Abstract
Background
Mental illness among youth (ages 15–24) is a critical and global public health issue. Youth's pathways to accessing mental healthcare are complex, non-linear, and mediated by the social determinants of health – including social, economic, environmental, and systemic factors. Digital mental health is recognised as a potential solution to address inequitable access to mental healthcare among youth. However, concerns have been raised regarding access to digital mental health for youth who are underserved and excluded by current mental healthcare systems. Access to digital mental health is a matter of mental health equity requiring urgent attention.
Methods
This study explores mental healthcare providers’ perspectives of how the social determinants of health affect access to digital mental health for youth in Alberta, Canada. A qualitative descriptive methodology was utilised to analyse focus group data and identify pertinent themes.
Results
Twenty-three focus groups were conducted with 168 participants from schools, specialised mental health services, primary care networks, and community-based mental health service settings. Findings show that youth's access to digital mental health is impacted by three overarching and intersecting themes: (1) social influences, (2) socio-economic circumstances, and (3) community contextual and systemic factors.
Conclusions
The three themes indicate that the social determinants of health do not occur in isolation and may combine to produce multiple forms of disadvantage. Practical considerations and recommendations emphasise the need to address the social determinants of health to ensure that all youth benefit equitably from emerging digital solutions.
Keywords
Background
Mental illness among youth is a critical and global public health issue. 1 Worldwide, psychological disorders (e.g., anxiety disorders, eating disorders, substance use disorders) tend to emerge before age 25 2 during periods of physical, psychological, and social development and transition. 3 A recent epidemiological meta-analysis found peak and median ages at onset of any mental illness to be 14.5 and 18 years of age, respectively. 2 In Canada, research demonstrates an increasing prevalence of diagnosed mood disorders, anxiety disorders, and suicidality among youth between 2011 and 2018 4 – and worsening mental health concerns due to the COVID-19 pandemic. 5 Experiences of poor mental health in youth and young adulthood are associated with physical and psychiatric comorbidity, 6 self-harm, 7 suicidality, 8 and mortality. 9 Moreover, youth with untreated mental illness are vulnerable to disadvantage and impairment in functioning in adulthood. 6
The prevalence and adverse impact of mental illness indicates a need for timely, accessible, and comprehensive assessment and psychosocial interventions. However, youth's pathways to accessing mental healthcare are complex, non-linear,10,11 and mediated by interacting social, economic, environmental, and systemic influences. 12 Social barriers to mental healthcare access and engagement include stigma towards mental health and help-seeking,12–14 limited support from family or peers,12,14 and negative experiences with systems and providers 14 (e.g., psychologists, physicians). Outside publicly funded services, cost may preclude youth with acute and complex needs from receiving specialised support.10,12–15 Rural areas face a vicious dynamic between the high burden of mental health crises 16 and the lack of general and specialised mental health services in rural communities. 12 Additionally, economic barriers are exacerbated by geographic location 12 due to travel costs to access resources in cities. System-level barriers such as wait times,10,12–14 fragmented age-based transitions, and restrictive eligibility criteria dependent on age, diagnosis, or perceived severity 10 also hinder youth's treatment access.
Importantly, disparities in access to mental healthcare among population groups occur at a systemic level15,17,18 and interact with social, economic, environmental, and additional systemic factors. 12 Inequitable access is not inherent to certain populations 19 ; rather, longstanding systems of oppression15,18–20 related to race, ethnicity,12,15,17,18,21–23 gender, gender identity, sexual orientation,12,17,18,21 and other aspects of intersectional identity18,23 impact youth's access to and experience with mental healthcare. Examples include societal and community stigmatisation and marginalisation that impedes help-seeking, 22 harmful interactions with providers,17,21,22 longer wait times, and adverse pathways to mental healthcare via hospitalisation or the justice system. 22 In addition, Canada lacks access to linguistically and culturally diverse providers15,22 and culturally safe services to meet the heterogenous needs of Black youth, 22 Indigenous youth, and other youth who are racialized.12,23
Social determinants of health (SDH) frameworks (i.e., the Conceptual Framework for Action on the Social Determinants of Health 24 ) provide a valuable structure for understanding pathways to accessing mental healthcare. The SDH encompass the non-medical 25 social, economic, environmental, and systemic factors influencing health, both proximal and distal. 26 Proximal determinants include the ‘visible circumstances’27(p1) in which individuals live, such as geographic location, 28 access to health systems,3,29 schools, housing, and family and peer relationships. 26 Immediate circumstances are, in turn, shaped by distal historic, political, social, and economic contexts. 27 The resultant health-promoting or health-damaging experiences manifest inequitably across intersecting identities27,30 (e.g., ethnicity, ability). Regarding mental health, the SDH affect both risk of disorder 28 and access to support. 31 Youth exposed to greater social adversity experience greater accumulative stress, 28 are at greater risk of mental ill-health,3,28 and face pronounced barriers along their access-to-care pathway. 31 Interactions between the SDH, mental health, and access to mental healthcare during youth and young adulthood have lasting, cumulative implications for mental health and wellbeing.
