This article reports on family life for a group of individuals living with HIV/AIDS from Winnipeg, Manitoba, and Regina, Saskatchewan, Canada. Participants took photos of people and things that provided support to deal with their disease; they then described the photos, and their narratives were used as data points for this analysis. Eight themes were revealed, and we report on one, family life, which has three subthemes: (a) family separation, shown across the life cycle, from adoption of respondents or of their children; from illness or death of parents, siblings, or offspring; and from physical separation; (b) family support (or lack thereof); and (c) family violence, either physical or psychological, that was frequent and formed the context for interaction. These subthemes are discussed and implications for practice and research are presented.
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References
1.
BorweinA., SalterK. A., PalmerA. K., MillerC. L., DuncanK. C., ChanK., … HoggR. S. (2014). High rates of lifetime and recent violence observed among harder-to-reach women living with HIV.AIDS Care, 26, 587-594. doi:10.1080/09540121.2013.844763
2.
ChaseR., MedinaM. F., & MignoneJ. (2012). The Life Story Board: A feasibility study of a visual interview tool for school counsellors.Canadian Journal of Counselling and Psychotherapy, 46(3), 183–200.
3.
CiambroneD. (2002). Informal networks among women with HIV/ AIDS: Present support and future prospects.Qualitative Health Research, 12, 876–896.
4.
ClingermanE. (2004). Physical activity, social support, and health-related quality of life among persons with HIV disease.Journal of Community Health Nursing, 21, 179–197.
5.
DemoD. H., AquilinoW. S., & FineM. A. (2005). Family composition and family transition. In BengtsonV. L., AcockA. C., AllenK. R., DilworthP.-Anderson, & KleinD. M. (Eds.), Sourcebook of family theory and research (pp. 119–142). Thousand Oaks, CA: SAGE.
6.
EustaceR. W. (2013). A discussion of HIV/AIDS family interventions: Implications for family-focused nursing practice.Journal of Advanced Nursing, 69, 1660–1673.
7.
FosterG., LevineC., & WilliamsonJ. (Eds.). (2006). A generation at risk: The global impact of HIV/AIDS on orphans and vulnerable children. New York, NY: Cambridge University Press.
8.
GielenA. C., McDonnellK. A., WuA. W., O'CampoP., & FadenR. (2001). Quality of life among women living with HIV: The importance of violence, social support, and self-care behaviors.Social Science and Medicine, 52, 315–322.
9.
HawkinsK., ReadingC., & BarlowK. (2009). Our search for safe spaces: A qualitative study of the role of sexual violence in the lives of Aboriginal women living with HIV/AIDS. Vancouver, British Columbia, Canada: Canadian Aboriginal AIDS Network.
10.
HeinilaH. S. (2009). How domestic skills turn out to be the art of everyday life: Phenomenological attitude as a research method in the field of home economics.Family and Consumer Sciences Research Journal, 38, 158–167.
11.
HoughE. S., MagmanM. A., TemplinT., & GadelrabH. F. (2005). Social network structure and social support in HIV-positive inner city mothers.Journal of the Association of Nurses in AIDS Care, 16, 14–24.
12.
KadushinG. (1999). Barriers to social support and support received from their families of origin among gay men with HIV/AIDS.Health and Social Work, 24, 109–210.
13.
LarkinJ., FlickerR., Koleszar-GreenR., MintzS., DagninoM., & MitchellC. (2007). HIV risk, systemic inequities, and aboriginal youth: Widening the circle for HIV prevention programming.Canadian Journal of Public Health, 98(3), 179–182.
14.
LawrenchukR., & HarveyC. D. H. (2000). Parent participation in a Cree and Ojibway Head Start program. In OakesJ., RieweR., KoolageS., SimpsonL., & SchusterN. (Eds.), Aboriginal health, identity and resources (pp. 83–92). Winnipeg, Manitoba, Canada: Departments of Native Studies and Zoology, and Faculty of Graduate Studies, University of Manitoba.
15.
