Little is known about services for children with autism spectrum disorders (ASD) living in rural areas. The purpose of this study was to examine parent report of access to and satisfaction with services for children with ASD in rural areas and compare results to parents from urban areas. Parents in both groups reported children were diagnosed after the age of 3 and experienced challenges accessing services, trained professionals, and educators. Parents from rural areas reported significantly more difficulty accessing trained physicians and professionals in their areas. The implications of this study and needed future research are discussed.
Autism and Developmental Disabilities Monitoring Network Surveillance Year 2006 Principal Investigators (2009). Prevalence of autism spectrum disorders: Autism and Developmental Monitoring Network. MMWR Surveillance Summaries, 58, 1-20. Retrieved on May 24, 2011 from http://www.cdc.gov/mmwr/preview/mmwrhtml/ss5810a1.htm
2.
American Academy of Pediatrics. (2001). Technical report: The pediatrician's role in the diagnosis and management of autistic spectrum disorders in children. Pediatrics, 107, 1221-1226. http://aappolicy.aappublications.org/index.dtl
3.
American Psychiatric Association. (2000). Diagnostic and statistical manual of mental disorders: DSM-IV-TR. Washington, DC: Author.
4.
Baldwin,L. M., Patanian,M. M., Larson,E. H., Lishner,D. M., Mauksch,L. B., Katon,W. J., Walker,E., & Hart,L. G. (2006). Modeling the mental health workforce in Washington State: Using state licensing data to examine provider supply in rural and urban areas. National Rural Health Association, 22(1), 50-58. doi: 10.1111/j.1748-0361.2006.00003.x
5.
Barnhill,G. P., Polloway,E. A., Sumutka,B. M. (2011). A survey of personnel preparation practices in autism spectrum disorders. Focus on Autism and Other Developmental Disabilities, 26(2), 75-86. doi: 10.1177/1088357610378292
6.
Bitterman,A., Daley,T. C., Misra,S., Carlson,E., & Markowitz,J. (2008). A national sample of preschoolers with autism spectrum disorders: Special education services and parent satisfaction. Journal of Autism and Developmental Disorders, 38, 1509-1517. doi: 10.1007/s10803-007-0531-9
7.
Blane,K., & Borden,C. (2008). The importance of early intervention for autism. The Brown University Child and Adolescent Behavior Letter, 24(6), 1-7. Retrieved from http://www.childresearch.net/RESOURCE/NEWS/index.html
8.
Brosnan,J., & Healy,O. (2011). A review of behavioral interventions for the treatment of aggression in individuals with developmental disabilities. Research in Developmental Disabilities: A Multidisciplinary Journal, 32, 437-446. doi: 10.1016/j.ridd.2010.12.023
9.
Bulgren,J. A. (2002). The educational context and outcomes for high school students with disabilities: The perceptions of parents of students with disabilities. Research Report. Special Education Programs, Washington, D.C., 22p.
10.
Butler,M. A., & Beale,C. L. (1993). Rural–Urban Continuum Codes for Metro and Nonmetro Counties. Washington, DC: U. S. Department of Agriculture.
11.
Chen,C. Y., Liu,C. Y., Su,W. C., Huang,S. L., & Lim,K. M. (2008). Urbanicity-related variation in help-seeking and services utilization among preschool-age children with autism in Taiwan. Journal of Autism and Developmental Disorders, 38, 489-497. doi: 10.1007/s10803-007-0416-y
12.
Ciavaglia,J. (2004, December 30). Report outlines new battle plan for autism.Intelligencer.
13.
Cicchetti,D. V., Lord,C., Koenig,K., Klin,A., & Volkmar,F. R. (2008). Reliability of the ADI-R: Multiple examiners evaluate a single case. Journal of Autism and Developmental Disorders, 38, 764-770. doi: 10.1007/s10803-007-0448-3
DeVincent,C., Gadow,K. D., Strong,G., Schwartz,J., & Cuva,S. (2008). Screening for autism spectrum disorder with the Early Childhood Inventory-4. Journal of Developmental and Behavioral Pediatrics, 29(1), 1-10. doi: 10.1097/DBP.0b013e3181468c32
16.
Eldevik,S., Hastings,R. P., Hughes,C. J., Jahr,E., Eikeseth,S., & Cross,S. (2009). Meta-analysis of early intensive behavioral intervention for children with autism. Journal of Clinical Child and Adolescent Psychology, 38, 439-450. doi: 10.1080/15374410902851739
17.
Hendryx,M. S. (2008). Mental health professional shortage areas in rural Appalachia. The Journal of Rural Health, 24(3), 179-182. doi: 10.1111/j.1748-0361.2008.00155.x
18.
Jacobson,J. W., & Mulick,J. A. (2000). System and cost research issues in treatments for people with autistic disorders. Journal of Autism and Developmental Disorders, 30(6), 585-594. doi: 10.1023/A:1005691411255
19.
Johnson,M. E., Brems,C., Warner,T. D., & Roberts,L. W. (2006). Rural-urban health care provider disparities in Alaska and New Mexico. Administration and Policy in Mental Health Services Research, 33, 504-507. doi: 10.1007/s1 0488-005-0001-7
20.
Jung,L. A., & Bradley,K. D. (2006). Special education services in rural schools: A study of the kindergarten population using the ECLS-K. Rural Special Education Quarterly, 25(4), 25-30. Retrieved from http://acressped.org/publications
21.