Expanding access to mental healthcare: Overview of digital mental health
Given that access to health systems is in itself a determinant of mental health outcomes, 3 there exists a need to address inequitable access to mental healthcare driven by the SDH. The digital delivery of mental health assessment and treatment is recognised as a means to mitigate social, economic, environmental, and systemic barriers32,33 – and thereby advance mental health equity for the youth demographic. 33 Among various forms, digital mental health (dMH) includes web-based platforms, apps,33,34 supportive text messaging,34,35 telemental health, 36 virtual reality, 34 and wearable devices, 37 that may be embedded in existing systems or used in place of in-person services. dMH may increase access to mental healthcare by providing flexible access to support, 33 enabling anonymity34,38 and reducing perceived stigma (if used independently), 33 offering cost-effective alternates to specialised and private treatment,33,39 reaching individuals in rural and under-resourced areas,33,40,41 and avoiding waitlists. 39 If co-designed through participatory community engagement, dMH may increase tailored and culturally relevant care options42–44 and improve language accessibility. 42 A secondary advantage to dMH is its ability to connect youth to local resources 45 that address the SDH – such as food banks, housing support, and employment centres.
Despite potential benefits, concerns have been raised regarding equitable access to dMH among youth experiencing barriers to accessing traditional mental healthcare.33,40 Existing studies suggest that the social,46–48 economic,29,33,46 environmental,33,49 and systemic factors 49 impeding access to in-person services may comparably affect access to dMH. For instance, youth may experience stigma toward using dMH, 46 economic barriers to owning digital devices, unstable Internet, 33 and limited community resources 50 that implement or raise awareness about digital offerings. Embedding dMH within existing systems also incites considerations for youth who are disproportionately negatively affected by the SDH, and consequently underserved and excluded by current mental healthcare pathways.
Study purpose
Challenges to accessing dMH require urgent attention so that all youth may benefit equitably from emerging digital solutions. However, to our knowledge, minimal literature intentionally explores the relationship between multiple SDH and access to dMH among youth. This qualitative thematic analysis therefore intended to describe the perspectives of providers working with youth through the following research question:
The present study is part of a larger implementation science project evaluating the implementation of a dMH platform in schools, specialised mental health services, primary care networks (PCNs), and community-based mental health service settings in rural and urban communities across Alberta (2020–2026). By implementing dMH, the Alberta health system and researchers aim to address the high prevalence of mental health issues and insufficient mental health resources that meet youth's needs. dMH provides a supplementary approach to existing services and may expand the health system's capacity for prevention, early detection, and early intervention. Among its outcome objectives, the project will assess the impact of dMH on system cost-effectiveness, wait times for mental health services, emergency department use, and youth mental health.
Methods
Project intervention: The Innowell dMH platform
A platform decision-making group selected Innowell 51 as the project intervention based on its evidence base, user experience, safety and security, and ability to be customised to the Alberta context. Through participatory research with health professionals and individuals with lived experience, Innowell was co-designed to enable collaborative measurement-based care (MBC) in a web-based interface.51–54 MBC traditionally involves the systematic assessment of symptoms and sharing of results between providers and patients to guide personalised treatment and monitor progress.51,55–57 By gathering and acting upon individual data, 55 MBC may increase shared decision-making and patient engagement55,57 and improve clinical outcomes. 57 Innowell delivers MBC in a digital, accessible format for youth and providers.
The platform contains a multidimensional assessment package of standardised measures across 20 biopsychosocial domains: psychological distress, suicidal thoughts and behaviours, psychosis-like experiences, mania-like experiences, social and occupational function, self-harm, tobacco use, alcohol use, social connectedness, depressed mood, anxiety, physical health, sleep-wake cycle, post-traumatic stress, eating behaviours and body image, cannabis use, grief and loss, spiritual health, cultural connectedness, and resilience. 58 Youth complete the assessment package continuously or as-needed; their results are immediately shared (with youth, their provider(s), and optional supportive others) via a personalised dashboard that identifies the severity of domains, reflects improvement or decline over time, and suggests relevant and vetted mental health apps and e-tools. Additionally, the platform integrates an automated suicide escalation protocol that alerts providers if youth score high for suicidal thoughts and behaviours 52 and provides youth with community-specific crisis resources. 51 Providers may engage in MBC by using information about youth's functioning and change processes to augment treatment planning and guide patient goals.
To use Innowell in the context of the research project, youth required access to a service setting implementing dMH and parental/guardian consent for minors (<18 years).
Participant recruitment
We used purposive sampling to recruit participants working in communities and service settings that had agreed to implement Innowell with youth ages 15 to 24.58,59 In each community, the research team assigned an implementation lead who liaised between researchers and service setting administrators/leadership. The implementation lead disseminated recruitment materials to administrators/leadership who aided in identifying potential participants. To participate, inclusion criteria included (1) employment as a provider (e.g., social worker, administrator, nurse) in an involved service setting, (2) proficiency in written and spoken English, and (3) access to and ability to use web-based technologies on a computer, laptop, tablet, or smartphone. Potential participants who did not meet inclusion criteria were excluded.
Ethical considerations
This study was approved by the Conjoint Health Research Ethics Board at the University of Calgary (REB20-1137). Prior to participation, informed consent and demographic data were collected using Research Electronic Data Capture (REDCap) secure software hosted at the University of Calgary. Consent for audio-recording of focus groups was included in consent forms. Monetary compensation was not provided to participants; service settings implementing dMH considered implementation and research activities part of participants’ regular clinical duties, and focus groups occurred during participants’ working hours.
