Objective: Peer-support interventions have shown no statistically significant or clinically meaningful effect on quality of life (QOL) or depressive symptoms for multiple sclerosis (MS) patients. Peer-support interventions for MS generally provide support but no skills training. The aim of this study was to evaluate a brief telephone-administered skills-training model of peer-support for patients with MS. Methods: Sixteen patients with MS showing signs of moderate distress received eight sessions of telephone-administered peer support (TAPS). TAPS is a manualized programme administered by peer-support counsellors diagnosed with MS. Using a workbook, peer-support counsellors teach skills to manage distress and MS symptoms. Subjective depression was assessed using the Center for Epidemiological Studies Depression Scale while objective depression was rated using the Hamilton Rating Scale for Depression. QOL was measured preand post-treatment using the SF-36. Results: The participants showed significant improvements on both the CESD (p=0.04) and the HRSD (p=0.01). Overall QOL improved significantly (p=0.045), however this was not reflected in either the Physical Health composite score or the Mental Health Composite Scale (p-0.17). Conclusions: These findings suggest that TAPS may prove to be an efficacious peer-support model for patients with MS.
Messmer Uccelli M , Mancuso Mohr L , Battaglia MA , Zagami P , Mohr DC.Peer support groups in multiple sclerosis: current effectiveness and future directions . Mult Scler2004; 10: 80-84 .
2.
Droge D , Arnston P , Norton R.The social support function in epilepsy self-help groups . Small Group Behav1986; 17: 139-161 .
3.
Lorig KR , Holman H.Self-management education: history, definition, outcomes, and mechanisms . Ann Behav Med2003; 26: 1-7 .
4.
Lorig KR , Ritter P , Stewart AL , Sobel DS , Brown BW Jr , Bandura Aet al.Chronic disease self-management program: 2-year health status and health care utilization outcomes . Med Care2001; 39: 1217-1223 .
5.
Curran VR , Church JG.A study of rural women’s satisfaction with a breast cancer self-help network . J Telemed Telecare1999; 5: 47-54 .
6.
Schwartz CE.Teaching coping skills enhances quality of life more than peer support: results of a randomized trial with multiple sclerosis patients . Health Psychol1999; 18: 211-220 .
7.
Helgeson VS , Cohen S , Schulz R , Yasko J.Education and peer discussion group interventions and adjustment to breast cancer . Arch Gen Psychiatry1999; 56: 340-347 .
8.
Lorig KR , Sobel DS , Stewart AL , Brown BWJ , Bandura A , Ritter Pet al.Evidence suggesting that a chronic disease self-management program can improve health status while reducing hospitalization: a randomized trial . Med Care1999; 37: 5-14 .
9.
Lorig K , Lubeck D , Kraines RG , Seleznick M , Holman HR.Outcomes of self-help education for patients with arthritis . Arthritis Rheum1985; 28: 680-685 .
10.
Von Korff M , Moore JE , Lorig K , Cherkin DC , Saunders K , Gonzalez VMet al.A randomized trial of a lay person-led self-management group intervention for back pain patients in primary care . Spine1998; 23: 2608-2615 .
11.
Rene J , Weinberger M , Mazzuca SA , Brandt KD , Katz BP.Reduction of joint pain in patients with knee osteoarthritis who have received monthly telephone calls from lay personnel and whose medical treatment regimens have remained stable . Arthritis Rheum1992; 35: 511-515 .
12.
Mohr DC , Boudewyn AC , Goodkin DE , Bostrom A , Epstein L.Comparative outcomes for individual cognitive-behavior therapy, supportive-expressive group psychotherapy, and sertra-line for the treatment of depression in multiple sclerosis . J Consult Clin Psychol2001; 69: 942-949 .
13.
Ware JE , Sherbourne CD.The MOS 36-Item Short-Form Health Survey (SF-36) I. Conceptual framework and item selection . Med Care1992; 30: 473-481 .
14.
Kazis LE , Ren XS , Lee Aet al.Health status in VA patients: results from the Veterans Health Study . Am J Med Qual1999; 14: 28-38 .
15.
Ryff CD.Happiness is everything, or is it? Explorations on the meaning of psychological well-being . J Pers Soc Psychol1989; 57: 1069-1081 .
16.
Ryff CD , Singer B.Psychological well-being: meaning, measurement, and implications for psychotherapy research . Psychother Psychosom1996; 65: 14-23 .
17.
Radloff LS.The CES-D scale: a self-report depression scale for research in the general population . Appl Psychol Meas1977; 1: 385-401 .
18.
Potts MK , Daniels M , Burnam MA , Wells KB.A structured interview version of the Hamilton Depression Rating Scale: evidence of reliability and versatility of administration . J Psychiatr Res1990; 24: 335-350 .
19.
Wechsler D.Wechsler Adult Intelligence Scale, third edition. San Antonio, TX: Psychological Corporation , 1997.
20.
Spreen O , Strauss E.A compendium of neuropsychological tests: administration, norms, and commentary. New York, NY: Oxford University Press , 1998.
21.
Lezak MD.Neuropsychological assessment, third edition. New York, NY: Oxford University Press , 1995.
22.
Sullivan MJL , Weinshenker B , Mikail S , Bishop SR.Screening for major depression in the early stages of multiple sclerosis . Can J Neurol Sci1995; 22: 228-231 .
23.
Frank E , Prien RF , Jarrett RB , Keller MB , Kupfer DJ , Lavori PWet al.Conceptualization and rationale for consensus definitions of terms in major depressive disorder: remission, recovery, relapse, and recurrence . Arch Gen Psychiatry1991; 48: 851-855 .
24.
Mohr DC , Goodkin DE.Treatment of depression in multiple sclerosis: review and meta-analysis . Clin Psychol Sci Pract1999; 6: 1-9 .
25.
Zivadinov R , Zorzon M , Tommasi MA , Nasuelli D , Bernardi, M , Monti-Bragadin Let al.A longitudinal study of quality of life and side effects in patients with multiple sclerosis treated with interferon beta-1a . J Neurol Sci2003; 216: 113-118 .
