During the past 16 years, members of the British Isles Lupus Assessment Group (BILAG) have met on a regular basis and have been instrumental in devising a comprehensive disease activity index and, in association with others in the international rheumatological community, devising and/or testing damage and patients self-assessment indices. The history of what the BILAG group has achieved is set out here and the latest attempts at computerisation and improvements in the Disease Activity Index itself are described.
Liang M , Socher S , Roberts WN , Esdaile JM . Measurement of systemic lupus erythematosus activity in clinical research . Arthritis Rheum1988; 31: 817–825 .
2.
Symmons DPM , Coppock JS , Bacon PA et al. Development and assessment of a computerized index of clinical disease activity in systemic lupus erythematosus . QJM1988; 69: 927–932 .
3.
Hay EM , Bacon PA , Gordon C et al. The BILAG index: a reliable and valid instrument for measuring clinical disease activity in systemic lupus erythematosus . QJM1993; 86: 447–458 .
4.
Gladman D , Ginzler E , Goldsmith C et al. The development and initial validation of the Systemic Lupus International Collaborating Clinics/American College for Rheumatology damage index for systemic lupus erythematosus . Arthritis Rheum1996; 39: 363–369 .
5.
Garratt AM , Ruta DA , Abdalla MI et al. The SF-36 health survey questionnaire: an outcome measure suitable for use in the NHS . Br Med J1993; 306: 1440–1444 .
6.
Smolen JS , Strand V , Cardiel M et al. Randomised clinical trials and longitudinal observational studies in systemic lupus erythematosus: consensus on a preliminary core set of outcome domains . J Rheumatol1999; 26: 504–507 .