Preparing High School Students With Chronic Illnesses for College Transition: Lessons Learned From College Counselors

Abstract

Interest is growing regarding high school preparation for students transitioning to college with chronic illnesses such as asthma, cancer, and diabetes. This qualitative study examined 15 college counselors’ perceptions of working to address high school transition needs with incoming students diagnosed with chronic illnesses. Four themes emerged from the findings: counseling services, social aspects, medical considerations, and educational needs. We discuss implications for high school counselors’ practice and future research.

Keywords

chronic illnesses college transition high school counselors

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References

Ahn

Lee

(2016). Peer attachment, perceived parenting style, self-concept, and school adjustments in adolescents with chronic illness. Asian Nursing Research, 10(4), 300–304. https://doi.org/10.1016/j.anr.2016.10.003

American Counseling Association. (2014). ACA code of ethics. Author. https://www.counseling.org/knowledge-center/ethics

American School Counselor Association. (2012). ASCA National Model: A framework for school counseling programs (3rd ed.). Author.

Americans with Disabilities Act. Pub. L. No. 101-336, § 1, 104 Stat. 328. (1990).

Arimas-Macalino

Weismuller

P. C.

McClanahan

(2019). Addressing illness-related chronic absences. NASN School Nurse, 34(6), 357–362. https://doi.org/10.1177/1942602X19852749

Attride-Stirling

(2001). Thematic networks: An analytic tool for qualitative research. Qualitative Research, 1(3), 385–405.

Balfe

(2007). Alcohol, diabetes and the student body. Health, Risk & Society, 9(3), 241–257.

Barnes

A. J.

Eisenberg

M. E.

Resnick

M. D.

(2010). Suicide and self-injury among children and youth with chronic health conditions. Pediatrics, 125(5), 889–895. https://doi.org/10.1542/peds.2009-1814

Berger

C. A.

(2015, January–February). Aid for students with chronic illness. ASCA School Counselor, 52(3), 32–36. https://www.schoolcounselor.org/asca/media/asca/ASCAU/Students-With-Special-Needs-Specialist/ChronicIllness.pdf

10.

Berger

Valenzuela

Tsikis

Fletcher

(2018). School professionals’ knowledge and beliefs about youth with chronic illness. Journal of School Health, 88(8), 615–623. https://doi.org/10.1111/josh.12646

11.

Braun

Clarke

(2006). Using thematic analysis in psychology. Qualitative Research in Psychology, 3(2), 77–101. https://doi.org/10.1191/1478088706qp063oa

12.

Carroll

J. M.

Muller

Patterson

(2016). Cooling out undergraduates with health impairments: The freshman experience. The Journal of Higher Education, 87(6), 771–800. https://doi.org/10.1353/jhe.2016.0029

13.

Cates

J. T.

Schaefle

S. E.

(2011). The relationship between a college preparation program and at-risk students’ college readiness. Journal of Latinos and Education, 10(4), 320–334. https://doi.org/10.1080/15348431.2011.605683

14.

Centers for Disease Control and Prevention. (2016). Chronic diseases: The leading cause of death and disability in the United States. https://www.cdc.gov/chronicdisease/overview/

15.

Cholewa

Ramaswami

(2015). The effect of counseling on the retention and academic performance of unprepared freshmen. Journal of College Student Retention: Research, Theory & Practice, 17(2), 204–225. https://doi.org/10.1177/1521025115578233

16.

Conduti

W. A.

Hayes

J. A.

Locke

B. D.

Young

S. J.

(2016). Mental health and professional help-seeking among college students with disabilities. Rehabilitation Psychology, 61(3), 288–296. https://doi.org/10.1037/rep0000101

17.

Creswell

J. W.

(2013). Qualitative inquiry and research design: Choosing among five traditions (3rd ed.). Sage.

18.

Crotty

(2003). The foundations of social research: Meaning and perspective in the research process. Sage.

19.

Denny

de Silva

Fleming

Clark

Merry

Ameratunga

Milfont

Farrant

Fortune

S. A.

(2014). The prevalence of chronic health conditions impacting on daily functioning and the association with emotional well-being among a national sample of high school students. Journal of Adolescent Health, 54(4), 410–415. https://doi.org/10.1016/j.jadohealth.2013.09.010

20.

Eaton

C. K.

Davis

M. F.

Gutierrez-Colina

A. M.

LaMotte

Blount

R. L.

Suveg

(2017). Different demands, same goal: Promoting transition readiness in adolescents and young adults with and without medical conditions. Journal of Adolescent Health, 60(6), 727–733. https://doi.org/10.1016/j.jadohealth.2017.01.002

21.

