Development of a Web-based bone marrow transplant registry system

Abstract

A secure Web-based bone marrow transplant (BMT) registry tool has been developed inside an existing portal for paediatric oncology. The registry ensures identity protection and facilitates data organization and analysis. The registration interface is based on a Portuguese translation of the International Bone Marrow Transplantation Registry (IBMTR) forms. The objectives are to improve the information flow in collaborative BMT research protocols and to facilitate registration of BMT patients, thus improving data analysis and statistics. The system imports pre-existing data from the patient registry on the portal and has an interface that guides the user about completing the data fields according to the diagnosis. It also performs real-time data validation. After completion, the information is kept on the database for future use and the system generates an IBMTR printout form, translated into English, to be sent to the IBMTR centre.