COG KidsCare App Improves Caregivers’ Perceived Education and Support During Their Child's Cancer Journey

Abstract

Background: The Children's Oncology Group (COG) KidsCare App (App) is an mHealth tool that contains educational materials for pediatric oncology caregivers. While the usability of the App has been studied, the effects of the App on the experience of caregivers have not been examined. The objective of this study was to evaluate the impact of the App on education and support of pediatric oncology caregivers. Method: A 23-item multiple-choice questionnaire was developed using Opinio software and disseminated via hyperlink embedded in the App and on paper. Parents/caregivers participated in a virtual, semi-structured focus group hosted by a parent/caregiver. Participants were identified by nurse investigators using convenience sampling. Data were analyzed using descriptive statistics. Results: Twenty-five caregivers completed the questionnaire; six participated in interviews. The App provided valuable educational materials for 88% of respondents; 60% agreed it helped them feel better supported. All participants in the focus groups unanimously agreed that the App would have been helpful at the beginning of their treatment. Discussion: Results demonstrate that the COG KidsCare App improves caregivers’ education and positively impacts their perception of support. It is likely most impactful for families who are within 6 months of a cancer diagnosis and should be provided to families as early as possible. Revisiting the App with families throughout their treatment journey and into follow-up is also recommended.

Keywords

pediatric oncology mHealth smartphone App patient family support education

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