Ferro

M. A.

Rhodes

A. E.

Kimber

Duncan

Boyle

M. H.

Georgiades

Gonzalez

MacMillan

H. L.

(2017). Suicidal behaviour among adolescents and young adults with self-reported chronic illness. Canadian Journal of Psychiatry/Revue Canadienne De Psychiatrie, 62(12), 845–853. https://doi.org/10.1177/0706743717727242

22.

Francis

G. L.

Duke

Brigham

F. J.

Demetro

(2018). Student perceptions of college readiness, college services and supports, and family involvement in college: An exploratory study. Journal of Autism and Developmental Disorders, 48, 3573–3585. https://doi.org/10.1007/s10803-018-3622-x

23.

Goodwin

R. N.

Broda

Johnson

H. L.

Schneider

(2016). Improving college enrollment of at-risk students at the school level. Journal of Education for Students Placed at Risk, 21(3), 143–156. https://doi.org/10.1080/10824669.2016.1182027

24.

Grbich

(2007). Qualitative data analysis: An introduction (2nd ed.). Sage.

25.

Hart

L. C.

Pollock

Hill

Maslow

(2016). Association of transition readiness to intentional self-regulation and hopeful future expectations in youth with illness. Academic Pediatrics, 17(4), 450–455. https://doi.org/10.1016/j.acap.2016.12.004

26.

Herts

K. L.

Wallis

Maslow

(2014). College freshmen with chronic illnesses: A comparison with healthy first-year students. Journal of College Student Development, 55(5), 475–480. https://doi.org/10.1353/csd.2014.0052

27.

Hicks

Heastie

(2008). High school to college transition: A profile of the stressors, physical and psychological health issues that affect the first-year on-campus college student. Journal of Cultural Diversity, 15(3), 143–147.

28.

Hughes

A. N.

Gibbons

M. M.

Mynatt

(2013). Using narrative career counseling with the unprepared college student. The Career Development Quarterly, 61(1), 40–49. https://doi.org/10.1002/j.2161-0045.2013.00034.x

29.

Jackson

(2013). The special education needs of adolescents living with chronic illness: A literature review. International Journal of Inclusive Education, 17(6), 543–554. https://doi.org/10.1080/13603116.2012.676085

30.

Janin

M. M. H.

Ellis

S. J.

Lum

Wakefield

C. E.

Fardell

J. E.

(2018). Parents’ perspectives on their child’s social experience in the context of childhood chronic illness: A qualitative study. Journal of Pediatric Nursing, 42, 10–18. https://doi.org/10.1016/j.pedn.2018.06.010

31.

Knight

Wessel

Markle

(2018). Persistence to graduation for students with disabilities: Implications for performance-based outcomes. Journal of College Student Retention: Research, Theory, and Practice, 19(4), 362–380. https://doi.org/10.1177/1521025116632534

32.

Krenitsky-Korn

(2011). High school students with asthma: Attitudes about school health, absenteeism, and its impact on academic achievement. Pediatric Nursing, 37(2), 61–68.

33.

Krockow

E. M.

Riviere

French

C. A.

(2018). Improving shared health decision making for children and adolescents with chronic illness: A narrative literature review. Patient Education and Counseling, 102(4), 623–630. https://doi.org/10.1016/j.pec.2018.11.017

34.

Lapan

R. T.

Poynton

Marcotte

Marland

Milam

C. M.

(2017). College and career readiness counseling support scales. Journal of Counseling and Development, 95(1), 77–86. https://doi.org/10.1002/jcad.12119

35.

LaRossa

(2005). Grounded theory methods and qualitative family research. Journal of Marriage and Family, 67(4), 837–857. https://doi.org/10.1111/j.1741-3737.2005.00179.x

36.

Lawson

D. L.

Gould

S. A.

Conley

M. L.

(2016). McDaniel step ahead: A summer transition program for first year college students with disabilities. Journal of Postsecondary Education and Disability, 29(3), 299–302.

37.

Lemly

D. C.

Lawlor

Scherer

E. A.

Kelemen

Weitzman

E. R.

(2014). College health service capacity to support youth with chronic medical conditions. Pediatrics, 134(5), 885–891. https://doi.org/10.1542/peds.2014-1304

38.

Leonard

(2013). Maximizing college readiness for all through parental support. School Community Journal, 23(1), 183–202.

39.

Lum

Wakefield

C. E.

Donnan

Burns

M. A.

Fardell

J. E.

Jaffe

Kasparian

N. A.

Kennedy

S. E.

Leach

S. T.

Lemberg

D. A.

Marshall

G. M.

(2019). Facilitating engagement with school in students with chronic illness through positive education: A mixed-method comparison study. School Psychology, 34(6), 677–686. https://doi.org/10.1037/spq0000315

40.