Data collection
Data was collected during the pre-implementation phase of the project (2020–2022). The research and implementation team developed a semi-structured interview guide to examine specific topics, and encourage flexibility to pursue unforeseen matters raised by participants.58,59 To structure the guide and inform its questions, the Theoretical Domains Framework (TDF) 60 was utilised. The TDF comprises 12 theoretical domains that assess perceptions about intervention implementation and behavioural change among stakeholders.58,59,61 These include: knowledge; skills; social/professional role and identity; beliefs about capabilities; beliefs about consequences; motivation and goals; memory, attention, and decision processes; environmental context and resources; social influences; emotion; behavioural regulation; and nature of the behaviours. 61 Interview questions explored barriers and facilitators to dMH implementation related to TDF domains. Prior to data collection, the guide was piloted with three providers.
Of note, the guide was not originally designed to address the present research question regarding the SDH. Discussions about the SDH emerged organically in response to questions probing contextual factors that may influence the implementation of a digital platform in participants’ communities and service settings. Due to the prevalence and depth of the topic in focus groups and the coding process, we elected to conduct this analysis. Findings related to other barriers and facilitators to dMH are outlined in previous publications.45,58,59
Focus groups
Twenty-three focus groups were conducted between November 2020 and June 202258,59 (see Table 1): 11 with schools and community-based service settings, 7 with specialised mental health services, and 5 with PCNs. Given participants’ locations across Alberta and restrictions due to the COVID-19 pandemic, focus groups were held remotely via Zoom. The duration of focus groups varied from 60 minutes to 2 hours. Within each community, focus groups were conducted separately with each service setting to ensure consistency in shared experiences and contextual relevance related to potential implementation challenges and opportunities. All professions (e.g., social workers, psychologists) attended the same focus group to diversify perspectives on dMH. Focus group size varied from 2 to 20 participants based on rural or urban location, team size, staff availability, and whether organisational leaders were able to provide coverage for staff to attend. Larger groups were made feasible by managerial support and operational capacity within the service setting.
Synthesis of 23 focus groups.
Throughout data collection and analysis, information power was continuously assessed by revisiting earlier transcripts, considering newly emerging content, and ensuring that no significant new content was overlooked. 59 The point at which no new content or themes arose in discussions was identified as information power. 62 This did not occur uniformly across service settings, as certain groups contributed nuanced perspectives from their distinct experiences and backgrounds. Information power was concluded at 23 focus groups and 168 participants based on the depth and richness of the data, the consistency of content and themes across focus groups, and the absence of novel insights in later stages of analysis. While the recommended sample size to reach saturation is four to eight focus groups, 63 our larger number of focus groups was necessary to learn from participants across Alberta in four unique service settings.
All focus groups were audio-recorded and transcribed verbatim and all identifying information was removed during the transcription process. As a form of member-checking, participants were sent a written preliminary synthesis of the focus group within 48 hours. 58 Participants were asked to review and provide feedback on the summary to confirm that their perspectives were captured.
Research team positionality
To ensure consistency in data collection, each focus group was conducted by the same facilitators. Researchers had no prior relationship with participants. In each focus group, the research team shared their career background and role within the project with participants.
Two senior clinician–researchers facilitated the focus groups: the project's co-principal investigator (GD) and a postdoctoral scholar (KB). GD holds a PhD in Social Work and has 25 + years of clinical experience working with youth with mental illness and their families, in tertiary and community-based settings. KB holds a PhD in Nursing and has 20 + years of clinical experience in mental health nursing. In addition, both lead facilitators have significant experience and expertise in qualitative research and leading group discussions. Both lead facilitators identify as women. Two research assistants (RAs) took notes during focus groups. Implementation leads attended focus groups in their respective communities.
In alignment with the project's youth engagement strategy and inclusion of the lived experience lens, the research team included individuals with lived experience of mental illness and working with youth with mental health concerns. This greatly enhanced our understanding of navigating mental health systems and the SDH. To establish reflexivity, we continuously memoed our thoughts about the data, emerging patterns, and potential biases, and discussed our reflections in weekly meetings.
Data analysis
This study employed a qualitative descriptive approach to data analysis.64,65 Qualitative description aims to comprehensively describe participants’ perceptions and experiences, using easily understood language that remains close to participants’ own words. As such, this approach is aligned with the epistemological perspective of subjectivism, which considers knowledge and meaning-making as subjective and prioritises the worldview of participants. 66 Developing a rich description of participants’ perspectives is particularly helpful in clinical research that intends to improve aspects of their environment and practice. 65 In this study, we sought to describe participants’ perceptions and experiences regarding the impact of the SDH on youth's access to dMH.
Thematic analysis
Two senior clinician–researchers who facilitated the focus groups (GD and KB) along with a senior qualitative analyst (EB) supervised the data analysis process, conducted by six RAs – two of whom were present in focus groups as notetakers. We followed Braun and Clarke's 67 six phases of thematic analysis to explore and describe the data.
