The aim of this article is to review the literature related to fathers of people who have an intellectual disability (ID). Electronic databases and citation tracking were used to collate data using key terms such as fathers, adults with an ID, learning disability, mental handicap and developmental disability. Relevant articles were analysed and compared for commonality and difference. Eight themes emerged from the literature: response to diagnosis, varied response to ID, concern for the future, work, roles and relationships, impact of fathers upon child development, fathers and service providers, fathers’ needs and coping strategies. This review of the literature presents areas of similarity and divergence and highlights the lack of information that relates specifically to fathers of adults. There are clear messages to service providers to support the inclusion of fathers and the need for further research in this area is indicated.
BaumannSLBraddickM (1999) Out of their element: fathers of children who are “not the same”. Journal of Pediatric Nursing14(6): 369–378.
2.
BertelliMBiancoARossiM. (2011) Relationship between individual quality of life and family quality of life for people with intellectual disability living in Italy. Journal of Intellectual Disability Research55(12): 1136–1150.
3.
BostromPKBrobergM (2014) Openness and avoidance – a longitudinal study of fathers of children with intellectual disability. Journal of Intellectual Disability Research58(9): 810–821.
4.
BoyrazGSaygerTV (2011) Psychological well-being among fathers of children with and without disabilities: the role of family cohesion, adaptability and paternal self-efficacy. American Journal of Men’s Health5(4): 286–296.
5.
BrayASheltonEJBallardK. (1995) Fathers of children with disabilities: some experiences and reflections. New Zealand Journal of Disability Studies1: 164–176.
6.
BurkeMMTaylorJLUrbanoR. (2012) Predictors of future caregiving by adult siblings of individuals with intellectual and developmental disabilities. American Journal of Intellectual and Developmental Disabilities117(1): 33–47.
7.
CarpenterBTowersC (2008) Recognising fathers: the needs of fathers of children with disabilities. Support for Learning23(3): 118–125.
8.
CooperVWardC (2011) Valuing people: family matters ten years on. Tizard Learning Disability Review16(2): 44–48.
9.
CummingsST (1976) The impact of the child's deficiency on the father: a study of fathers of mentally retarded and chronically ill children. American Journal of Orthopsychiatry46(2): 246–255.
10.
DavisPBMayJE (1991) Involving fathers in early intervention and family support programs: issues and strategies. Children’s Health Care20(2): 87–92.
11.
de FalcoSEspositoGVenutiP. (2008) Fathers’ play with their Down syndrome children. Journal of Intellectual Disability Research52(6): 490–502.
12.
Department of Health (2001) Family Matters: Counting Families In. London: DoH.
13.
Department of Health (2008a) Valuing People Now: From Progress to Transformation. London: DoH.
14.
DyerWJMcBrideBAMilagros SantosR. (2009) A longitudinal examination of father involvement with children with developmental delays: does timing of diagnosis matter?Journal of Early Intervention31(3): 265–281.
15.
ElderJHValcanteGWonD. (2003) Effects of in-home training for culturally diverse fathers of children with autism. Issues in Mental health Nursing24: 273–295.
16.
ElderJHValcanteGYarandiH. (2005) Evaluating in-home training for fathers of children with autism using single-subject experimentation and group analysis methods. Nursing Research54(1): 22–32.
17.
EmersonEHattonC (2008) People with Learning Disability in England. Bailrigg, Lancaster: Lancaster University, Centre for Disability Research.
18.
FlippinMCraisER (2011) The need for more effective father involvement in early autism intervention: a systematic review and recommendations. Journal of Early Intervention33(1): 24–50.
19.
GallagherJCrossAScharfmanW (1981) Parental adaptation to a young handicapped child: the fathers role. Journal of the Division for Early Childhood3(1): 3–14.
20.
GoreN (2010) Support for fathers of learning disabled children. Community Care11(1809): 24–25.
21.
HerbertECarpenterB (1994) Fathers – the secondary partners: professional perceptions and fathers reflections. Children and Society8(1): 31–41.
22.
Hornby (1992) A review of fathers accounts of their experiences of parenting children with disabilities. Disability, Handicap and Society7(4): 363–374.
23.
Hornby (1995a) Fathers views of the effects on their families of children with Down syndrome. Journal of Child and Family Studies4(1): 103–117.
24.
HornbyG (1995b) Effects on fathers of children with Down syndrome. Journal of Child and Family Studies4(2): 1062–1024.
