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Abstract

Families exert a powerful influence upon their members and can be a significant resource in cleft palate treatment. The purposes of this study were to gather information about (1) the characteristics and attitudes of families whose children are treated for cleft palate; (2) the extent to which parents participate in decisions about treatment; and (3) parents' ideas about their participation. A 32-item survey questionnaire was distributed to 75 parents in Florida, Louisiana, Minnesota, and Pennsylvania. Forty-two survey forms (56%) were completed and returned for analysis. The majority of parents (57%) were satisfied with their present involvement in team treatment services; however, 36% wished for more involvement, and 7% wished for less involvement.

Keywords

cleft palate families management parents treatment

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References

Bailey

, Buysse

, Edmundson

, Smith

. Family-centered services in early intervention: perceptions of professionals in four slates. Except Child 1992; 59: 298–309.

Bleiberg

, Leubling

. Parent responsibility in cleft palate habilitation. Cleft Palate J 1970; 7: 630–638.

Bradley

. A study of parental counseling regarding cleft palate patients. Cleft Palate Bull 1960; 10: 71–72.

Decker

. A comparison of the individualized education plans and the individualized family service plan. Am J Occup Ther 1992; 46: 247–252.

Doernberg

. The parent as a team member. In: Geiselman LA, Project Director. The art and science of parenting the disabled child. Chicago, IL: National Easter Seal Society, 1976: 2–6.

Goodstein

. Psychological aspects of cleft palate. In: Spriestersbach

, Sherman

, eds. Cleft palate and communication. New York: Academic Press, 1968: 201–224.

Hill

. An investigation of the attitudes and information possessed by parents of children with clefts of the lip and palate. Cleft Palate Bull 1956; 6: 3–4.

McWilliams

, Morris

, Shelton

. Cleft palate speech. Philadelphia: BC Decker, 1984.

Nackashi

, Dixon-Wood

. The craniofacial team: medical supervision and coordination. In: Bzoch

, ed. Communicative disorders related to cleft lip and palate. Boston: College-Hill Press, 1989: 63–73.

10.

Pannbacker

, Schneiderman

. Rehabilitation of cleft palate: parents and professionals, a unifying model. Rehabil Lit 1977; 38: 178–186.

11.

Paynter

, Edmonson

, Jordan

. Accuracy of information reported by parents and children evaluated by a c left palate team. Cleft Pal ate J 1991; 28: 329–337.

12.

Paynter

, Jordan

, Finch

. Patient compliance with cleft palate regimens. J Speech Hear Disord 1990; 55(4): 740–750.

13.

Spriestersbach

. Psychosocial aspects of the cleft palate problem. Iowa City, IA: University of Iowa Press, 1973.

14.

Walesky-Rainbow

, Morris

. An assessment of informative counseling procedures for cleft palate children. Cleft Palate J 1978; 15: 20–28.

Parents' Attitudes toward Family Involvement in Cleft Palate Treatment

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