In the first phase, RAs and the larger research team familiarised themselves with the entire dataset67,68 through their attendance in focus groups, creating preliminary syntheses for participant review and approval, and reading focus group transcripts. RAs memoed their reflections and questions about the data for discussion with senior researchers. In the second phase, a codebook was developed to reflect the domains in the TDF. 60 Deductive codes were determined based on the research team's expertise in implementation science and youth mental health. For example, in the ‘Environmental Context and Resources’ domain, codes included ‘lack of mental health resources’, ‘unstable Internet connection’, ‘collaborative sectors’, and other potential community barriers and facilitators. Transcripts were divided between RAs and coded deductively in Microsoft Word and Taguette coding software. 69 As new findings arose, RAs added inductive codes to the codebook to ensure that unexpected and unique factors were recognised. Researcher triangulation was attained through independent coding and subsequent review and discussion with the research team, to answer questions and resolve disagreements about coding (if any).
In the third phase, RAs reviewed the completed codebook and began clustering codes into larger patterns,67,68 many of which emphasised the SDH. The research team developed a research question focused on the SDH to guide the remaining phases of thematic analysis:
In the fifth phase, themes were agreed upon, defined, and named in relation to the research question and ‘story’ within the data.67,68 RAs selected exemplar quotes that captured the essence of each theme to include in theme titles. Finally, the sixth phase entailed producing the manuscript and presenting the themes in accordance with the qualitative descriptive approach. Exemplar quotes from participants across each service setting were included in the manuscript and are representative of sentiments shared by others.
Following the thematic analysis, the research team elected to revisit the data to observe any differences in perspectives and prevalence of discussions about the SDH between location (rural or urban), service settings, and professions, and note whether there was consensus about the SDH in focus groups. These observations are integrated in the Results and thematic analysis.
Trustworthiness and authenticity
This manuscript adheres to the consolidated criteria for reporting qualitative research (COREQ). 70
Results
Demographics
One hundred and sixty-eight participants took part in the study: 68 from schools and community-based service settings (collapsed to protect participants’ identities), 54 from specialised mental health services, and 46 from PCNs, in communities across Alberta. Participant demographics are outlined in Table 2 as frequencies and percentages.
Participant demographics (
Adapted from Dimitropoulos et al. 59 Some variables were collapsed to protect participants’ identities due to low numbers. Ethnicity percentages are not included as participants could select more than one option. *Other ethnicities include: Caribbean origins, Latin, Central, and South American origins, and participant-specified/non-specified other origins.
Discourse about the SDH across locations, service settings, and professions
Although a majority of focus groups were conducted in rural areas (19 rural and 4 urban) with common perceptions about the SDH, discourse about the SDH arose in all focus groups irrespective of location. Participants in all service settings discussed the SDH in proportion to the number of focus groups held with each service setting. The highest frequency of discussions about the SDH occurred in school service settings, which had the highest number of focus groups – followed by specialised mental health services and PCNs. Fewer discussions about the SDH occurred in community-based service settings simply due to their lower number of focus groups. Overall, mental health professionals (e.g., social workers, counsellors, therapists) prioritised the SDH above participants in other professions, followed by administrators (e.g., school leadership, clinical supervisors, case coordinators), psychologists, and nurses or physicians. There were no instances of discord among participants about the SDH. Rather, participants frequently reiterated or built upon the statements of their colleagues by sharing their own experiences.
Thematic analysis
Three overarching themes were identified that describe participants’ perspectives about the SDH and their potential impact on access to dMH for youth: (1) facing ‘ignorance and uncertainty’: the impact of social influences, (2) ‘hand-in-hand with mental illness’: the impact of socio-economic circumstances, and (3) ‘quite low-income and quite isolated’: the impact of community contextual and systemic factors. Given the need to access a service setting offering dMH, the themes are also reflective of factors affecting access to mental healthcare in general.
Theme 1: Facing ‘ignorance and uncertainty’: The impact of social influences
Participants recognised social influences as barriers to mental healthcare, and consequently, to dMH. Two distinct subthemes recurred across the data: (1) pervasive stigmatisation and marginalisation in the community, and (2) unsafe family and home environments.
In schools, specialised mental health services, and PCNs, providers stressed the adverse impact of widespread ‘
In both rural and urban areas, providers discussed compounded social influences and access-related barriers for youth who are Two-Spirit, lesbian, gay, bisexual, transgender, queer, intersex, asexual, or other gender identities and sexual orientations (2SLGBTQIA+). Participants shared that 2SLGBTQIA+ youth face ‘
Providers in rural and urban areas in schools, specialised mental health services, and PCNs considered barriers to mental healthcare and dMH for youth experiencing child maltreatment and other unsafe living conditions. Among participants, mental health professionals with direct and daily contact with youth were most concerned about youth's safety due to witnessing struggles for youth accessing their services without parent/caregiver knowledge or support. The need for youth to find a safe and private space to use dMH and the potential for youth's devices to be monitored were perceived as barriers to some youth engaging fully with digital care. One participant explained, ‘
Theme 2: ‘Hand-in-hand with mental illness’: The impact of socio-economic circumstances
Across rural and urban locations and all service settings, providers described socio-economic disparities as a predominant barrier to mental healthcare that may hinder youth's access to dMH. Socio-economic factors were intensely discussed by mental health professionals – particularly those in outreach roles in contact with youth's families and with exposure to youth's broader circumstances. Administrators in leadership positions also prioritised socio-economic factors, grounded in their comprehensive perspective of the community and service setting overall. A common concern among participants was the ability for ‘ ‘
In view of barriers to engagement, providers deliberated the feasibility of dMH for youth experiencing significant and ongoing socio-economic distress. Participants predicted that some youth may not pursue dMH, ‘ ‘
Beyond youth who lack essential needs, providers expected financial barriers to the Internet, data, and devices among youth on their caseload who are ‘
Theme 3: ‘Quite low-income and quite isolated’: The impact of community contextual and systemic factors
Participants noted that community contextual and systemic factors profoundly impact youth's access to mental healthcare, and may affect access to dMH. Focus group discussions centred around four core concerns: (1) inequitable access to mental health resources in remote and rural communities, (2) disparities in community access to the Internet, (3) lack of linguistically adapted dMH resources to support diverse community contexts, and (4) systemic marginalisation in mental healthcare.
