The use and perceptions of routine health data: a qualitative study of four cancer network teams in England

Abstract

Health service managers have been criticized for placing more emphasis on the collection of data than on their use for the improvement of care. The present study examined how routine aggregate data on cancer services are perceived by management teams and how such data are used to inform strategic decision-making and planning. Semi-structured interviews were conducted with 19 members of four cancer network teams in England. The interviews were transcribed and thematically analysed independently by two researchers. Respondents said that routine aggregate data were not highly prioritized as an information resource, although their use had produced some beneficial impacts, such as reduced waiting times. Limited use of aggregate data appeared to relate to problems of accessibility, lack of resources to turn the data into meaningful information and service improving action, and poor data quality and relevance. These factors apparently lead to inability or reluctance to use routine data to monitor and improve cancer services at the network level. Data-user concerns should be addressed to facilitate greater use of available routine data.