College students with intellectual and developmental disabilities in inclusive postsecondary education (IPSE) programs face unique physical wellness challenges. However, the majority of scholarship highlights family and IPSE staff perspectives as opposed to centering student voices. This study explores the lived experiences of college students with intellectual and developmental disabilities in developing and maintaining physical wellness. We used consensual qualitative research to explore physical wellness experiences gathered from semi-structured interviews of 14 college students with intellectual and developmental disabilities in an IPSE program. Following CQR guidelines, we present four fully differentiated domains organized into development, maintenance, and mediating domains. We offer implications for educators, caregivers, and IPSE staff to better support wellness behaviors and address the interconnected challenges of being a college student and living with intellectual and developmental disabilities.
AndersonL. L.HumphriesK.McDermottS., et al.2013. The state of the science of health and wellness for adults with intellectual and developmental disabilities. Intellectual and Developmental Disabilities, 51(5), 385–398.
3.
BanduraA.1977. Self-efficacy: Toward a unifying theory of behavioral change. Psychological Review, 84(2), 191–215.
4.
CassA. L.HoltE. W.CrissS., et al.2021. Health-related priorities, perceptions, and values of university students: Implications for wellness education. American Journal of Health Education, 52(1), 37–47.
5.
CastleM.GilreathR.FieldsA. M., et al. (2024) Wellness counseling group intervention for college students with intellectual and developmental disabilities: A pilot study. Journal of Specialists in Group Work49(4): 161–180.
DolmageJ. T.2017. Academic ableism: Disability and higher education. University of Michigan Press.
8.
FieldsA. M.LewisO.CastleM., et al.2024. College students with intellectual and developmental disabilities’ experiences, conception, and development of emotional wellness. Intellectual & Developmental Disabilities, 62(4), 274–286.
9.
GlesneC. (2016) Becoming Qualitative Researchers: An Introduction. 5th ed. Upper Saddle River, New Jersey: Pearson.
10.
GrigalM.HartD.WeirC.2012. A survey of postsecondary education programs for students with intellectual disabilities in the United States. Journal of Policy and Practice in Intellectual Disabilities, 9(4), 223–233.
11.
HagiwaraM.ShogrenK. A.RifenbarkG. G.2020. Examining the impact of personal factors on scores on the self-determination inventory: Adult report in adults with disabilities. Journal of Policy and Practice in Intellectual Disabilities18(2), 120-130.
12.
HemmC.DagnanD.MeyerT. D.2018. Social anxiety and parental overprotection in young adults with and without intellectual disabilities. Journal of Applied Research in Intellectual Disabilities, 31(3), 360-368.
13.
Higher Education Opportunity Act of 2008, 20 USC § 1001 et seq. 2008.
14.
HillC. E.KnoxS.2021. Essentials of consensual qualitative research. American Psychological Association.
15.
HolmesA. G. D.2020. Researcher positionality - A consideration of its influence and place in qualitative research - A new researcher guide. Shanlax International Journal of Education, 8(4), pp. 1-10.
16.
KrahnG. L.HavercampS. M.2019. From invisible to visible to valued: improving population health of people with intellectual and developmental disabilities. Intellectual and Developmental Disabilities, 57(5), 476–481.
17.
LimbergD.GuestJ. D.GonzalesS. K. (2022). History of research in the social sciences. In FlynnS. V. (Ed.), Research design for the behavioral sciences: An applied approach (pp. 43–70). Springer Publishing.
18.
LynchL.McCarronM.Eustace-CookJ., et al.2022. Physical health effects of sedentary behaviour on adults with an intellectual disability: A scoping review. Journal of Intellectual Disabilities, 29(1), 167-193.
19.
McLayL.van DeursJ.GibbsR., et al.2021. Empirically supported strategies for teaching personal hygiene skills to people with intellectual disabilities. In Adaptive Behavior Strategies for Individuals with Intellectual and Developmental Disabilities: Evidence-Based Practices Across the Life Span (pp. 47-72). Cham: Springer International Publishing.
20.
MillerB. J.BerlingoL.2023. Perspectives and experiences on engaging in physical activity for adults with intellectual disabilities. Global Journal of Intellectual & Developmental Disabilities, 11(5).
21.
OakesL.HickersonB.MilroyJ. J.2020a. Let’s talk about health: Engaging college students with intellectual and/or developmental disabilities and support staff in conversations about health and wellness needs. Journal of Inclusive Postsecondary Education2(1), 1-22.
22.
OakesL.MilroyJ. J.HickersonB.2020b. Health disparities and health promotion needs of college students with intellectual and/or developmental disabilities: A systematic literature review. Journal of American College Health68(7), 742-753.
23.
OakesL. R.NicholsT. R.SchleienS. J., et al.2021. Exploring inclusion of college students with IDD in campus recreation through the lens of recreation departments’ organizational level stakeholders. Recreational Sports Journal, 45(1), 34–51.
24.
O’ByrneC.MuldoonO. T.2019. The construction of intellectual disability by parents and teachers. Disability & Society, 34(1), 46-67.
25.
OhrtJ. H.ClarkeP. B.ConleyA. H.2019. Wellness counseling: A holistic approach to prevention and intervention. American Counseling Association.
26.
PanhwarA. H.AnsariS.ShahA. A.2017. Post-positivism: An effective paradigm for social and educational research. International Research Journal of Arts and Humanities, 45(45), 253-259.
27.
PlotnerA. J.MarshallK. J.2015. Postsecondary Education Programs for Students With an Intellectual Disability: Facilitators and Barriers to Implementation. Intellectual and Developmental Disabilities53(1): 58–69. doi:
28.
PorojanA.MorganA.AvilaC.2013. Wellness and academic performance in undergraduate students: A cross-sectional study. The International Journal of Health, Wellness and Society, 3(2), 103–116.
29.
RobertsD. A.HerringM.PlotnerA., et al.2018. Physical activity in inclusive postsecondary education for students with intellectual disability. Journal of Postsecondary Education and Disability, 31(3), 239–252.
30.
SafiS.WongG.ThirskL., et al.2024. Examining sedentary behaviours of adults with intellectual disabilities: A qualitative analysis. Journal of Intellectual Disabilities.
31.
SiasocoV.2014. Provider training needs for the care of patients with intellectual and developmental disabilities (IDD). The Exceptional Parent, 44(8), 28–30.
32.
SinghN. N.2020. Implementation science of mindfulness in intellectual and developmental disabilities. American Journal on Intellectual and Developmental Disabilities, 125(5), 345-348.
33.
Smith HillR. B.StinnettC. V.PlotnerA. J., et al.2024a. An Interdisciplinary Approach to Supporting the Personal Development of College Students With an Intellectual Disability. Inclusive Practices, 3(1-2), 3-13.
34.
Smith HillR.B.StinnettC.V.2024. Disability as diversity in higher education spaces. In: ReardonR.M.LeonardJ. (eds) Justice, equity, diversity, and inclusion in education: School-university-community research. pp.163.
UditskyB.HughsonE.2012. Inclusive postsecondary education—An evidence-based moral imperative. Journal of Policy and Practice in Intellectual Disabilities, 9(4), 298–302.
37.
WardT.StewartC.2008. Putting human rights into practice with people with an intellectual disability. Journal of Developmental and Physical Disabilities, 20, 297-311.
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