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Abstract

The role of the internet, and in particular e-health, in chronic illness is a burgeoning phenomenon but its use to date in cancer care is somewhat limited. In this study an iterative consultative process was undertaken with the aim to develop a cancer care website that was patient-led, facilitated cancer self-management and had the potential to improve communication between patients, family and friends and health care professionals. The process involved multiple demonstrations of an already established base platform (SeeCare^©) to potential end users (patients, family members and friends and health professionals) to identify required functions of a cancer care specific platform. An exhaustive list of specifications was prioritised and operationalised resulting in a web platform for people affected by cancer that was ready for testing in the clinical setting: CanCare.

Keywords

cancer cancer care website development information and communication patient-led specifications technology

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References

Australian Bureau of Statistics (2011) Household use of information technology, Australia 2010–11. Available at: http://www.abs.gov.au/AUSSTATS/abs@.nsf/Latestproducts/D11394A54F8B9ED1CA25796600152C62?opendocument (accessed 25 January 2012).

Australian Health Ministers’ Advisory Council (2009) Healthcare identifiers and privacy: Discussion paper on proposals for legislative support. Available at: http://www.privacy.vic.gov.au/privacy/web2.nsf/files/healthcare-identifiers-and-privacy-discussion-paper-2009/$file/submission_08_09_no2.pdf (accessed 30 November 2011).

Australian Institute of Health and Welfare (2011) Nursing and midwifery labour force 2009. AIHW bulletin no. 90. Cat. no. AUS 139. Canberra: AIHW. Available at: http://www.aihw.gov.au/publication-detail/?id=10737419682 (accessed 10 November 2011).

Bodenheimer

Grumbach

(2003) Electronic technology. JAMA: The Journal of the American Medical Association 290: 259–264.

Bodenheimer

Wagner

Grumbach

(2002) Improving primary care for patients with chronic illness. JAMA: The Journal of the American Medical Association 288: 1775–1779.

Dávalos

French

Burdick

(2009) Economic evaluation of telemedicine: Review of the literature and research guidelines for benefit–cost analysis. Telemedicine Journal and e-Health: The Official Journal of the American Telemedicine Association 15: 933–948.

Eland-de Kok

van Os-Medendorp

Vergouwe-Meijer

(2011) A systematic review of the effects of e-health on chronically ill patients. Journal of Clinical Nursing 20: 2997–3010.

Hoybye

Dalton

Christensen

(2010) Social and psychological determinants of participation in internet-based cancer support groups. Supportive Care in Cancer: Official Journal of the Multinational Association of Supportive Care in Cancer 18: 553–560.

Hoybye

Johansen

Tjornhoj-Thomsen

(2005) Online interaction. Effects of storytelling in an internet breast cancer support group. Psycho-Oncology 14: 211–220.

10.

Jacobson

Christerson

Jonsson

(1992) Object-oriented Software Engineering: A Use Case Driven Approach Reading, USA: Addison-Wesley.

11.

Katz

Moyer

(2004) The emerging role of online communication between patients and their providers. Journal of General Internal Medicine 19: 978–983.

12.

Kim

Chung

(2007) Characteristics of cancer blog users. Journal of the Medical Library Association 95: 445–450.

13.

Kittler

Carlson

Harris

(2004) Primary care physician attitudes towards using a secure web-based portal designed to facilitate electronic communication with patients. Informatics in Primary Care 12: 129–138.

14.

Kripalani

LeFevre

Phillips

(2007) Deficits in communication and information transfer between hospital-based and primary care physicians. JAMA: The Journal of the American Medical Association 297: 831–841.

15.

Lee

C-J

Gray

Lewis

(2010) Internet use leads patients to be active health care consumers. Patient Education and Counseling 81(S1): S63–S69.

16.

Lewis

Gundwardena

El Saadawi

(2005) Caring connection – developing an internet resource for family caregivers of children with cancer. Computers, Informatics, Nursing: CIN 23: 265–274.

17.

Lorig

Ritter

Laurent

(2006) Internet-based chronic disease self-management: A randomised trial. Medical Care 44: 964–971.

18.

McCorkle

Ercolano

Lazenby

(2011) Self-management: Enabling and empowering patients living with cancer as a chronic illness. CA: A Cancer Journal for Clinicians 61: 50–62.

19.

McNamara N and Kirakowski J (2006) Functionality, usability and user experience. Available at: http://interactions.acm.org/archive/view/november-december-2006/functionality-usability-and-user-experience1 (accessed 18 July 2012).

20.

Morgan

Davies

Palmer

Plaster

(2010) Sex, drugs and rock ‘n’ roll: Caring for adolescents and young adults with cancer. Journal of Clinical Oncology 28(32): 4825–4830.

21.

Oransky

(2005) Cancer blogs. The Lancet Oncology 6: 838–839.

22.

Sands

Halamka

Pellaton

(2001) PatientSite: A web-based clinical communication and health education tool. In: The Healthcare Information and Management Systems Society (HIMSS) , New Orleans, USA, 4–8 February 2001. Chicago: HIMSS

23.

Stone

Harsha Rao

Sevick

(2010) Active care management supported by home telemonitoring in veterans with type 2 diabetes. Diabetes Care 33: 478–484.

24.

Wagner

Bennett

Austin

(2005) Finding common ground: Patient-centeredness and evidence-based chronic illness care. Journal of Alternative and Complementary Medicine (New York, NY) 11(Suppl. 1): S7–S15.

25.

Wang

Senecal

(2008) Measuring perceived website usability. Journal of Internet Commerce 6(4): 97–112.

26.

World Health Organisation (1998) A Health Telematics Policy in Support of WHO’s Health-For-All strategy for Global Health Development: Report of the WHO Group Consultation on Health Telematics, 11–16 December, Geneva, 1997 Geneva: World Health Organisation, 1998.

27.

Zwar N, Harris M, Griffiths R, et al. (2006) A Systematic Review Of Chronic Disease Management. Sydney: Research Centre for Primary Health Care and Equity, University of New South Wales.

Developing a patient-led cancer care website,‘CanCare': what do end users want?

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