A narrative review of the literature about people with intellectual disability who identify as lesbian,gay,bisexual,transgender,intersex or questioning
Restricted accessReview articleFirst published online June, 2018
A narrative review of the literature about people with intellectual disability who identify as lesbian,gay,bisexual,transgender,intersex or questioning
This narrative review of the research literature presents a summary about the key issues facing people with intellectual disability (ID) who identify as lesbian, gay, bisexual, transgender, intersex or questioning (LGBTIQ). The aim of this review was to consolidate research of the topic; to identify whether any pilot studies reporting social/sexual/educational interventions had been published; and to offer some perspective on the type of future research required to better inform policy, practice and theory that may lead to better outcomes for people with ID who identify as LGBTIQ. Almost all of the research literature on the topic is either exploratory or descriptive which serves to outline the range of issues faced by people with ID who identify as LGBTIQ. Urgently needed as the next step, however, is a concerted effort to conduct a range of innovative educational and social interventions with collection of targeted and appropriate outcomes data.
AbbottD (2013) Nudge, nudge, wink, wink: love, sex and gay men with intellectual disabilities – a helping hand or a human right?Journal of Intellectual Disability Research57(11): 1079–1087.
2.
AbbottD (2015) Love in a Cold Climate: changes in the fortunes of LGBT men and women with learning disabilities?British Journal of Learning Disabilities43(2): 100–105.
3.
AbbottDBurnsJ (2007) What’s love got to do with it? Experiences of lesbian, gay and bisexual people with intellectual disabilities in the United Kingdom and views of the staff who support them. Sexuality Research & Social Policy4(1): 27–39.
4.
AbbottDHowarthJ (2003) A secret love: a hidden life. Learning Disability Practice6(1): 14–17.
5.
AbbottDHowarthJ (2007) Still off-limits? Staff views on supporting gay, lesbian and bisexual people with intellectual disabilities to develop sexual and intimate relationships. Journal of Applied Research in Intellectual Disabilities20: 116–126. DOI: 10.1111/j.1468-3148.2006.00312.x.
6.
AppelJM (2010) Sex rights for the disabled?Journal of Medical Ethics36(3): 152–154.
7.
AzzopardiSHorselyPPietschD (1990) “So You Won’t Get AIDS”: STD/AIDS Prevention Education for People with Intellectual Disabilities. Canberra, Australia: Commonwealth Department of Health and Family Services.
8.
BedardCZhangHLZuckerKJ (2010) Gender identity and sexual orientation in people with developmental disabilities. Sexuality and Disability28(3): 165–175.
9.
BurnsJDaviesD (2011) Same-sex relationships and women with intellectual disabilities. Journal of Applied Research in Intellectual Disabilities24(4): 351–360.
10.
CambridgeP (1996a) Men with learning disabilities who have sex with men in public places: mapping the needs of services and users in South East London. Journal of Intellectual Disability Research40(3): 241–251.
11.
CambridgeP (1996b) Assessing and meeting needs in HIV and learning disability. British Journal of Learning Disabilities24(2): 52–57.
12.
CambridgeP (1997a) At whose risk: priorities and conflicts for policy development in HIV and intellectual disability. Journal of Applied Research in Intellectual Disabilities10(2): 83–104.
13.
CambridgeP (1997b) How far to gay? The politics of HIV in learning disability. Disability & Society12(3): 427–453.
14.
CambridgeP (1998) Challenges for safer sex education and HIV prevention in services for people with intellectual disabilities in Britain. Health Promotion International13(1): 67–74.
15.
CambridgeP (1999) Considerations for informing safer sex education work with men with learning disabilities. British Journal of Learning Disabilities27(4): 123–126.
16.
CambridgeP (2001) The HIV testing of a man with learning disabilities: informed consent, confidentiality and policy. Journal of Adult Protection3(4): 23–28.
17.
CarmanMCorbozJDowsettGW (2012) Falling through the cracks: the gap between evidence and policy in responding to depression in gay, lesbian and other homosexuality active people in Australia. Australian and New Zealand Journal of Public Health36(1): 76–83.
18.
Centre for Disability Research and Policy (2014) Report of Audit of Disability Research in Australia. Sydney, Australia: The University of Sydney, Centre for Disability Research and Policy.
19.
ChapmanRLedgerSTownsonL. (2015) Sexuality and Relationships in the Lives of People with Intellectual Disabilities: Standing in My Shoes. London, UK: Jessica Kingsley Publishers.
20.
ClarkeSFinneganP (2005) One Law for All? The impact of the Human Rights Act on People with Learning Difficulties. London, UK: VIA.
21.
