This paper describes a research study that assessed young children with a low incidence disability, specifically Cri-du-Chat Syndrome (CDSC). A description of the concerns of assessing individuals with low incidence disabilities is described. Parent reports (using the Development Observation Checklist System) on the functioning of their children are analyzed and compared to data collected from more formal assessment (specifically, the Battelle Developmental Inventory). Data collected from parent report and formal assessments are included. A result of the analysis shows that parents' reports are congruent with formal assessment data.
Get full access to this article
View all access options for this article.
References
1.
BairdS. M.CampbellD JIngramR.GomezC.Young children with Cri-du-chat: Genetic, developmental, and behavioral profilesInfants and Young Children: A Transdisciplinary Journal1111–142001
2.
BruininksR. H.WoodcockR.WeathermanR.HillM. A.Scales of Independent Behavior-RevisedRiverside PublishingItaska, IL1984
3.
CampbellD. J.CarlinM. E.JustenJ.IIIBairdS. M.Cri-du-chat Syndrome: A topical overviewJournal of the 5P Minus Society11–72004
4.
CarlinM. E.University of Miami Mailman Center for Child Development5P-/Cri-du-chat syndromeMiami, FL1983published paper. Division of Genetics
5.
CarlinM. E.FraserW. I.The improved prognosis in Cri-du-chat (5P-) syndromeProceedings of the 8 th Congress of the International Association of Scientific Study of Mental DeficiencyBlackwellEdinburg, UK64–731990
6.
CollinsM.CornishK. M.Self-injurious behavior in children and adults with cri-du-chat syndromeJournal of Intellectual Disability Research46133–1402001
7.
DinnebeilL. A.RuleS.Congruence between parents' and professionals' judgmentsTopics in Early Childhood Special Education1411–251994
8.
DykensE. M.ClarkeD. J.Correlates of maladaptive behavior in individuals with 5p-(Cridu-Chat) syndromeDevelopmental Medicine and Child Neurology39752–7561997
9.
ElliottJ. L.ThurlowM. L.Improving test performance of students with disabilitiesOn district and state assessmentsThousand Oaks CA Corwin Press2006
Individuals with Disabilities Education Improvement Act of 2004, 20 U. S. C. §1400, H. R. 1350 (2004).
12.
NeisworthJ. T.BagnatoS. J.SalviaJ.HuntF. M.Temperment and Atypical Behavior Scale: Early childhood indicators of developmental dysfunctionPaul H. BrooksBaltimore1999
NiebuhrE.The Cri du chat syndrome: Epidemiology, cytogenetics, and clinical featuresHuman Genetics44227–2751978
15.
No Child Left Behind Act of 2001, 20 U.S.C. 70 § 6301 et seq.2002
16.
RadmerA. A.BodurthaJ.Jackson-CookC.BrownJ.Wilkins-HuangL.Cri du chat syndromeVirginia Commonwealth UniversityRichmond1993
17.
ReschyD. J.Change dynamics in special education assessment: Historical and contemporary patternsPeabody Journal of Education77117–1362002
18.
ShinnM. R.Advanced applications of curriculum-based measurementGuilford PressNew York1998
19.
TurnbullA.TurnbullR.WehmeyerM. L.Exceptional lives: Special education in today's schoolsMerrillColumbus, OH2007th Ed
20.
The Individuals with Disabilities Education Act (IDEA): Interactions with Selected Provisions of the No Child Left Behind Act (NCLBA)U.S. Congressional Research ServiceDecember 22,2005CRS Web: Author
21.
United States Department of EducationTwenty-fifth annual report to Congress on implementation of the Individuals with Disabilities Education ActAuthorWashington, DC2003
22.
WilkinsL. E.BrownJ. A.WolfB.Psychomotor development in 65 home-reared children with cri-du -chat syndromeThe Journal of Pediatrics97401–4051980
23.
WilkinsL. E.BrownJ. A.NanceW. E.WolfB.Clinical heterogeneity in 80 home-reared children with Cri du Chat syndromeThe Journal of Pediatrics102528–5331983