LawrenchukR., & HarveyC. D. H. (2001). Cultural adaptation and change: Aboriginal peoples in Manitoba maintain their differences. In HarveyC. D. H. (Ed.), Maintaining our differences: Minority families in multicultural societies (pp. 71–88). Aldershot, United Kingdom: Ashgate.
16.
LesyK. (2013). Integration of HIV/AIDS services with maternal, neonatal and child health, nutrition and family planning services.Public Health Nursing, 30(5), 451–454.
17.
McGoldrickM., GersonR., & PetryS. (2008). Genograms: Assessment and intervention (3rd ed.). New York, NY: W.W. Norton.
18.
MignoneJ. (2013). Social determinants of HIV/AIDS: Implications for policies in emerging markets countries.International Journal of Business and Emerging Markets, 5(1), 83–97.
19.
MignoneJ., PinderaC., DavisJ., MigliardiP., & HarveyC. D. H. (2010). Photography and theatre in HIV research: The caregiving network. In McLeanC. and KellyR. (Eds.), Creative arts in interdisciplinary practice: Inquiries for home and change (pp. 95–96). Calgary, Alberta, Canada: Detselig Enterprises.
20.
MignoneJ., PinderaC., DavisJ., MigliardiP., HarveyC., BendigM., … ElliottL. (2011). Social supports, informal caregiving and HIV/AIDS: A community-based study. Winnipeg, Manitoba, Canada: Nine Circles Community Health Centre.
21.
PlamondonK., & de BruinP. (2009). Bridging services with community voices around drug injection use: Results and recommendations from an assessment of harm reduction needs in the Saskatoon area. Saskatoon, Saskatchewan, Canada: Saskatoon Health Region and Mount Royal College.
22.
Public Health Agency of Canada. (2010). Population-specific HIV/ AIDS status report: Aboriginal peoples. Ottawa, Ontario, Canada: Government of Canada.
23.
Public Health and Primary Care Division. (2010). Manitoba health statistical update: HIV and AIDS. Winnipeg, Manitoba, Canada: Manitoba Government.
24.
RhodesR. (2008). An answer to human violence (Family Focus on Child Abuse and Neglect [FF40]). NCFR Report Magazine, 1-5. Minneapolis, MN: National Council on Family Relations.
25.
RonkaA., & KorvelaP (2009). Everyday family life: Dimensions, approaches, and current challenges. Journal of Family Theory and Review, 1, 87-102.
26.
Saskatchewan Ministry of Health. (2010). HIV and AIDS Saskatchewan 2009 annual report. Saskatoon, Saskatchewan, Canada.
27.
ShannonK., KerrT., AllinotS., ChettiarJ., ShovellerJ., & TyndallM. (2008). Social and structural violence and power relations in mitigating HIV risk of drug-using women in survival sex work.Social Science and Medicine, 66, 911–921.
28.
SluzkiC. E. (2010). Personal social networks and health: Conceptual and clinical implications of their reciprocal impact.Family Systems & Health, 28, 1–18.
29.
SwendemanD., IngramB. L., & Rotheram-BorusM. J. (2009). Common elements in self-management of HIV and other chronic illnesses: An integrative framework.AIDS Care, 21(10), 1321–1334.
30.
TollieM. A. (2009). A package of primary health care services for comprehensive family-centered HIV/AIDS care and treatment programs in low income settings.Tropical Health and International Medicine, 14, 633–673.
31.
Tuomi-GrohnT. (2008). Introduction. In Tuomi-GrohnT. (Ed.), Reinventing art of everyday making (pp. 1–25). Bern, Switzerland: Peter Lang.
32.
WacharasinC. (2010). Families suffering with HIV/AIDS: What family nursing interventions are useful to promote healing?Journal of Family Nursing, 16(3), 302–321.
33.
WangC., & BurrisM (1997). Photovoice: Concept, methodology, and use for participatory needs assessment.Health Education Behaviour, 24(3), 369–387.
34.
WoodE., MontanerJ., & LiK. (2008). Burden of HIV infection among aboriginal injection drug users in Vancouver, British Columbia.American Journal of Public Health, 98, 515–519.