ConahanFRobinsonTMillerB (1993) A case study relating to the sexual expression of a man with developmental disability. Sexuality and Disability11(4): 309–318.
22.
Davidson-PaineCCorbettJ (1995) A double coming out: gay men with learning disabilities. British Journal of Learning Disabilities23(4): 147–151.
23.
DinwoodieRGreenhillBCooksonA (2016) ‘Them two things are what collide together’: understanding the sexual identity experiences of lesbian, gay, bisexual and trans people labelled with intellectual disability. Journal of Applied Research in Intellectual Disabilities. DOI: 10.1111/jar.12252.
24.
DrummondE (2006) Attitudes towards sexuality: a pilot study in Ireland. Learning Disability Practice9(4): 28–34.
25.
EdmondsCCollinsA (1999) Using social and educational approaches to enable a man with learning disabilities to develop his sexual identity and orientation. British Journal of Learning Disabilities27(4): 127–131.
26.
EldertonAJonesC (2011) Finding a place to explore sexual identity. Learning Disability Practice14(5): 14–17.
27.
EldertonAClarkeSJonesC. (2014) Telling our story: a narrative therapy approach to helping lesbian, gay, bisexual and transgender people with a learning disability identify and strengthen positive self-identity stories. British Journal of Learning Disabilities42(4): 301–307.
28.
ElliottD (2005) Australia and gay and lesbian rights. Peace Review: A Journal of Social Justice17(2–3): 137–142.
29.
FrawleyPSlatteryJStokoeL. (2011) Living Safer Sexual Lives: Respectful Relationships. Peer Educator and Co-facilitator Manual. Melbourne, Australia: Australian Research Centre in Sex, Health & Society, LaTrobe University.
30.
FrawleyPWilsonNJ (2016) Young people with intellectual disability talking about sexuality education and information. Sexuality and Disability34(4): 469–484.
31.
GrantGRamcharanPFlynnM. (eds) (2010) Learning Disability: A Life Cycle Approach. 2nd ed. Maidenhead, UK: McGraw Hill/Open University Press.
32.
HayashiMArakidaMOhashiK (2011) The effectiveness of a sex education program facilitating social skills for people with intellectual disability in Japan. Journal of Intellectual and Developmental Disability36(1): 11–19.
33.
HaymanBWilkesLJacksonD. (2013) De novo lesbian families: legitimizing the other mother. Journal of GLBT Family Studies9(3): 273–287.
34.
HealyJ (2007) Gay and Lesbian Rights. Thirroul, Australia: Spinney Press.
35.
HingsburgerD (1993) Staff attitudes, homosexuality and developmental disability: a minority within a minority. Canadian Journal of Human Sexuality2(1): 19–22.
36.
HodgesNParkesN (2005) Tackling homophobia and heterosexism. Learning Disability Practice8(3): 10–16.
37.
HorsleyPAzzopardiS (1990) Sexuality, Rights and Choices: Sexuality, Sexual Abuse and Appropriate Behaviour Education for People with Intellectual Disabilities. Richmond, Australia: Family Planning Association of Victoria.
38.
KarellouJ (2003) Laypeople’s attitudes towards the sexuality of people with learning disabilities in Greece. Sexuality & Disability21(1): 65–84.
39.
LindsayWRMichieAMStainesC. (1994) Client attitudes towards relationships: changes following a sex education programme. British Journal of Learning Disabilities22(2): 70–73.
40.
Löfgren-MårtensonL (2009) The invisibility of young homosexual women and men with intellectual disabilities. Sexuality and Disability27(1): 21–26.
41.
MacCallumEJ (2002) Othering and psychiatric nursing. Journal of Psychiatric and Mental Health Nursing9(1): 87–94.
42.
MarshallZNixonSNepveuxD. (2012) Navigating risks and professional roles: research with lesbian, gay, bisexual, trans, and queer young people with intellectual disabilities. Journal of Empirical Research on Human Research Ethics7(4): 20–33.
43.
McCannELeeRBrownM (2016) The experiences and support needs of people with intellectual disabilities who identify as LGBT: a review of the literature. Research in Developmental Disabilities57: 39–53.
44.
McCarthyM (2014) Women with intellectual disability: their sexual lives in the 21st century. Journal of Intellectual and Developmental Disability39(2): 124–131.
45.
McCarthyMThompsonDLathamM (2007) Sex and the 3Rs: Rights, Risks and Responsibilities. 3rd ed. Brighton, UK: Pavilion Publishing.
46.
McClellandAFlickerSNepveuxD. (2012) Seeking safer sex spaces: queer and transgender young people labelled with intellectual disabilities and the paradoxical risk of restriction. Journal of Homosexuality59(6): 808–819.
