School participation for children with congenital heart disease (CHD) can be challenging. Despite advances in treatment that have increased survival to adulthood and decreased morbidity, concerns remain about their health and safety in the school environment. This article, the first in a two-part series, provides an overview of the health issues involving school-age children with CHD. School nurses are in a unique position to advocate for the child’s health care needs in the school setting, facilitate communication with the health care team, educate school personnel, and participate in the individualized educational planning process.
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