Mental health professionals in specialised mental health services and PCNs located in rural and rural-serving urban areas emphasised high rates of acute mental health concerns among youth. In juxtaposition, providers in all locations, service settings, and professions specified that youth's access to much-needed mental healthcare and tools such as dMH is limited by the scarcity of mental health resources in remote and rural communities. Inequitable resource allocation impacted service settings in differing yet equally detrimental ways. In specialised mental health services and PCNs, participants depicted the challenge of being the ‘
Given the lack of resources, providers considered how this ‘
In all rural service settings, providers frequently pointed to geographic disparities in access to the Internet as a factor uniquely affecting access to dMH versus in-person services. Mental health professionals, administrators, and psychologists described ‘
Providers in schools, PCNs, and community-based service settings in rural and urban areas perceived the current availability of the dMH platform in English only as a barrier for their client population. Among professions, the need for linguistic adaptation in dMH was prioritised by mental health professionals working with immigrants, newcomers, international students, youth from military families, and others who do not speak English or are English Language Learners (ELL). One participant shared, ‘
In rural and urban schools and specialised mental health services, providers highlighted the impact of systemic marginalisation on youth's ability and willingness to access dMH embedded in current systems. Mental health professionals and administrators expressed that several population groups in their communities are historically and presently underserved and excluded by systems and institutions; for instance, youth who are racialized, minoritized, immigrants, undocumented immigrants, and migrants. Participants observed that systemic marginalisation in any system or institution may exacerbate youth's mistrust of mental healthcare, and therefore, ‘
Discussion
This study explored providers’ perspectives of how the SDH may affect youth's access to dMH. Three themes were identified that describe the impact of social, socio-economic, and community contextual and systemic factors. Collectively, the three themes illustrate that the SDH do not occur in isolation and may combine to produce multiple forms of disadvantage. Our study brings to light areas for discussion along with practical implications and directions for future research.
Discourse about the SDH across locations, service settings, and professions
Providers in all locations (rural or urban) demonstrated their knowledge of the SDH affecting youth. While the higher number of focus groups in rural settings inevitably shifted the focus of discussions to rural-specific challenges, it is worth noting that rural regions face elevated adversity and exposure to the SDH32,71 in comparison to urban centres. Factors such as economic stressors, higher unemployment, 32 and barriers to needed resources may contribute to poorer mental health outcomes among rural youth.50,72 Interestingly, the notion that perceived community belonging is associated with wellbeing in rural areas 73 underscores the negative impact of community stigmatisation and marginalisation noted by our participants.
Providers in schools, specialised mental health services, PCNs, and community-based service settings considered the SDH relatively equally and held common concerns. The fact that disparate access to mental health resources in rural areas was discussed in all service settings validates that access to health systems is a powerful SDH,3,29 with cyclical influence on mental health and access to dMH. More quotes about the SDH were collected from school participants due to their larger number of focus groups. However, the nature of schools as a youth-serving institution mean that youth spend much of their time in schools 29 – increasing school providers’ exposure to youth's academic, social, and mental health difficulties.74,75 School providers may be particularly aware of the SDH impacting youth's academic journeys, personal lives, and access to mental healthcare. Considering our participants’ description of the association between mental health and the SDH, it is logical that the SDH were heavily discussed in specialised mental health services which serve youth with moderate to high acuity mental illness. Youth who seek care in PCNs may also exhibit ‘social complexity’( 76 , p. 223) factors that shape their mental health, and the care that they receive. In community-based service settings, providers may hold valuable knowledge about the SDH given the recognition of social-ecological barriers and facilitators to mental health in community interventions. 74
The higher number of mental health professionals (e.g., social workers) who participated in our study (81 of 168) aligns with their frequency of discussions about the link between the SDH and dMH. Historically and presently, the social work field has advocated for acknowledgment of contextual factors affecting wellbeing.77,78 The counselling profession similarly emphasises systems thinking,
20
mental health inequities,
29
and the potential for counsellors to utilise their positionality to address the SDH.20,29 Although few administrators participated in the study (11 of 168), much dialogue about the SDH was initiated by providers in leadership roles (e.g., clinical supervisors). It is possible that some service setting leaders identified their original profession (e.g., nurse) in their demographic data and thus skewed the lower number of administrators. Regardless, their awareness of the SDH that mediate youth's access to dMH is encouraging – and appears less discussed in existing literature. Our team is exploring the role of leadership in dMH implementation as part of our larger project.
