Screening and Needs Assessments in Adolescent and Young Adult Oncology

Coccia PF , Pappo AS , Beaupin L , et al. Adolescent and young adult oncology, version 2.2018, NCCN clinical practice guidelines in oncology. J Natl Compr Canc Netw, 2018; 16(1):66–97.

Haines E , Asad S , Lux L , et al. Guidance to support the implementation of specialized adolescent and young adult cancer care: A qualitative analysis of cancer programs. JCO Oncol Pract, 2022; 18(9):e1513–e1521.

Brand SR , Chordas C , Liptak C , et al. Screening for fatigue in adolescent and young adult pediatric brain tumor survivors: Accuracy of a single-item screening measure. Support Care Cancer, 2016; 24(8):3581–3587.

Recklitis CJ , Blackmon JE , Chevalier LL , Chang G . Validating the patient‐reported outcomes measurement information system short form v1.0–Anxiety 8a in a sample of young adult cancer survivors: Comparison with a structured clinical diagnostic interview. Cancer, 2021; 127(19):3691–3697.

Recklitis CJ , Blackmon JE , Chang G . Screening young adult cancer survivors for distress with the distress thermometer: Comparisons with a structured clinical diagnostic interview. Cancer, 2016; 122(2):296–303.

Recklitis CJ , Blackmon JE , Chang G . Screening young adult cancer survivors with the PROMIS Depression Short Form (PROMIS‐D‐SF): Comparison with a structured clinical diagnostic interview. Cancer, 2020; 126(7):1568–1575.

Cheung CK , Zebrack B . What do adolescents and young adults want from cancer resources? Insights from a Delphi panel of AYA patients. Support Care Cancer, 2017; 25:119–126.

Patterson P , McDonald FE , Allison KR , et al. The clinical utility of the Adolescent and Young Adult Psycho-Oncology Screening Tool (AYA-POST): Perspectives of AYA cancer patients and healthcare professionals. Front Psychol, 2022; 13:872830.

Patterson P , D’Agostino NM , McDonald FE , et al.; International AYA Cancer Distress Screening Group. Screening for distress and needs: Findings from a multinational validation of the adolescent and young adult psycho‐oncology screening tool with newly diagnosed patients. Psychooncology, 2021; 30(11):1849–1858.

Haines ER , Lux L , Smitherman AB , et al. An actionable needs assessment for adolescents and young adults with cancer: The AYA Needs Assessment & Service Bridge (NA-SB). Support Care Cancer, 2021; 29(8):4693–4704.

Haines ER, Lux L, Swift C, et al. The Adolescent and Young Adult Needs Assessment and Service Bridge (NA-SB): A single-arm feasibility pilot study. Journal of Psychosocial Oncology 2023;42(1):16–31.

Salsman JM , Danhauer SC , Moore JB , et al. Optimizing the measurement of health‐related quality of life in adolescents and young adults with cancer. Cancer, 2020; 126(22):4818–4824.

Salsman JM , Bingen K , Barr RD , Freyer DR . Understanding, measuring, and addressing the financial impact of cancer on adolescents and young adults. Pediatr Blood Cancer, 2019; 66(7):e27660.

Sodergren SC , Husson O , Robinson J , et al. Systematic review of the health-related quality of life issues facing adolescents and young adults with cancer. Qual Life Res, 2017; 26:1659–1672.

Roth ME , Parsons SK , Ganz PA , et al. Inclusion of a core patient-reported outcomes battery in adolescent and young adult cancer clinical trials. J Natl Cancer Inst, 2023; 115(1):21–28.

Husson O , Reeve BB , Darlington A-S , et al. Next step for global adolescent and young adult oncology: A core patient-centered outcome set. J Natl Cancer Inst, 2022; 114(4):496–502.

Winestone LE , Beauchemin MP , Bona K , et al.; Diversity and Health Disparities Committee. Children’s Oncology Group’s 2023 blueprint for research: Diversity and health disparities. Pediatr Blood Cancer, 2023; 70(Suppl 6):e30592.

Parsons SK , Beauchemin MP , Dupuis L , et al. Children’s Oncology Group 2023 blueprint for research: cancer care delivery research. Pediatr Blood Cancer, 2023; 70:e30579.

Nguyen H , Butow P , Dhillon H , Sundaresan P . A review of the barriers to using Patient‐Reported Outcomes (PROs) and patient‐reported outcome measures (PROMs) in routine cancer care. J Med Radiat Sci, 2021; 68(2):186–195.

Meirte J , Hellemans N , Anthonissen M , et al. Benefits and disadvantages of electronic patient-reported outcome measures: Systematic review. JMIR Perioper Med, 2020; 3(1):e15588.

Decker VB , Howard GS , Holdread H , et al. Piloting an automated distress management program in an oncology practice. Clin J Oncol Nurs, 2016; 20(1).