Kasari,C., & Rotherman-Fuller,E. (2005). Current trends in psychological research on children with high-functioning autism and Asperger disorder. Current Opinion in Psychiatry, 18, 497–501. doi: 10.1097/01.yco.0000179486.47144.61
22.
Kleinman,J. M., Robins,D. L., Ventola,P. E., Pandey,J., Boorstein,H. C., Esser,E. L., Wilson,L. B., Rosenthal,M. A., Sutera,S., & Verbalis,A. et al. (2008). The modified checklist for autism in toddlers: A follow-up study investigating the early detection of autism spectrum disorders. Journal of Autism and Developmental Disorders, 38, 827-839. doi: 10.1007/s10803-007-0450-9
23.
Knapczyk,D., Chapman,C., Rodes,P. & Chung,H. (2001). Teacher preparation in rural communities through distance education. Teacher Education and Special Education, 24(4), 402-407. Retrieved from tes.sagepub.com\
24.
Liptak,G. S., Benzoni,L. B., Mruzek,D. W., Nolan,K. W., Thingvoli,M., Wade,C. M., & Fryer,G. E. (2008). Disparities in diagnosis and access to health services for children with autism: Data from the National Survey of Children's Health. Journal of Developmental and Behavioral Pediatrics, 29(3), 152-160. doi: 10.1097/DBP.0b013e318165c7a0
25.
Ludlow,B. L., Conner,D., Schecter,J. (2005). Low incidence disabilities and personnel preparation for rural areas: Current status and future trends. Rural Special Education Quarterly, 24(3), 15-24. Retrieved from http://acressped.org/publications
26.
Luiselli,J. K., Cannon,B. O., Ellis,J. T., & Sisson,R. W. (2000). Home-based behavioral intervention for young children with autism/pervasive developmental disorder: A preliminary evaluation of outcome in relation to child age and antensity of service delivery. Autism, 4, 426-438. Retrieved from http://www.uk.sagepub.com/journals/Journal200822
27.
Mandell,D. S., Novak,M. M., & Zubritsky,C. D. (2005). Factors associated with age of diagnosis among children with autism spectrum disorders. Pediatrics, 116, 1480-1486. doi: 10.1542/peds.2005-0185
28.
Morrier,M. J., Hess,K. L., & Heflin,L. J. (2011). Teacher training for implementation of teaching strategies for students with autism spectrum disorders. Teacher Education and Special Education, 34(2), 119-132. doi: 10.1177/1088357610378292
29.
National Research Council (2001). Educating children with Autism. Committee on Educational Interventions for Children with Autism.LordC. and McGeeJ. P. (Eds.). Division of Behavioral and Social Sciences and Education. Washington, DC: National Academy Press.
30.
Odom,S. L., Collett-Klingenberg,L., Rogers,S. J., & Hatton,D. D. (2010). Evidence-based practices in interventions for children and youth with Autism Spectrum Disorders. Preventing School Failure, 54(4), 275-282. doi: 10.1080/10459881003785506
31.
Pathman,D. E., Konrad,T. R., Dann,R., Koch,G. (2004). The retention of primary care physicians in rural health professional shortage areas. American Journal of Public Health, 94, 1723-1729. doi: 10.2105/AJPH.94.10.1723
32.
Penington,R., Horn,C., & Berrong,A. (2009). An evaluation of the differences between big city and small town special education services for students with low incidence disabilities in Kentucky. Rural Special Education Quarterly, 28, 3-9. Retrieved from http://acressped.org/publications.
33.
Rogers,S. J., & Vismara,L. A. (2008). Evidence-based comprehensive treatments for early autism. Journal of Clinical and adolescent psychology, 37(1), 8-38. doi: 10.1080/15374410701817808
34.
Ruble,L. A., Heflinger,C. A., Renfrew,J. W., & Saunders,R. C. (2005). Access and service use by children with autism spectrum disorders in Medicaid Managed Care. Journal of Autism and Developmental Disorders, 35, 3–13. doi: 10.1007/s10803-004-1026-6
35.
Ruble,L.A., & McGrew,J. (2007). Community services outcomes for families & children with autism spectrum disorders. Research in Autism Spectrum Disorders, 1, 360-372. doi: 10.1016/j.rasd.2007.01.002
36.
Ruble,L. A, McGrew,J., Dalrymple,N, & Jung,L. (2010). Examining the quality of IEPs for young children with autism. Journal of Autism and Developmental Disorders, 40, 1459–1470. doi: 10.07/s10803-010-1003-1.
37.
Thomas,C. R., & Holzer,C. E. (2006). The continuing shortage of child and adolescent psychiatrists. Journal of the American Academy of Child and Adolescent Psychiatry, 45, 1023-1031. doi: 10.1097/01.chi.0000225353.168 31.5d
38.
Thomas,K. C., Ellis,A. R., McLaurin,C., Daniels,J., & Morrissey,J. P. (2007). Access to care for Autism-related services. Journal of Autism and Developmental Disorders, 37, 1902-1912. doi: 10.1007/s10803-006-0208-9
39.
Thomas,K. C., Morrissey,J. P., & McLaurin,C. (2007). Use of Autism-related services by families and children. Journal of Autism and Developmental Disorders, 37, 818-829. doi: 10.1007/s10803-006-0208-9
Young,A., Ruble,L. A., & McGrew,J. (2009). Public vs. private insurance: Cost, use, accessibility, and outcomes of services for children with autism spectrum disorders. Research in Autism Spectrum Disorders, 3, 1023-1033. doi: 10.1016/j.rasd.2009.06.006
