Mechanical Ventilation and Respiratory Care in the Home in the 1990s: Some Personal Observations

Faure EAM , Goldberg AI , eds. Proceedings of an international symposium: What ever happened to the polio patient?Chicago: Northwestern University Press, 1982.

Goldberg AI . Home care for a better life for ventilator-dependent people. Chest1983;84:365–366.

Laurie G , ed. Rehabilitation Gazette. St Louis: Gazette International Networking Institute.

Report of the Surgeon General's workshop. Children with handicaps and their families. Case example: The ventilator dependent child (publication PHS-83-50194). Washington DC: Department of Health and Human Services, 1983.

Aday LU , Wegener DH , Andersen RM , Aitken MJ . Home care for ventilator assisted children. Health Affairs1989;8:137–147.

U.S. Congress, Office of Technology Assessment. Technology dependent children: Hospital vs home care-A technical memorandum (OTA-TM-H-38). Washington DC: U.S. Government Printing Office, 1987.

U.S. Congress, Office of Technology Assessment. Life sustaining technologies and the elderly (OTA-BA-306). Washington DC: U.S. Government Printing Office, 1987.

U.S. Department of Health and Human Services. Report of the task force on technology dependent children. Vols 1 and 2 (HCFA 88-021271). Washington DC: U.S. Government Printing Office, 1988.

U.S. Department of Health and Human Services, Health Care Financing Administration. Federal Register 12/14/88;53(240).

Goldberg AI , Kettrick RG , Buzdygam D , Lis E , Schraeder B , Vaughn C. Home mechanical ventilation program for infants and children. Crit Care Med1980;8:238.

Burr BH , Guyer B , Todres ID , Abraham B , Chiode T. Home care for children on respirators. N Engl J Med1983;309:1319–1323.

Gilmartin M , Make B. Home care of the ventilator dependent person. Respir Care1983;28:365–366.

Splaingard MC , Frates RC , Harrison GM , Carter RE , Jefferson LS . Home positive pressure ventilation-twenty years experience. Chest1983;84:376–382.

Goldberg AI , Faure EAM , Vaughn CJ , Snarski R , Seleny FL . Home care for life supported persons: An approach to program development. J Pediatr1984;104:785–795.

Make R , Gilmartin M , Brody JS , Snider GL . Rehabilitation of the ventilator dependent subject with lung disease-The concept and initial experience. Chest1984;86:358–365.

Indihar FJ , Walker NF . Experience with a prolonged respiratory care unit-Revisited. Chest1984;86:616–620.

Downes JJ , Schreiner MS , Kettrick RG . Chronic respiratory failure of infancy: Causes and survival (abstract). Crit Care Med1984;12:339.

Frates RC , Splaingard ML , Harrison GM . Outcome of home mechanical ventilation for children. J Pediatr1985;106:850–856.

Kettrick RG , Donar ME . The ventilator dependent child: Medical and social care. In: Critical Care State of the Art IV(F):1–38. Fullerton CA: The Society of Critical Care Medicine, 1985.

Johnson DL , Giovannoni RM , Driscoll SA , eds. Ventilator assisted patient care-Planning for hospital discharge and home care. Rockville MD: Aspen Publishers, 1986.

Schreiner MS , Downes J , Kettrick RG , Ise C , Voit R. Chronic respiratory failure in infants with prolonged ventilator dependency. JAMA1987;258:3398–3404.

Schreiner MS , Donar ME , Kettrick RG . Pediatric home mechanical ventilation. Pediatr Clin North Am1987;34(1):47–60.

Goldberg AI . Home care and alternatives to hospitalization in France for medical technology dependent children and adults with severe chronic respiratory insufficiency-The associative system. Geneva, Switzerland: World Health Organization Fellowship Report, 1986.

Goldberg AI . The regional approach to home care for life supported persons. Chest1984;86:345–346.

Goldberg AI , Faure EAM . Home care for life supported person in France: The regional association. Rehabilitation Literature1986;47(3-4):60–64, 103.

Goldberg AI . Home care for life supported persons-Is a national approach the answer?Chest1986;90:744–748.

