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Abstract

The language and symbols used to describe autism have become central to ongoing discussions among autistic individuals, practitioners, researchers, parents, and other stakeholders. This study assessed preferences for person-first language (PFL), identity-first language (IFL), symbols, and terminology among 1,222 participants from 14 countries, across four languages. Consistent with prior research, autistic individuals predominantly preferred IFL, the infinity loop symbol, and the term Autism Acceptance Month, reflecting alignment with the neurodiversity movement and an identity-affirming perspective. In contrast, parents and professionals favored PFL, the puzzle ribbon, and Autism Awareness Month, reflecting more traditional medicalized views of autism. The findings of this study highlight the need for more inclusive discourse. To promote sensitivity and respect, it is critical to honor individual preferences and adopt a flexible, context-sensitive approach to language use. Employing both PFL and IFL where appropriate can foster greater inclusivity while maintaining scientific and clinical clarity in research, policy, and practice.

Keywords

autism disability/ies international perspectives

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References

American Psychological Association . (2021). Inclusive language guidelines. https://www.apa.org/about/apa/equitydiversity-inclusion/language-guidelines.pdf

Bottema-Beutel

Kapp

S. K.

Lester

J. N.

Sasson

N. J.

Hand

B. N.

(2021). Avoiding ableist language: Suggestions for autism researchers. Autism in Adulthood, 3(1), 318–329. https://doi.org/10.1089/aut.2020.0014

Bury

S. M.

Jellett

Spoor

J. R.

Hedley

(2020). “It defines who I am” or “it’s something I have”: What language do [autistic] Australian adults [on the autism spectrum] prefer? Journal of Autism and Developmental Disorders, 53(2), 677–687. https://doi.org/10.1007/s10803-020-04425-3

Chapman

Botha

(2022). Neurodivergence-informed therapy. Developmental Medicine and Child Neurology, 65(3), 310–317. https://doi.org/10.1111/dmcn.15384

Dunn

D. S.

Andrews

E. E.

(2015). Person-first and identity-first language: Developing psychologists’ cultural competence using disability language. American Psychologist, 70(3), 255–264. https://doi.org/10.1037/a0038636

Gernsbacher

M. A.

(2017). The use of person-first language in scholarly writing may accentuate stigma. Journal of Child Psychology and Psychiatry, 58(7), 859–861. https://doi.org/10.1111/jcpp.12706

Graby

(2015). Neurodiversity: Bridging the gap between the disabled people’s movement and the mental health system survivors’ movement? In Spandler

Anderson

Sapey

(Eds.), Madness, distress and the politics of disablement (pp. 231–244). Policy Press. https://doi.org/10.2307/j.ctt1t898sg.21

Kapp

S. K.

Gillespie-Lynch

Sherman

L. E.

Hutman

(2013). Deficit, difference, or both? Autism and neurodiversity. Developmental Psychology, 49(1), 59–71. https://doi.org/10.1037/a0028353

Kenny

Hattersley

Molins

Buckley

Povey

Pellicano

(2016). Which terms should be used to describe autism? Perspectives from the UK autism community. Autism, 20(4), 442–462. https://doi.org/10.1177/1362361315588200

10.

O’Dell

Brownlow

Rosqvist

H. B.

Ortega

(2016). Critical autism studies: Exploring epistemic dialogues and intersections, challenging dominant understandings of autism. Disability & Society, 31(2), 166–179. https://doi.org/10.1080/09687599.2016.1164026

11.

Shakes

Cashin

(2019). Identifying language for people on the autism spectrum: A scoping review. Issues in Mental Health Nursing, 40(4), 317–325. https://doi.org/10.1080/01612840.2018.1522400

12.

Singer

Lutz

Escher

Halladay

(2023). A full semantic toolbox is essential for autism research and practice to thrive. Autism Research, 16(3), 497–501. https://doi.org/10.1002/aur.2876

13.

Taboas

Doepke

Zimmerman

(2023). Preferences for identity-first versus person-first language in a US sample of autism stakeholders. Autism, 27(2), 565–570. https://doi.org/10.1177/13623613221130845

14.

Vivanti

(2020). Ask the editor: What is the most appropriate way to talk about individuals with a diagnosis of autism? Journal of Autism and Developmental Disorders, 50(2), 691–693. https://doi.org/10.1007/s10803-019-04280-x

15.

Wooldridge

(2023). Writing respectfully: Person-first and identity-first language. National Institutes of Health (NIH). https://www.nih.gov/about-nih/what-we-do/science-health-public-trust/perspectives/writing-respectfully-person-first-identity-first-language

Autism Language and Symbols Preferences: Insights from a Cross-Cultural Survey

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