., (eds.), Columbia University Press, New York, 1974.
17.
OremlandE. K. and OremlandJ. D., The Effects of Hospitalization on Children, Chas. C. Thomas, Springfield, Illinois, 1973.
18.
Kubler-RossE., The Language of Dying, J. Child. Clin. Psychol., 3, pp. 22–24, 1974.
19.
WaechterE. H., Death Anxiety in Children with Fatal Illness, Doctoral Dissertation, Stanford University, Ann Arbor, Michigan, University Microfilms No. 69-310, 1968.
20.
WaechterE. H., Children's Awareness of Fatal Illness, Amer. J. Nurs., 71, pp. 1168–1172, 1971.
21.
SpinettaJ. J., Death Anxiety in Leukemic Children, Doctoral Dissertation, University of Southern California, Ann Arbor, Michigan, University Microfilms, No. 72-26, 056, 1972.
22.
SpinettaJ. J., The Dying Child's Awareness of Death, A Review, Psychol. Bull., 81, pp. 256–260, 1974.
23.
SpinettaJ. J.RiglerD. and KaronM., Anxiety in the Dying Child, Pediatrics, 52, pp. 841–845, 1973.
24.
SpinettaJ. J. and MaloneyL. J., Death Anxiety in the Outpatient Leukemic Child, Pediatrics, 56, pp. 1034–1037, 1975.
25.
SarasonS. B.LighthallG. G.DavidsonK. I.WaiteR. R. and RushbushB. K., Anxiety in Elementary School Children, John Wiley, New York, 1960.
McCullyR. S., Fantasy Productions of Children With Progressively Crippling and Fatal Illness, J. Genet. Psychol., 102, pp. 203–216, 1963.
28.
BowlbyJ., Grief and Mourning in Infancy and Early Childhood, Psychoanal. Stud. Child, 15, pp. 9–52, 1960.
29.
LewisS.HortonF. and ArmstrongS., Problems in Measuring Distress in Fatally and Chronically Ill Children, Vanderbilt University, Department of Psychiatry, 1976, in preparation.
30.
LindemannE., Symptomatology and Management of Acute Grief, Amer. J. Psychiat., 101, pp. 141–148, 1944.
31.
NorthrupF. C., The Dying Child, Amer. J. Nurs., 74, pp. 1066–1068, 1974.
32.
FriedmanS. B., Care of the Family of the Child With Cancer, Pediatrics, 40, pp. 498–507, 1967.
33.
FriedmanS.ChodoffP.MasonJ. and HamburgD., Behavioral Observations on Parents Anticipating the Death of a Child, Pediatrics, 32, pp. 610–624, 1963.
34.
VernickJ. and KaronM., Who's Afraid of Death on a Leukemia Ward?, Amer. J. Dis. Child, 109, pp. 393–397, 1965.
35.
FishoffJ. and O'BrienN., After a Child Dies, Pediatrics, 88, pp. 140–146, 1976.
36.
FuttermanE. H. and HoffmanI., Crisis and Adaptation in the Families of Fatally Ill Children, The Child in His Family: The Impact of Disease and Death, AnthonyE. J. and KoupernikC., (eds.), John Wiley, New York, 2, 1973.
37.
BozemanM. F.OrbachC. E. and SutherlandA. M., Impact of Cancer and its Treatment III, The Adaptation of Mothers to the Threatened Loss of Their Children Through Leukemia, Part 1, Cancer, 8, pp. 1–33, 1955.
38.
FuttermanE. H.HoffmanI. and SabshinM., Parental Anticipatory Mourning, Psychosocial Aspects of Terminal Care, SchoenbergB.CarrA. C.PeretzD. and KutscherA. H., (eds.), Columbia University Press, New York, 1972.
39.
BartonD.FlexnerM.Van EysJ. and ScottE., Death and Dying: A Course for Medical Students, J. Med. Educ., 47, pp. 946–951, 1972.
40.
TropauerA.FranzM. N. and DilgardV. W., Psychological Aspects of the Care of Children With Cystic Fibrosis, Amer. J. Dis. Child, 119, pp. 424–432, 1970.
41.
WilliamsS. J., An Editor's Reflections … Death and Children, J. Clin. Child. Psychol., 3, pp. 4–5, 1974.
42.
WeismanA. D., Coping With Untimely Death, Psychiat., 36, pp. 366–378, 1973.
43.
KennellJ. H. and KlausM. H., Caring for Parents of an Infant Who Dies, Maternal-Infant Bonding, KlausM. H. and KennellJ. H., (eds.), The C. V. Mosley Company, St. Louis, Missouri, 1976.
44.
BingerC.AblinA.FeuersteinR.KushnerJ.ZagerS. and MikkelsonC., Childhood Leukemia: Emotional Impact on Patient and Family, New Engl. J. Med., 280, pp. 414–418, 1969.
45.
MursteinB. J., The Effect of Long-Term Illness of Children on the Emotional Adjustment of Parents, Child Devel., 31, pp. 157–171, 1960.
46.
GreenM., Care of the Dying Child, In the supplement to Pediatrics, “Care of the Child With Cancer,”40, pp. 492–497, 1967.
47.
BartonD., The Need for Including Instruction on Death and Dying in the Medical Curriculum, J. Med. Educ., 47, pp. 169–175, 1972.
48.
SolnitA. J. and GreenM., Psychologic Considerations in the Management of Deaths on Pediatric Hospital Services, 1, The Doctor and the Child's Family, Pediatrics, 24, pp. 106–112, 1959.
49.
SchultzR. and AdermanD., How the Medical Staff Copes With Dying Patients: A Critical Review, Omega, 7, pp. 11–12, 1976.
50.
RothenbergM., Reactions of Those Who Treat Children With Cancer, Pediatrics, 40, p. 507, 1967.
51.
WienerJ. M., Response of Medical Personnel to the Fatal Illness of a Child, Loss and Grief: Psychological Management in Medical Practice, SchoenbergB.CarrG. C.PeretzS. and KutscherA. H., (eds.), Columbia University Press, New York, 1970.
52.
QuintJ. C. and StraussA. L., Nursing Students, Assignments and Dying Patients, Nurs. Outlook., 12, pp. 24–27, 1964.