Lum

Wakefield

C. E.

Donnan

Burns

M. A.

Fardell

J. E.

Marshall

G. M.

(2017). Understanding the school experiences of children and adolescents with serious chronic illness: A systematic meta-review. Child: Care, Health, & Development, 43(5), 645–662. https://doi.org/10.1111/cch.12475

41.

Manfreda

K. L.

Vehovar

(2008). Internet surveys. In DeLeeuw

E. R.

Hox

J. J.

Dillman

D. A.

(Eds.), International handbook of survey methodology (pp. 264–284). European Association of Methodology.

42.

Maslow

G. R.

Haydon

McRee

Ford

C. A.

Halpern

C. T.

(2011). Growing up with a chronic illness: Social success, educational/vocational distress. Journal of Adolescent Health, 49(2), 206–212. https://doi.org/10.1016/j.jadohealth.2010.12.001

43.

Melzer

D. K.

Grant

R. M.

(2016). Investigating differences in personality traits and academic needs among prepared and unprepared first-year college students. Journal of College Student Development, 57(1), 99–103.

44.

Milsom

Dietz

(2009). Defining college readiness for students with learning disabilities: A Delphi study. Professional School Counseling, 12(4), 315–323. https://doi.org/10.1177/2156759X0901200405

45.

Morgan

L. W.

Greenwaldt

M. E.

Gosselin

K. P.

(2014). School counselors’ perceptions of competency in career counseling. The Professional Counselor, 4(5), 481–486. https://doi.org/10.15241/lwm.4.5.481

46.

Mullins

A. J.

Gamwell

K. L.

Sharkey

C. M.

Bakula

D. M.

Tackett

A. P.

Suorsa

K. I.

Chaney

J. M.

Mullins

L. L.

(2017). Illness uncertainty and illness intrusiveness as predictors of depressive and anxious symptomology in college students with chronic illnesses. Journal of American College Health, 65(5), 352–360. https://doi.org/10.1080/07448481.2017.1312415

47.

National Association for College Admission Counseling and American School Counselor Association. (2018). State-by-state student-to-counselor ratio report: 10-year trends. https://www.schoolcounselor.org/asca/media/asca/Publications/ratioreport.pdf

48.

Patten

M. L.

(2007). Understanding research methods: An overview of the essentials (6th ed.). Pyrczak Publishing.

49.

Patton

M. Q.

(2015). Qualitative research and evaluation methods (4th ed.). Sage.

50.

Pitre

C. C.

Pitre

(2009). Increasing underrepresented high school students’ college transition and achievements: TRIO educational opportunity programs. NASSP Bulletin, 93(2), 96–110. https://doi.org/10.1177/0192636509340691

51.

Potrata

(2010). Rethinking the ethical boundaries of a grounded theory approach. Research Ethics, 6(4), 154–158. https://doi.org/10.1177/174701611000600408

52.

Ravert

R. D.

Boren

S. A.

Wiebke

(2015). Transitioning through college with diabetes: Themes found in online forums. Journal of American College Health, 63(4), 258–267. https://doi.org/10.1080/07448481.2015.1015026

53.

Reed-Knight

Blount

R. L.

Gilleland

(2014). The transition of health care responsibility from parents to youth diagnosed with chronic illness: A developmental systems perspective. Families, Systems, & Health, 32(2), 219–234. https://doi.org/10.1037/fsh0000039

54.

Repetto

J. B.

Horky

S. C.

Miney

Reiss

Saidi

Wolcott

Saldana

Jaress

J. M.

(2012). Expanding transition to address the needs of students with invisible chronic illness. Career Development and Transition for Exceptional Individuals, 35(1), 4–13. https://doi.org/10.1177/0885728811423653

55.

Selekman

(2017). Students with chronic conditions: Experiences and challenges of regular education teachers. The Journal of School Nursing, 33(4), 307–315. https://doi.org/10.1177/1059840516674053

56.

Smart

K. A.

Parker

R. S.

Lampert

Sulo

(2012). Speaking up: Teens voice their health information needs. The Journal of School Nursing, 28(5), 379–388. https://doi.org/10.1177/1059840512450916

57.

Velsor-Friedrich

Vlasses

Moberley

Coover

(2004). Talking with teens about asthma management. The Journal of School Nursing, 20(3), 140–148. https://doi.org/10.1177/10598405040200030401

58.

Whittle

H. J.

Palar

Ranadive

N. A.

Turan

J. M.

Kushel

Weiser

S. D

. (2017). “The land of the sick and the land of the healthy”: Disability, bureaucracy, and stigma among people living with poverty and chronic illness in the United States. Social Science & Medicine, 190, 181–189. https://doi.org/10.1016/j.socscimed.2017.08.031

59.

Young

Kaffenberger

(2016). School counseling professional development: Assessing the use of data to inform school counseling services. Professional School Counseling, 19(1), 46–56. https://doi.org/10.5330/1096-2409-19.1.46