The aim of this study was to investigate the oral health status and quality of life (QOL) of the parental caregivers of individuals with Down syndrome (DS), and to evaluate whether there is an association between these variables. The sample of this cross-sectional study was composed by parental caregivers of children with DS (CCDS) and parental caregivers of children without DS (CNDSC). Oral examination was undertaken and a questionnaire was given to participants. QOL was evaluated by WHOQOL-Bref. CCDS presented a higher number of dental prosthesis users and higher gingival bleeding index compared to CNDSC. When oral health was associated with QOL, the use of dental prosthesis was associated with physical domain and the variables having chronic disease and family income were associated with the social domain for both caregivers. The results suggest that caregivers of children with DS have similar oral health and QOL compared to caregivers of children without DS. In both caregivers, oral health status is associated with QOL.
AinamoJBayI (1976) Periodontal indexes for and in practice. Tandlaegebladet80(5): 149–152.
2.
ArnoldRRanchorAVSandermanR, et al. (2004) The relative contribution of domains of quality of life to overall quality of life for different chronic diseases. Quality of Life Research13(5): 883–896.
3.
Brazil, Ministry of Health (2004) National Oral Health Coordination. SB Brazil Project 2003: Oral Health Conditions of the Brazilian Population 2002–2003: Main Results. Brasilia: Ministry of Health. Available at: https://bvsms.saude.gov.br/bvs/publicacoes/condicoes_saude_bucal.pdf(accessed 2 July 2021).
BrehautJCGarnerREMillerAR, et al. (2011) Changes over time in the health of caregivers of children with health problems: growth-curve findings from a 10-year Canadian population-based study. American Journal of Public Health101: 2308–2316.
7.
BrondaniMAMacEnteeMI (2007) The concept of validity in sociodental indicators and oral health-related quality-of-life measures. Community Dentistry and Oral Epidemiology35(6): 472–478.
8.
BullMJ (2020) Down syndrome. The New England Journal of Medicine382(24): 2344–2352.
9.
BuzattoLBR (2008) Quality of life of parents with Down syndrome children. Einstein6(2): 175–181.
10.
de GraafGBuckleyFSkotkoBG (2015) Estimates of the live births, natural losses, and elective terminations with Down syndrome in the United States. American Journal of Medical Genetics167: 756–767.
11.
EricssonYHardwickL (1978) Individual diagnosis, prognosis and counselling for caries prevention. Caries Research12: 94–102.
12.
FariaJSSeidlEMF (2005) Religiosity and coping in health and disease contexts: a literature review. Psicologia: Reflexão e Critica18(3): 381–389.
13.
FleckMPLouzadaSXavierM, et al. (2000) Application of the Portuguese version of the abbreviated instrument of quality life WHOQOL-Bref. Revista de Saude Publica34(2): 178–183.
14.
GreenbergJSSeltzerMMKraussMW, et al. (2004) The effect of quality of the relationship between mothers and adult children with schizophrenia, autism, or Down syndrome on maternal well-being: the mediating role of optimism. American Journal of Orthopsychiatry74(1): 14–25.
15.
HugoFNHilgertJBde Sousa MdaL, et al. (2009) Oral status and its association with general quality of life in older independent-living south-Brazilians. Community Dentistry and Oral Epidemiology37(3): 231–240.
16.
MackFSchwahnCFeineJS, et al. (2005) The impact of tooth loss on general health related to quality of life among elderly Pomeranians: results from the study of health in Pomerania (SHIP-O). International Journal of Prosthodontics18(5): 414–419.
17.
MarquisSHayesMVMcGrailK (2019) Factors affecting the health of caregivers of children who have an intellectual/developmental disability. Journal of Policy and Practice in Intellectual Disabilities16(3): 201–216.
18.
MoreiraRSNicoLSTomitaNE, et al. (2005) Oral health of Brazilian elderly: a systematic review of epidemiologic status and dental care access. Cadernos de Saúde Pública21(6): 1665–1675.
19.
RainaPO’DonnellMRosenbaumP, et al. (2005) The health and well-being of caregivers of children with cerebral palsy. Pediatrics115(6): 626–636.
20.
SheihamA (2005) Oral health, general health and quality of life. Bulletin of the World Health Organization83(9): 644.
21.
StonemanZ (2007) Examining the Down syndrome advantage: mothers and fathers of young children with disabilities. Journal of Intellectual Disability Research51(12): 1006–1017.
22.
SunelaitisRCAArrudaDCMarcomSS (2007) The impact of a Down Syndrome diagnosis on the family dynamic: mother’s perspective. Acta Paulista de Enfermagem20(3): 264–271.
23.
TotsikaVHastingsRPVagenasD (2017) Informal caregivers of people with an intellectual disability in England: health, quality of life and impact of caring. Health and Social Care in the Community25(3): 951–961.
ZhuJLHasleHCorreaA, et al. (2013) Survival among people with Down syndrome: a nationwide population-based study in Denmark. Genetics in Medicine15(1): 64–69.