79
Fewer quotes about the SDH were tied to psychologists, nurses, and physicians, which may reflect the lower number of participants in these roles versus, for example, social workers. Prior work suggests a need for greater integration of training about the SDH in psychology,
80
nursing,
81
and medical academic and residency programmes.82,83 If medical providers have a thorough understanding of the SDH, they may still feel uncertain of how to address external factors in their scope of practice.
84
Our study amplifies the importance of providers in
Focus group consensus
In all focus groups, discussions about the SDH provoked agreement between providers through amenable interaction on the topic or simple expressions of consensus (e.g., ‘I agree’, ‘same here’, nodding). Some providers simply did not respond to the subject. If probed to share their opinion, the conversation moved to a related or new direction. Overall consensus about the SDH may be due in part to focus groups being held with providers from the same community and service setting, and genuine similarity in perceptions and experiences. Further, focus group dynamics may naturally create acceptance of others’ perspectives 85 and the tendency for certain voices to dominate the discussion. 59 The presence of service setting leadership may have affected interactions 86 by deterring some participants from sharing openly. 59 Lastly, the time pressure of the focus groups 86 and need for providers to return to their regular working day may have limited some participants’ desire to disagree or interact in general.
Thematic analysis
Theme 1: Facing ‘ignorance and uncertainty’: The impact of social influences
In the first theme, findings show that rural community stigmatisation, marginalisation, and concerns about anonymity are barriers to youth accessing mental healthcare and dMH. The relationship between rurality and barriers to mental health help-seeking is previously documented.50,87,88 To preserve anonymity and reduce perceived stigma around mental health, dMH and virtual care are cited as solutions that expand rural access to mental health resources. 89 However, Borghouts et al. 46 found that ‘setting matters’ (p. 14); maintaining privacy may be more difficult in small communities due to the potential of sharing self-identifying information through dMH, being seen using dMH, 46 or being seen accessing a service setting that offers dMH. dMH alone also cannot adequately address the stigma underlying youth's desire for privacy around their mental health and access to services. Researchers caution that strategies to improve help-seeking targeting attitudinal barriers (e.g., anti-stigma campaigns) may be ineffective in promoting behavioural change.87,89–91 Rather, studies recommend community interventions that adapt to local contexts and engage with local residents, organisations, and informal support networks to understand community inequities and strengths.50,89 Our findings call for increased efforts to address community-level stigma in rural regions to facilitate youth's access to mental healthcare and dMH.
Results also indicate that stigmatisation and marginalisation especially limits help-seeking among 2SLGBTQIA+ youth. Consistent with our findings, prior work suggests that stigma around gender identity and sexual orientation may deter access to mental healthcare by way of concerns about experiencing further discrimination in health systems 92 – particularly in rural communities. 93 Our study's requirement for parental/guardian consent to access dMH may be a barrier for youth with families/caregivers that are not affirming of their gender identity, sexual orientation, or journey of self-exploration and questioning. Conversely, other studies show that 2SLGBTQIA+ youth are actively engaged online94–96 and are willing to seek mental health support through online mediums. 44 dMH tools are developed that connect youth with inclusive service settings and other safe, 2SLGBTQIA+ -friendly spaces in the community. 92 Given that youth's preference for online support may be tied to minority stress in various forms, 96 we advocate for community work to address the stigmatisation and marginalisation of 2SLGBTQIA+ individuals so that youth are comfortable seeking dMH in local organisations.
Our study reveals that youth experiencing child maltreatment and other unsafe family and home environments face heightened barriers to dMH. In congruence with participants’ concerns, literature cautions that devices may be monitored,47,97 and that dMH may lack sufficient privacy measures to protect the safety of the user. 48 Youth may be challenged to find a safe and private space within their home to engage with dMH, 97 without placing themselves at risk. Notably, some evidence alludes that the anonymity, flexibility, and accessibility of dMH may enable access among youth in unsafe circumstances. 98 This study adds that dMH may present the opportunity to disclose child maltreatment or other trauma to a provider, and facilitate intervention. We encourage greater attention to underserved populations who are at higher risk of experiencing family violence and concurrently face barriers to dMH due to intersecting social, socio-economic, geographic, and other inequities. 48
Theme 2: ‘Hand-in-hand with mental illness’: The impact of socio-economic circumstances
The second theme establishes that socio-economic factors significantly impact youth's access to mental healthcare of any kind, including dMH. Our participants felt that youth who lack access to basic needs and/or are unhoused may engage only briefly with dMH – if at all. In prior research, studies found that youth experiencing housing instability do use and benefit from dMH, but prefer brief interventions requiring minimal interaction 99 or brief but frequent engagement (e.g., multiple times per day). 100 Although existing work supports the feasibility of dMH for youth in socio-economic distress, Lal et al. 101 note that dMH may be most effective in improving mental health when used alongside providers who are prepared to address youth's multifactorial needs. This along with our findings exemplifies a need for intersectoral collaboration in dMH implementation so that all influences on youth mental health and access to digital resources are addressed.
Also in the second theme, our study affirms that financial barriers limit youth's access to the technology required to use dMH. Concerns about the cost of the Internet, data, devices, or in-app purchases are documented in scoping 33 and systematic reviews, 46 and a qualitative study of rural youth perspectives. 102 In the Canadian context, Yu et al. 49 found that dMH users report higher incomes, private insurance, and access to a primary care physician in comparison to non-users. These findings imply that dMH may reach financially advantaged youth with existing access to health systems and providers. Accordingly, we restate the urgency to ensure that youth who are economically marginalised by current systems are not also limited in their ability to access dMH.
