Objective: To determine parents' service needs at the start of therapeutic toddler class treatment, to analyse determinants and to investigate received help after a period of 10 months.
Subjects: Parents with motor or multiply disabled children in therapeutic toddler classes.
Setting: Sixteen out of 17 Dutch rehabilitation centres.
Design: A sample of 84 parents, stratified according to toddler class size.
Main outcome measures: A questionnaire of 33 items, divided into five categories, was designed to assess parents' needs and to evaluate the amount of received help. Several measures were used to assess child, parent and family characteristics.
Results: Based on factor analysis, five need subscales were distinguished which only partially corresponded to the initial categories. The initial category concerning needs for help in family functioning did not come out as a factor. Needs expressed most frequently belonged to the three subscales of needs for information concerning the child. The average level of needs generally did not differ for mothers and fathers across the subscales. However, we found large variation in needs for both mothers and fathers on each subscale. The most important, positively correlated determinant of parents' needs was social isolation of the family. After 10 months a considerable level of unmet needs was found.
Conclusions: A systematic and periodic assessment of individual needs of parents as well as the services offered is recommended. Professionals of the therapeutic toddler classes should especially focus on providing parents with information on their child's disability and therapy, community services and parenting.
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References
1.
Bailey DB Jr. Collaborative goal setting with families: resolving differences in values and priorities for services. Top Early Child Spec1988; 7: 59–71.
2.
Bailey DB Jr, Blasco PM. Parents' perspectives on a written survey of family needs. J Early Intervention1990; 14: 196–203.
3.
Bailey DB Jr, Blasco PM, Simeonsson RJ. Needs expressed by mothers and fathers of young children with disabilities. Am J Ment Retard1992; 97: 1–10.
4.
Bailey DB Jr, Simeonsson RJ. Assessing needs of families with handicapped infants. J Spec Educ1988; 22: 117–127.
5.
Milner J, Bungay C, Jellinek D, Hall DMB. Needs of disabled children and their families. Arch Dis Child1996; 75: 399–404.
6.
Paget KD. Fundamentals of Family Assessment. In: Bracken BA ed. The psychoeducational assessment of preschool children, second edition. Boston: Allyn and Bacon, 1991: 514–528.
7.
Rosenbaum PL, King SM, Cadman DT. Measuring processes of caregiving of physically disabled children and their families. I: identifying relevant components of care. Dev Med Child Neurol1992; 34: 103–114.
8.
Sloper P, Turner S. Service needs of families of children with severe physical disability. Child Care Hlth Dev1992; 18: 259–282.
9.
Stallard P, Lenton S. How satisfied are parents of preschool children who have special needs with the services they have received? A consumer survey. Child Care Hlth Dev1992; 18: 197–205.
10.
Wiersema MI, Carlier JM. Stappenplan klantgericht kwaliteit konstrueren in de revalidatie[Plan for the construction of client-centered quality in rehabilitation]. Publication no. 193.891. Utrecht, The Netherlands: NZi, 1993.
11.
Vereniging van Revalidatie Instellingen in Nederland (VRIN)Jaarboek revalidatie: branchegegevens 1996[Yearbook rehabilitation: branch data]. Utrecht, The Netherlands: VRIN, 1996.
12.
Wels PMA, Robbroeckx LMH. Nijmeegse Vragenlijst voor de Opvoedingssituatie[Nijmegen Questionnaire on Child Rearing Situations]. Nijmegen, The Netherlands: University of Nijmegen, Department of Special Education, 1989.
13.
Research Foundation State University of New York. Guide for the uniform data set for medical rehabilitation including the Functional Independence Measure for children (WeeFIM). Buffalo, NY: State University, 1991.
14.
Moor JMH de. Therapeutische peutergroep en revalidatiedagbehandeling: een interventie-onderzoek bij kinderen met motorische stoornissen[The therapeutic toddler class and rehabilitation day care: an intervention study among motor disabled children]. Lisse, The Netherlands: Swets & Zeitlinger, 1987.
15.
Achenbach TM. Manual for the Child Behavior Checklist/2-3 and 1992 Profile. Burlington, VT: University of Vermont Department of Psychiatry, 1992.
16.
Beckman-Bell PJ. Characteristics of handicapped infants: a study of relationships between child characteristics and stress as reported by mothers. Chapel Hill, NC: University of North Carolina, 1980.
17.
Westerlaak JM van, Kropman JA, Collaris JWM. Beroepenklapper[Profession index]. Nijmegen, The Netherlands: University of Nijmegen, Institute for Applied Sciences, 1975.
18.
Guralnick MJ. Effectiveness of early intervention for vulnerable children: a developmental perspective. Am J Ment Retard1998; 102: 319–345.
19.
Hanson MJ, Lynch EW. Early intervention.sImplementing child and family services for infants and toddlers who are at-risk or disabled. Austin: Pro-Ed., 1989.