47.
MurphyGHO’CallaghanA (2004) Capacity of adults with intellectual disability to consent to sexual relationships. Psychological Medicine34(7): 1347–1357.
48.
NoonanAGomezM (2011) Who’s missing? Awareness of lesbian, gay, bisexual and transgender people with intellectual disability. Sexuality and Disability29(2): 175–180.
49.
ParkesN (2006) Sexual issues and people with a learning disability. Learning Disability Practice9(3): 32–37.
50.
ParkesGHallIWilsonD (2009) Cross dressing and gender dysphoria in people with learning disabilities: a descriptive study. British Journal of Learning Disabilities37(2): 151–156.
51.
RobertsonPEBhateSRBhateMS (1991) AIDS: education and adults with a mental handicap. Journal of Mental Deficiency Research35: 475–480.
52.
RohlederPSwartzL (2009) Providing sex education to persons with learning disabilities in the era of HIV/AIDS: tensions between discourses of human rights and restriction. Journal of Health Psychology14(4): 601–610.
53.
SaxeAFlanaganT (2014) Factors that impact support workers’ perceptions of the sexuality of adults with developmental disabilities: a quantitative analysis. Sexuality and Disability32(1): 45–63.
54.
StancliffeRJMcVillyKRRadlerG. (2010) Active support, participation and depression. Journal of Applied Research in Intellectual Disabilities23(4): 312–321.
55.
Stauffer-KruseS (2007) Gay men with learning disabilities: UK service provision. Journal of Gay & Lesbian Psychotherapy11(1–2): 145–152.
56.
StoffelenJKokGHosperesH. (2013) Homosexuality among people with a mild intellectual disability: an explorative study on the lived experiences of homosexual people in the Netherlands with a mild intellectual disability. Journal of Intellectual Disability Research57(3): 257–267.
57.
ThompsonD (1994) The sexual experiences of men with learning disabilities having sex with men – issues for HIV prevention. Sexuality and Disability12(3): 221–242.
58.
ThompsonSA (2002) The practices in and “out” of policy. Research and Practice for Persons with Severe Disabilities27(1): 87–92.
59.
ThompsonSA (2003) Subversive political praxis: supporting choice, power and control for people with learning difficulties. Disability and Society18(6): 719–736.
60.
ThompsonSABrysonMde CastellS (2001) Prospects for identity formation for lesbian, gay, or bisexual persons with developmental disabilities. International Journal of Disability, Development and Education48(1): 53–65.
61.
ThompsonVStancliffeRJBroomA. (2016) Clinicians’ use of sexual knowledge assessment tools for people with intellectual disability. Journal of Intellectual and Developmental Disability41(3): 243–254.
62.
United Nations (2013) The universal declaration of human rights. Available at: http://www.un.org/en/documents/udhr/ (accessed 12 September 2016).
63.
WeisL (1995) Identity formation and the process of “othering”: unravelling sexual threads. Educational Foundations9(1): 17–33.
64.
WilsonD (2006) Gender identity, cross-dressing and gender reassignment and people with learning disabilities. Learning Disability Review11(2): 4–11.
65.
WilsonNJFrawleyP (2016) Transition staff discuss sex education and support for young men and women with intellectual and developmental disability. Journal of Intellectual and Developmental Disability41(3): 209–221.
66.
WilsonNJJaquesHJohnsonA. (2016) From social exclusion to supported inclusion: adults with intellectual disability discuss their lived experiences of a structured social group. Journal of Applied Research in Intellectual Disabilities. Advance online publication. DOI: 10.1111/jar.12275.
67.
WilsonNJParmenterTRStancliffeRJ. (2010) A masculine perspective of gendered topics in the research literature on men and boys with intellectual disability. Journal of Intellectual and Developmental Disability35(1): 1–8.
68.
WilsonNJPlummerD (2014) Towards supporting a healthy masculine sexuality: utilizing mainstream male health policy and masculinity theory. Journal of Intellectual and Developmental Disability39(2): 132–136.
69.
WilsonNJStancliffeRJGambinN. (2015) A case study about the supported participation of older men with lifelong disabilities at Australian community-based men’s sheds. Journal of Intellectual and Developmental Disability40(4): 330–341.
70.
Winges-YanezN (2014) Why all the talk about sex? An authoethnography identifying the troubling discourse of sexuality and intellectual disability. Sexuality and Disability32(1): 107–116.
71.
WithersPEnsumIHowarthD. (2001) A psychoeducational group for men with intellectual disabilities who have sex with men. Journal of Applied Research in Intellectual Disabilities14(4): 327–339.