Theme 3: ‘Quite low-income and quite isolated’: The impact of community contextual and systemic factors
The third theme calls attention to the prevalence of unmet mental health needs among youth in rural communities. Our study is consistent with Canadian data, which finds that rural youth experience a high burden of mental health crises including suicide attempts and non-suicidal self-injuries. 16 Mental health stigma, economic pressures, 72 limited service availability,50,72 and other previously noted factors affect youth mental health and risk of suicide in isolated areas.50,72 Many Indigenous communities are rurally situated and thus disproportionately impacted by geographic inequities in access to services. 12 Although dMH is recommended to expand access to mental healthcare,33,40,41 dMH offered via current systems cannot improve access if service availability is limited by geography. We reiterate our participants’ assertion that rural communities require increased access to resources to address mental health disparities.
In rural contexts, our results also stress the digital divide as a prominent environmental barrier to dMH.33,103 This reflects the finding that a higher proportion of dMH users reside in urban centres, 49 where Internet stability is more likely. Moreover, our study aligns with the argument that dMH may ‘disproportionately benefit the more digitally advantaged segments of the population, even though such initiatives would do the most good among the digitally disadvantaged who also bear the greatest burdens in terms of poor health’.104(p576) Reglitz and Rudnick 105 assert that access to the Internet is a human right – necessary to realise the human right to mental healthcare in under-resourced communities. We advocate for improved infrastructure so that youth in any geographic location may exercise their right to mental healthcare, and dMH.
Our study suggests that offering dMH in English only does not equitably serve communities in Alberta. Systemic barriers for individuals who do not speak English or are learning English are well-documented,106–110 and greatly impact information-seeking106,107 and engagement in therapy 107 with English-speaking providers. Qualitative studies emphasise wait times for available interpreters, 109 reliance on family members for communication, and issues with confidentiality. 110 In Canada, youth who are racialized are adversely affected by the provision of mental healthcare in English only (or French in some areas). 15 This study highlights that the predominance of the English language in health systems and dMH may interact with and exacerbate other barriers to accessing mental healthcare. Using community co-design, the translation of dMH products into multiple languages may increase the accessibility 111 and cultural relevance of dMH.
Finally, a key finding is that systemic marginalisation may affect youth's ability and willingness to access dMH embedded in current mental healthcare pathways. There is heterogeneity between and within the populations noted by our participants; individual experiences may also vary irrespective of affiliation with a particular group, and are impacted by intersectionality. In line with our findings, Kamali et al. 112 found that youth who are racialized, ethnic minorities, immigrants, or refugees were less likely to seek and/or access mental healthcare. A Canadian survey found that People of Colour sought mental health services more frequently – yet experienced greater access-related barriers than White participants. 15 Mistrust of systems, service settings, and providers is a barrier for some youth who are racialized, immigrants, 22 migrants, or refugees. 108 Youth may be alienated from mental health systems by experiences of discrimination and racism, cultural misunderstandings leading to improper diagnoses and treatment, 22 challenges in obtaining legal documents to access services, 108 or other factors. Together with our study, these data denote the need to attend to systemic barriers to improve access to the mental health system and dMH for youth experiencing marginalisation.
Relevance for clinical practice
Participants identified recommendations for addressing the SDH affecting youth's access to dMH (Table 3). For example, participants advised the inclusion of specific assessment domains, providing access to Internet and technology in service settings, and training to build trust with marginalised populations. Participants also considered ways that dMH might improve access to mental healthcare by providing access in under-resourced areas or to youth on waitlists.
Provider recommendations for increasing access to dMH for youth.
dMH: digital mental health.
Our findings offer other implications for service settings, providers, and decision-makers. In relation to the first theme, providers perceived that some minors may face barriers in obtaining consent to access mental healthcare and dMH. We suggest that providers apply the same informed consent and mature minor practices to dMH as are applied in mental healthcare in general (e.g., limits to confidentiality in disclosures of child maltreatment). Service settings should consider developing protocols to address disclosures in the context of dMH, and providers should work with youth to develop a safety plan for using dMH. dMH itself should incorporate a safe-exit feature.
The second theme indicates that youth experiencing socio-economic instability should be met ‘where they are at’ by addressing their current needs. Service settings and providers might consider using dMH to support flexible hours for accessing care and incorporating dMH into mobile services. dMH can also enable continuity of care 40 for youth who are unhoused/mobile by allowing providers to access youth's data no matter where youth present for services.
There are also opportunities to simultaneously address multiple SDH. First, we propose the implementation of dMH in integrated youth services (IYS). IYS provide youth-centred care including physical health, mental health, and social services in one location. 113 Recent data show that IYS attract youth who are historically and presently underserved and excluded,113,114 including youth who are racialized, unhoused, or unemployed. 113 Implementing dMH in IYS would provide accessible, flexible access to mental healthcare alongside assistance in meeting youth's other needs (e.g., food, housing, employment).