Goldberg AI . Home care for life supported persons: The French system of quality control, technology assessment, and cost containment. Public Health Reports1989;104(4):329–336.

Goldberg AI , Faure EAM . Home care for life-supported persons in England: The Responaut program. Chest1984;86:910–914.

Responaut Panel Research Team. The Responaut study: Final report. London: St Thomas' Hospital, 1974.

Payer L. Medicine and culture: Varieties of treatment in the United States, England, West Germany, and France. New York: Henry Holt and Company, 1988.

Goldberg AI . International exchange of experts and information in rehabilitation fellowship report: Home care services for severely physically disabled people in England and France. Case example: The ventilator-dependent person. New York: World Rehabilitation Fund, 1983.

New York Times, 11/11/81.

Lebreton G , Ludot A , Tripier A. Les insuffisants respiratoires chroniques graves pris en charge a 100% par le regime general de Securite Sociale. Revue Medicale Assurance Maladie1981;3:3–6.

O'Donohue WJ , Giovannoni AM , Goldberg AI , . American College of Chest Physicians. Long-term mechanical ventilation: Guidelines for management in the home and at alternate community sites. Chest1986;90:1S–37S.

American Association for Respiratory Care, Food and Drug Administration, and Health Resources Services Administration. Consensus Conference on Home Respiratory Care Equipment. Dallas: AARC, 1989.

Plummer AL , O'Donohue WJ , Petty TL . Consensus conference on problems in home mechanical ventilation. Am Rev Respir Dis1989;140:555–560.

ANTADIR. Home care for chronic respiratory insufficiency conference. Lyon, France, March 14-15, 1985.

Webb-Waring Lung Institute. Home mechanical ventilation conference. Denver CO: March 3-4, 1988.

Journées Internationales de Ventilation a Domicile. International conference on home mechanical ventilation conference. Lyon, France: January 26-27, 1989.

Gazette International Networking Institute. Fifth international post-polio conference. St Louis: May 31-June 4, 1989.

French WL , Bell CH , eds. Organizational development: Behavioral science interventions for organizational improvement. Englewood Cliffs NJ: Prentice Hall, 1984.

Peters T , Austin N. Passion for excellence: The leadership difference. New York: Random House, 1985.

O'Toole J. Vanguard management. New York: Doubleday, 1985.

Drucker PE . Management and the world's work. Harvard Business Review1988;66:65–76.

Stern L , El-Ansary AI . Market channels. Englewood Cliffs NJ: Prentice Hall, 1988.

American Society for Testing and Materials. Designation F29.09.03. Philadelphia: Am Soc Testing & Materials.

American Society for Testing and Materials. Designation F31.01.02. Philadelphia: Am Soc Testing & Materials.

Joint Commission on Accreditation of Health Care Organizations. Home health care standards.

Leger P , Gerard M , Mercatello A , Robert D. Transtracheal catheter for oxygen therapy of patients requiring high oxygen flows. Respiration1984;46(S1):103.

Christopher KL , Spofford BT , Brannin PK , Petty TL . Transtracheal oxygen therapy for refractory hypoxemia. JAMA1986;256:494–497.

Ellis ER , Bye PTP , Bruderer JW , Sullivan CE . Treatment of respiratory failure during sleep in patients with neuromuscular disease: Positive-pressure ventilation through a nose mask. Am Rev Respir Dis1987;135:148–152.

Rideau Y. The Duchenne muscular dystrophy child: Care of wheelchair dependent patient (abstract). Muscle Nerve1986;9(Suppl 5):86.

Bach JR , Alba A , Mosher R , Delaubier A. Intermittent positive pressure ventilation via nasal access in the management of respiratory insufficiency. Chest1987;92:168–170.

Bedicam JM , Beaucour M , Freychet A , Lorrigan E. Ventilation mechanicque par voie nasale. Monographie de la societe de reanimiation de langue francaise. Limoges, France: Expansion Scientifique Francaise, 1987:241–250.

Leger P , Jennequin J , Gerard M , Robert D. Home positive pressure ventilation via nasal mask for patients with neuromuscular weakness or restrictive lung or chest wall disease. Respir Care1989;34:73–79.