We review our 16-year experience using the large, multi-institutional database of the University HealthSystem Consortium to study management and outcomes in congenital heart surgery for hypoplastic left heart syndrome, transposition of the great arteries, and neonatal coarctation. The advantages, limitations, and use of administrative databases by others to study congenital heart surgery are reviewed.
GutgesellHPMassaroTA. Management of hypoplastic left heart syndrome in a consortium of university hospitals. Am J Cardiol. 1995;76(11):809–811.
2.
GutgesellHPMassaroTAKronIL. The arterial switch operation for transposition of the great arteries in a consortium of university hospitals. Am J Cardiol. 1994;74(9):959–960.
3.
GutgesellHPBartonDMElginKM. Coarctation of the aorta in the neonate: associated conditions, management, and early outcome. Am J Cardiol. 2001;88(4):457–459.
4.
BaumVCBartonDMGutgesellHP. Influence of congenital heart disease on mortality after noncardiac surgery in hospitalized children. Pediatrics. 2000;105(2):332–335.
5.
GutgesellHPGibsonJ. Management of hypoplastic left heart syndrome in the 1990s. Am J Cardiol. 2002;89(7):842–846.
6.
McHughKEHillmanDGGurkaMJGutgesellHP. Three-stage palliation of hypoplastic left heart syndrome in the University HealthSystem Consortium. Congenit Heart Dis. 2010;5(1):8–15.
7.
IdrissFSIlbawiMNDeLeonSY. Arterial switch in simple and complex transposition of the great arteries. J Thorac Cardiovasc Surg. 1988;95(1):29–36.
8.
SerrafALacour-GayetFBruniauxJ. Anatomic correction of transposition of the great arteries in neonates. J Am Coll Cardiol. 1993;22(1):193–200.
9.
HickeyEJMcCrindleBWCaldaroneCAWilliamsWGBlackstoneEH. Making sense of congenital cardiac disease with a research database: The Congenital Heart Surgeons' Society Data Center. Cardiol Young. 2008;18(suppl 2):152–162.
10.
JenkinsKJBeekmanRHBergersonLJ. Databases for assessing the outcomes of the treatment of patients with congenital and paediatric cardiac disease-the perspective of cardiology. Cardiol Young. 2008;18(suppl 2):116–123.
11.
ChangRKChenAYKlitznerTS. Female sex as a risk factor for in-hospital mortality among children undergoing cardiac surgery. Circulation. 2002;106(12):1514–1522.
12.
ChangRKRodriguezSLeeMKlitznerTS. Risk factors for deaths occurring within 30 days and 1 year after hospital discharge for cardiac surgery among pediatric patients. Am Heart J. 2006;152(2):386–393.
13.
KlitznerTSLeeMRodriguezSChangRK. Sex-related disparity in surgical mortality among pediatric patients. Congenit Heart Dis. 2006;1(3):77–88.
14.
ChangRKChenAYKlitznerTS. Factors associated with age at operation for children with congenital heart disease. Pediatrics. 2000;105(5):1073–1081.
15.
HannanELRaczMKaveyREQuaegebeurJMWilliamsR. Pediatric cardiac surgery: the effect of hospital and surgeon volume on in-hospital mortality. Pediatrics. 1998;101(6):963–969.
16.
JenkinsKJNewburgerJWLockJEDavisRBCoffmanGAIezzoniLI. In-hospital mortality for surgical repair of congenital heart defects: preliminary observations of variation by hospital caseload. Pediatrics. 1995;95(3):323–330.
17.
GonzalezPCGauvreauKDemoneJAPierceyGEJenkinsKJ. Regional racial and ethnic differences in mortality for congenital heart surgery in children may reflect unequal access to care. Pediatr Cardiol. 2003;24(2):103–108.
18.
DeMoneJAGonzalezPCGauvreauKPierceyGEJenkinsKJ. Risk of death for Medicaid recipients undergoing congenital heart surgery. Pediatr Cardiol. 2003;24(2):97–102.
19.
BenavidezOJGauvreauKJenkinsKJ. Racial and ethnic disparities in mortality following congenital heart surgery. Pediatr Cardiol. 2006;27(3):321–328.
20.
ConnorJAGauvreauKJenkinsKJ. Factors associated with increased resource utilization for congenital heart disease. Pediatrics. 2005;116(3):689–695.
21.
WelkeKFDiggsBSKaramlouTUngerleiderRM. Comparison of pediatric cardiac surgical mortality rates from national administrative data to contemporary clinical standards. Ann Thorac Surg. 2009;87(1):216–223.
22.
IezzoniLI. Using administrative data to study persons with disabilities. Milbank Q. 2002;80(2):347–379.
23.
SchwartzRMGagnonDEMuriJHZhaoQRKelloggR. Administrative data for quality improvement. Pediatrics. 1999;103(1)(suppl E):291–301.
24.
FrohnertBKLusskyRCAlmsMAMendelsohnNJSymonikDMFalkenMC. Validity of hospital discharge data for identifying infants with cardiac defects. J Perinatol. 2005;25(11):737–742.
25.
CronkCEMalloyMEPelechAN. Completeness of state administrative databases for surveillance of congenital heart disease. Birth Defects Res. 2003;67(9):597–603.
26.
StricklandMJRiehle-ColarussoTJJacobsJP. The importance of nomenclature for congenital cardiac disease: implications for research and evaluation. Cardiol Young. 2008;18(suppl 2):92–100.