Second, we recommend that dMH incorporate screening for various social, economic, environmental, and systemic factors. A holistic approach to mental health assessment may provide valuable information about external factors exacerbating mental health concerns and engagement with mental healthcare, and enable providers to intervene in meaningful ways. Providers should work with youth to understand their own experiences with the SDH and collaboratively identify relevant and realistic areas for intervention.
Future directions
This study reveals a pressing need for system-level change. We suggest that researchers utilise co-design methodologies involving youth, systems, service settings, providers, decision-makers, and other partners to determine how mental health systems might improve their overall accessibility and access to dMH for youth who are underserved and excluded. The involvement of youth partners in initial project phases through data collection and analysis is imperative to ensure that research conducted about youth is pertinent to youth themselves. Youth partners may provide insight regarding how to reach and engage other youth who are not currently accessing mental healthcare or dMH due to barriers. This work should identify strategies and best practices for providers, outlining ways that providers can address the SDH with youth.
Within this programme of research and larger project, we are exploring the perspectives of youth, 115 providers,45,58,59 and leadership 79 to understand how systems might improve access to dMH. Manuscripts presenting the post-implementation perspectives of providers and leadership regarding barriers and facilitators to dMH access and implementation are forthcoming.
Strengths and limitations
To our knowledge, this study is the first to describe the relationship between the SDH and access to dMH from providers’ perceptions and practical experiences. A strength of this study is the inclusion of providers from diverse disciplines and communities across Alberta, Canada. This allowed for a breadth of perspectives on the ways in which the SDH may affect youth's access to dMH. Another strength is the involvement of research team members with lived experience of mental illness, along with members with clinical and research experience. This provided a balance of insights during data analysis. A limitation is that our interview guide focused on general barriers and facilitators to dMH implementation, rather than questions about the SDH. Inquiring explicitly about the SDH may have resulted in more specific barriers and recommendations. Relatedly, our findings may not capture the nuances of barriers to dMH for specific population groups, or individual and intersectional experiences. It is also important to note that our study presents the perspectives of providers about youth, and not youth themselves. Our participants included more female than male participants; this reflects the gender distribution of providers in the mental health field. Lastly, our findings centre the experiences of providers in Alberta, Canada, and may not be representative of other contexts.
Conclusions
This study sought to explore the perspectives of providers regarding how the SDH may affect access to dMH for youth in Alberta, Canada. Our findings show that social influences, socio-economic circumstances, and the community context and systems are instrumental and intersecting SDH affecting youth's pathways to accessing dMH. The identified themes provide practical insight to service settings and providers working with youth experiencing mental illness, and navigating external factors along their journey.
Providers’ experiences in working with youth from various social locations emphasise that access to dMH is a matter of mental health equity. Understanding and addressing the barriers to dMH is crucial to ensure that dMH reaches and benefits youth who are underserved and excluded by current systems – alongside youth who already access mental healthcare. Through additional research and efforts, we may better understand how dMH might create new and transformative pathways to mental healthcare and improve mental health outcomes for all youth.
Footnotes
Acknowledgements
The authors extend their gratitude to the study's implementation team who facilitated the implementation of dMH in Alberta communities, trained providers in using dMH, and shared providers’ feedback with the research team throughout the project. Additionally, the authors acknowledge the time and efforts of providers responsible for implementing dMH, organisation leaders, and other partners involved in this work. We thank you for sharing your perspectives with us to inform accessible mental health services for young people. To the individuals with lived experience whom we have met through research, advocacy, and in health systems: thank you for continuously inspiring us to think and work reflexively, ask questions, and prioritise youth. Your stories and expertise guide our work, and our passion for youth mental health.
Author Note
Jason Gondziola, Leanne Stamp, Melanie Fersovitch, Karen Moskovic, and Jessica Bradley are now affiliated with the Department of Pediatrics, Cumming School of Medicine, University of Calgary, Calgary, Canada.
ORCID iDs
Ethical approval
This study was approved by the Conjoint Health Research Ethics Board at the University of Calgary (‘eMH Qualitative Study – Pre-Implementation and Implementation’ – REB20-1137).
Contributorship
LN, GD, KB, EB, SS, HL, IH and FI were involved in conceptualisation; LN, GD, KB, EB, MB, JHG, KP, SD, LV, SS and KG in data curation and formal analysis; GD in funding acquisition and methodology; GD, KB, EB, LN, KP, JG, LS, JB, MF and KM in investigation; GD, KB and EB in project administration; GD, KB, EB, MB and JHG in supervision; LN, GD, KB and EB in writing – original draft; and LN, GD, KB, EB, MB, JHG, JG, LS, JB, MF, KM, HL, IH and FI in writing – review and editing.
Funding
The authors disclose receipt of the following financial support for the research, authorship, and publication of this article: this work was supported by the Partnership for Research and Innovation in the Health System (PRIHS) Program, Alberta Health Services, the Alberta Children's Hospital Foundation, and the Canadian Institutes of Health Research (CIHR) [Operating Grant: SPOR iCT Rewarding Success].
Declaration of conflicting interest
The authors declare no potential conflicts of interest with respect to the research, authorship, and publication of this article.
Data availability
Research data is not shared in compliance with ethics measures in place to protect participant confidentiality and privacy.
Guarantor
GD.
Informed Consent
All participants provided written informed consent via an online consent form prior to participating.
Peer Review
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