25.
HouserRSeligmanM (1991) A comparison of stress and coping by fathers of adolescents with mental retardation and fathers of adolescents without mental retardation. Research in Developmental Disabilities12: 251–260.
26.
LittleL (2002) Differences in stress and coping for mothers and fathers of children with asperger's syndrome and nonverbal learning disorders. Pediatric Nursing28(6): 565–570.
27.
LyARGoldbergWA (2014) New measures of fathers of children with developmental challenges. Journal of Intellectual Disability Research58(5): 471–484.
28.
MacDonaldEEHastingsRPFitzsimonsE (2010) Psychological acceptance mediates the impact of the behaviour problems of children with intellectual disability on fathers’ psychological adjustment. Journal of Applied Research in Intellectual Disabilities23: 27–27.
29.
MacDonaldEEHastingsRP (2010) Mindful parenting and care involvement of fathers of children with intellectual disabilities. Journal of Child Family Studies19: 236–240.
30.
MansellJ (2010) Raising our sights: services for adults with profound intellectual and multiple disabilities. Tizard Learning Disability Review15(3): 5–12.
31.
MarkowitzJ (1989) Participation of fathers in early childhood special education programs: an exploratory study. Journal of the Division for Early Childhood8: 119–131.
32.
MayFSMcLeanLAAndersonA. (2013) Father participation with mothers in the Signposts program: an initial investigation. Journal of Intellectual & Developmental Disability38(1): 39–47.
33.
MeyerDJVadasyPFFewellRR. (1982) Involving fathers of handicapped infants: translating research into program goals. Journal of the Division for Early Childhood10(1): 64–72.
34.
McInnesEEHillsAChapmanMJ (2011) Eligibility for statutory learning disability services in the north-west of England. Right or luxury? Findings from a pilot study. British Journal of Learning Disabilities40(3): 117–186.
35.
O'BrienM (2005) Shared Caring: Bringing Fathers into the Frame. Equal Opportunities Commission Working Paper Series number 18. Equal Opportunities Commission. Available at: http://core.ac.uk/download/pdf/4155069.pdf(accessed 3 May 2015).
36.
QuinnP (1999) Supporting and encouraging father involvement in families of children who have a disability. Child and Adolescent Social Work16(6): 439–454.
37.
RendallD (1997) Fatherhood and learning disabilities: a personal account of reaction and resolution. Journal of Learning Disabilities for Nursing, Health and Social Care1(2): 77–83.
38.
RicciLAHodappRM (2003) Fathers of children with Down’s syndrome versus other types of intellectual disability: perceptions, stress and involvement. Journal of Intellectual Disability Research47(4/5): 273–284.
39.
RivardMTMastel-SmithB (2014) The lived experience of fathers whose children are diagnosed with a genetic disorder. Journal of Obstetric, Gynecologic, and Neonatal Nursing42: 38–49.
40.
RodrigueJRMorganSBGeffkenGR (1992) Psychosocial adaptation of fathers of children with autism, Down syndrome, and normal development. Journal of Autism and Developmental Disorders22(2): 249–263.
41.
StevensonMCrnicK (2013) Intrusive fathering, children’s self-regulation and social skills: a mediation analysis. Journal of Intellectual Disability Research57(6): 500–512.
42.
TaylorJLHodappRM (2012) Doing nothing: adults with disabilities with no daily activities and their siblings. American Journal on Intellectual Developmental Disabilities117(1): 67–79.
43.
TowersC (2007) Let's not forget about fathers. Learning Disability Today7(2): 15–21.
VadasyPFFewellRRMeyerDJ. (1985) Supporting fathers of handicapped young children: preliminary findings of program effects. Analysis and Intervention in Developmental Disabilities, 5:151–163.
47.
VadasyPFFewellRRGreenbergMT. (1986) Follow-up evaluation of the effects of involvement in the fathers program. Topics in Early Childhood Special Education6(2): 16–31.
48.
WestA (1998) The piloting of a group for the fathers of children with Down syndrome. Child: Care, Health and Development24(4): 289–294.
49.
WestS (2000) Just a Shadow: A Review of Support to Fathers of Children with Disabilities. Birmingham: Handsel Trust.
50.
YoungDMRooparineJL (1994) Fathers’ childcare involvement with children with and without disabilities. Topics in Early Childhood Special Education14(4): 488–502.
