The authors examined the effects of HIV infection on the family system as reported by 48 caregivers of HlV-exposed children. Respondents completed the Impact on Family Scale (IFS) as part of their participation in the study. Results showed that the psychological burden of the illness was significantly related to the child's HIV status; financial burden, social/familial Impact, and psychological burden of the Illness were significantly related to the caregiver's HIV status; psychological burden and social/familial impact differed as a function of the child's and caregiver's HIV status; and the Impact of HIV infection differed as a function of the caregiver relationship. Implications of the findings for service delivery are discussed.
BelmanA. L., DiamondG., DicksonD., HoroupianD., LlenaJ., LantosG., & RubinsteinA. (1988). Pediatric acquited immunodeficiency syndrome. American Journal of Diseases of Children, 142, 29–35.
3.
Centers for Disease Control and Prevention. (1995, December). HIV/AIDS surveillance report.Washington, DC: U.S. Department of Health and Human Services.
4.
DiamondG. W. (1989). Developmental problems in children with HIV infection. Mental Retardation, 27, 213–217.
5.
GiaquintoC., GiacometV., PagliaroA., RugaE., CozzaniS., D'EliaR., & NewelM. L. (1992). Social care of children born to HIV-infected parents. Lancet, 339, 189–190.
6.
MugR. (1986). Children with AIDS. American Journal of Nursing, 86, 1126–1132.
7.
LesarS., GerberM. M., & SemmelM. I. (1995). HIV infection in children: Family stress, social support and adaptation. Exceptional Children, 62, 224–236.
8.
NicholasS. W., AbramsE. J., & HeagartyM. C. (1992). The organization and delivery of health care for HIV-infected children and their families. In YogevR., & ConnerE. (Eds.), Management of HIV infection in infants and children (pp. 23–35). St. Louis, MO: Mosby Year Book.
9.
NovickL. F., GlebatisD. M., StricofR. L., MacCubbinP. A., LessnerL., & BernsD. S. (1991). Newborn sero-prevalence study: Methods and results. American Journal of Public Health, 81(Supplement), 15–21.
10.
PattersonJ. M., & McCubbinH. I. (1983). Chronic illness: Family stress and coping. In FigleyC. R., & McCubbinH. I. (Eds.), Stress and the family: Vol. II, Coping with catastrophe (pp. 21–36). New York: Brunner/Mazel.
11.
PlanteM. C. (1987). Caring for the AIDS patient. In GongV., & RudnickN. (Eds.), AIDS: Facts and issues (pp. 217–233). New Brunswick, NJ: Rutgers University Press.
12.
SherwenL. N., BolandM., & GilchristM. (1993). Stress, coping and perception of child vulnerability in female caretakers of HIV-infected children: A preliminary report. Pediatric AIDS and HIV Infection: Fetus to Adolescent, 4, 358–366.
13.
SimondsR. J., & RogersM. F. (1992). Epidemiology of HIV infection in children and other populations. In CrockerA. C., CohenH. J., & KastnerT. A. (Eds.), HIV infection and developmental disabilities (pp. 3–13). Baltimore, MD: Brookes Publishing.
14.
SteinR. E., & JessopD. J. (1985). Table documenting the psychometric properties of a measure of the impact on [sic] chronic illness on a family. Unpublished manuscript, Department of Pediatrics, Albert Einstein College of Medicine, Bronx, NY.
15.
SteinR. E., & RiessmanC. K. (1980). The development of an Impact-on-Family Scale. Preliminary findings. Medical Care, 18, 465–472.
16.
UltmannM. H., DiamondG. W., RuffH. A., BelmanA. L., NovickB. E., RubinsteinA., & CohenH. J. (1987). Developmental abnormalities in children with acquired immunodeficiency syndrome (AIDS): A follow-up study. International Journal of Neuroscience, 32, 661–667.
17.
WienerL., & SeptimusA. (1991). Psychosocial consideration and support for the child and family. In PizzoP. A., & WilfertC. M. (Eds.), Pediatric AIDS: The challenge of HIV infection in infants, children, and adolescents (pp. 577–594). Baltimore, MD: Williams & Wilkins.
