Children with intellectual disabilities (IDs) and their parents continue to experience stigma within health-care systems. Whilst some research studies have examined the stigma associated with children who have IDs, there continues to be a gap in understanding how the experiences of these children, their parents and nurses have been constructed personally, socially and institutionally. Face-to-face semi-structured interviews were conducted with 17 mothers, 12 nurses and 8 children. Feminist post-structuralism and discourse analysis were used to examine the experiences of children, parents and nurses with the intent of understanding the dominant taken-for-granted everyday practices as well as hidden or marginalized practices. Four main themes emerged, which included the theme of Diagnoses, Labels and Stereotypes, which will be discussed in this article. Participants provided rich detail about their experiences in the hospital and how they addressed and often attempted to challenge the stigma associated with children with IDs.
BakerCChapmanMMitchellD (2009) Access to secondary healthcare for people with intellectual disabilities: a review of the literature. Journal of Applied Research in Intellectual Disabilities22: 514–525.
2.
BaxterHLoweKHoustonH. (2006) Previously unidentified morbidity in patients with intellectual disability. British Journal of General Practice56: 93–98.
3.
BergKArronKBurbidgeC. (2007) Carer-reported contemporary health problems in people with severe and profound intellectual disability and genetic syndromes. Journal of Policy and Practice in Intellectual Disabilities4: 120–128.
4.
BrownFJGuvenirJ (2008) The experiences of children with learning disabilities, their carers and staff during a hospital admission. British Journal of Learning Disabilities37: 110–115.
5.
ButlerJ (1992) Contingent foundations: feminism and the question of “postmodernism”. In: ButlerJScottJ (eds) Feminists Theorize the Political. New York: Routledge, pp. 3–21.
6.
CheekJ (2000) Postmodern and Poststructural Approaches to Nursing Research. Thousand Oaks: Sage Publications.
7.
FoucaultM (1983) The subject and power. In: DreyfusHLRainbowP (eds) Michel Foucault, Beyond Structuralism and Hermeneutics. 2nd ed. Chicago: University of Chicago Press, pp. 208–226
8.
FridCAnnerenGRasmussenF. (2002) Utilization of medical care among children with Down’s syndrome. Journal of Intellectual Disability Research46(4): 310–317.
9.
GibbsSMBrownMJMuirWJ (2008) The experiences of adults with intellectual disabilities and their carers in general hospitals: a focus group study. Journal of Intellectual Disability Research52(12): 1061–1077.
10.
IaconoTDavisR (2003) The experiences of people with developmental disability in emergency departments and hospital wards. Research in Developmental Disabilities24: 247–264.
11.
KwokHCheungPW (2007) Co-morbidity of psychiatric disorder and medical illness in people with intellectual disabilities. Current Opinion in Psychiatry20: 443–449.
12.
LewisSStenfert-KroeseB (2010) An investigation of nursing staff attitudes and emotional reactions towards patients with intellectual disabilities in a general hospital setting. Journal of Applied Research in Intellectual Disabilities23: 355–365.
13.
MahonMKibirigeMS (2004) Patterns of admissions for children with special needs to the paediatric assessment unit. Archives of Disease in Childhood89: 165–169.
14.
MatziouVGalanisPTsoumakasC. (2009) Attitudes of nurse professionals and nursing students towards children with disabilities. Do nurses really overcome children’s physical and mental handicaps?International Nursing Review56(4): 456–460.
15.
McConkeyRTruesdaleM (2000) Reactions of nurses and therapists in mainstream health services to contact with people who have learning disabilities. Journal of Advanced Nursing32(1): 158–163.
16.
McKeonM (2009) A survey of clinical nursing skills in intellectual disability nursing. Journal of Intellectual Disabilities13: 31–41.
17.
ShanleyEGuestC (1995) Stigmatisation of people with learning disabilities in general hospitals. Journal of Nursing4(13): 759–761.
18.
TracyJIaconoT (2008) People with developmental disabilities teaching medical students – does it make a difference?Journal of Intellectual & Developmental Disability33(4): 345–348.
19.
WalshKKHammermanSJosephsonF. (2000) Caring for people with developmental disabilities: survey of nurses about their education and experience. Mental Retardation38: 33–41.
20.
WalshKKKastnerTCriscioneT (1997) Characteristics of hospitalizations for people with developmental disabilities: utilization, costs, and impact of care coordination. American Journal on Mental Retardation101: 505–520.
21.
WebbJ (2009) Working with primary care practices to improve service delivery for people with learning disabilities – a pilot study. British Journal of Learning Disabilities37: 221–227.
22.
WebberRBowersBBigbyC (2010) Hospital experiences of older people with intellectual disability: responses of group home staff and family members. Journal of Intellectual & Developmental Disability35(3): 155–164.
23.
WilliamsKLeonardHTursan d’EspaignetE. (2005) Hospitalisations from birth to 5 years in a population cohort of western Australian children with intellectual disability. Archives of Disease in Childhood90: 1243–1248.
24.
YamWKTsePWYuCM. (2008) Medical issues among children and teenagers with Down syndrome in Hong Kong. Down Syndrome Research and Practice12: 138–140.
